Ann & Robert H. Lurie Children's Hospital of Chicago

Abeona Therapeutics Inc. (Nasdaq: ABEO) and Ann & Robert H. Lurie Children’s Hospital of Chicago today announced that Lurie Children’s is now activated as the first Qualified Treatment Center (QTC) for ZEVASKYN (prademagene zamikeracel) gene-modified cellular sheets. This groundbreaking therapy will be used to treat wounds associated with recessive dystrophic epidermolysis bullosa (RDEB) – a rare skin disorder characterized by severe, painful wounds that can lead to systemic complications impacting the length and quality of life. Amy Paller, MD, head of the epidermolysis bullosa research and care program at Lurie Children’s, and Chair of the Department of Dermatology at Northwestern University - The Feinberg School of Medicine, said, “Lurie Children’s is proud to be the first qualified treatment site in the U.S. to offer this groundbreaking treatment for RDEB patients. Grafting gene-corrected cellular sheets onto chronically open wounds of patients with RDEB promises the potential to provide long-term healing of wounds, reduction in pain and reduced risk of infection.” https://lnkd.in/dCh2eEDk

It's National EoE week! Lurie Children’s is proud to be the home of the Wechsler and CURED Laboratory which has accelerated and deepened our understanding of Eosinophilic Gastrointestinal Disorders and is working towards personalized therapies for children and youth. We are grateful for the CURED Foundation's support and its lifechanging impact on families through research, advocacy and education. Featured in photo: Dr. Patrick Seed, Stanley Manne Children's Research Institute President and Chief Research Officer; Dr. Josh Wechsler, CURED Research Scholar; and Ellyn Kodroff, CURED Foundation Founder, celebrating the launch of the newly named Wechsler and CURED Laboratory. We thank the CURED Foundation for its partnership! Learn more about our Eosinophilic Gastrointestinal Diseases (EGID) Program https://lnkd.in/gpjiKn_c. #EoEAwareness #CUREDFoundation #EosinophilicEsophagitis

May 22 is the American College of Surgeons' National Stop the Bleed Day! Learning to stop the bleed is a life-saving skill. The No. 1 cause of preventable death after injury is bleeding. With three quick actions, you can be trained and empowered to save a life. To stop bleeding, apply firm pressure to the wound with a clean cloth or bandage. Keep pressing until the bleeding slows or stops. If blood soaks through the material, do not remove it; instead, add more layers on top. Elevate the injured area if possible. For serious bleeding, call emergency services immediately. Lurie Children’s Trauma Center, EMS and Emergency Departments have taught hundreds of kids and adults with Stop the Bleed Training. If you have interest in hosting at your facility, email [email protected] or [email protected].

We are incredibly grateful to have Hub Group as this year's Corporate Grand Marshal for The Walk. Thank you for your amazing support! It's not too late to register! Join us on June 1st for a 3-mile walk at Busse Woods or Montrose Harbor alongside patients, families, caregivers and staff, then join the post-walk family celebration and find moments of connection, celebration and inspiration throughout the day. https://lnkd.in/giJhEzwA

Right now, federal proposals to cut #Medicaid funding represent a significant and immediate threat to the patients cared for by Lurie Children’s and the communities we serve. Medicaid supports more than half of all children in Illinois, including many of our most medically complex patients. Cuts to Medicaid funding would limit access to life-saving care, mental health services, and treatment for chronic conditions—especially for children from underserved communities. At Lurie Children’s, we see every day how Medicaid ensures access to life-saving care, mental health support, and treatment for chronic and complex conditions. If these cuts move forward, families across Illinois could lose access to the care they desperately need. Join us and contact your members of Congress today: https://lnkd.in/gdmJ92ns. It only takes a minute, and your voice can make a difference for kids across Illinois. Thank you!

Researchers derived pragmatic models that accurately distinguish mild, moderate and severe pneumonia in children, based on evidence from a study performed in 73 Emergency Departments (EDs) in 14 countries through the international Pediatric Emergency Research Network (PERN). The new predictive tools are intended to complement clinician judgement in deciding whether a child’s pneumonia warrants hospitalization or intensive care. The study was published in Lancet Child and Adolescent Health. “While only a small percentage of children with pneumonia will have severe outcomes, it’s crucial to identify these patients early so clinicians can act swiftly and aggressively to prevent further deterioration in these children,” said lead author Todd Florin, MD, MSCE, Associate Division Head for Academic Affairs & Research for the Division of Pediatric Emergency Medicine at Ann & Robert H. Lurie Children’s Hospital of Chicago, Stanley Manne Children's Research Institute and Associate Professor of Pediatrics at Northwestern University - The Feinberg School of Medicine. Read more: https://lnkd.in/gCfsu3fx. #pneumonia #pediatrics #research #emergencymedicine

In April, Mila and her family spoke on the main stage at Children’s Hospitals Week at Walt Disney World Dolphin Resort in Florida, sharing their remarkable journey. In 2017, Mila and her mom, Kylie, were the first patients at The Chicago Institute for Fetal Health at Lurie Children’s to undergo surgery to repair spina bifida while Kylie was 22 weeks pregnant. The Chicago Institute team was hopeful that having this procedure before Mila was born would help prevent neurologic and mobility problems from happening, such as being paralyzed from the waist down. It was a success. Mila, now 7, can walk short distances unassisted. She takes piano lessons, is preparing a dance routine for a talent show. This summer, her plans include learning to use her new racing wheelchair and attending Camp Independence, an overnight camp for kids with spina bifida. She continues follow-up care with Lurie Children's Spina Bifida Center team, including Dr. Robin Bowman, who performed Mila and Kylie's surgery in 2017 along with The Chicago Institute's Director, Dr. Aimen Shaaban. We are so proud of Mila’s hard work and progress, and her family’s advocacy for spina bifida awareness! Learn more about treatment for spina bifida at The Chicago Institute for Fetal Health: https://lnkd.in/gpwHnGTh

From paramedic to food allergy advocate, Asha Brown never imagined she'd be responding to an emergency in her own home—until her 6-month-old son, Desmond, experienced anaphylaxis after his first peanut exposure. Now 5, Desmond recently became the 100th graduate of Lurie Children’s Pediatric Oral Immunotherapy Program (OIT), helping retrain his immune system and build daily protection against severe reactions. “The ability to eat a small amount of the food someone is allergic to daily provides protection against accidental exposures and alleviates the fear of a severe reaction. While OIT isn’t a cure for food allergies, this ‘bite protection’ improves quality of life for patients like Desmond and his family, and it helps families conquer the fear of their food allergy by actively doing something to help make it less scary,” said Abby Lang, MD, MSCI, Co-Director, Oral Immunotherapy Program. Read more about Desmond's success with OIT https://lnkd.in/ghc28wJd. #foodallergy #foodallergyawarenessweek #oit #oralimmunotherapy 

In 2012, Mallory was just ten months old when she was rushed to Lurie Children’s with a sudden and severe case of bacterial meningitis. Her condition was critical, and she spent weeks in the PICU fighting for her life. What followed were some of the most difficult days her family had ever faced. That same year, her parents Jennifer and Nick joined the very first Move for Kids as a simple way to say “thank you” to the care teams who had given their daughter a second chance. They named their team Mal’s Pals, never imagining just how much that small gesture would grow. Mallory is now a thriving teenager. She continues to receive follow-ups from several specialists at Lurie Children’s and is still inspiring everyone around her. Over the years, her family has worked with dozens of doctors, nurses, audiologists, therapists, and staff across departments. Each one plays a role in her recovery, her strength, and her confidence. This year marks the Evangelides family’s 13th year participating in The Walk, and we are honored to announce them as the 2025 Patient Family Grand Marshal. What began as a small team of eight has grown into something much bigger, a community of supporters walking side by side in celebration, gratitude and hope. Join us in the walk for Mallory, for the hospital that continues to support patients like her, and for every child and family whose lives are forever changed by the care at Lurie Children’s! https://lnkd.in/giJhEzwA

Diffuse intrinsic pontine glioma, known as DIPG, is a rare and aggressive type of pediatric cancer that forms in the brainstem, resulting in approximately 200 to 300 new cases in the United States each year. Fortunately, investigators at Lurie Children's are paving the way to breakthrough treatment for children with DIPG. In this podcast episode, Lurie Children’s physicians Dr. Ashley Plant-Fox and Dr. Michael DeCuypere discuss the progress of this first-of-its-kind clinical trial for DIPG that has been open since January of 2022 and offers hope for a disease that currently has no curative options. https://lnkd.in/gaqw4JVi