HypoPARAthyroidism Association

Thank you Ascendis Pharma U.S. for inviting us for these two very important occasions, for continuing to keep us in the conversation and the opportunity to meet with Pamela Gavin. Congrats on your award and your beautiful new office.

We’re hosting an upcoming webinar designed to help physicians gain a deeper understanding of Why PTH?—including guidance on titration and real-world case studies. If you are hesitant about prescribing PTH, this session could be a great resource. It’s also ideal for providers who have just started prescribing PTH, have limited experience with it, or would like more confidence in the titration process. Please feel free to share the registration link—there’s no cost to attend, and the session will be recorded for convenience. Register here https://lnkd.in/gngRaucA

Insights on the burden for patients in the UK.

BridgeBio is hosting a webinar featuring Michael Mannstadt, MD speaking about genetic testing for hypoPARA. To register go to  https://lnkd.in/grs9ZPAt Share with your colleagues as well

We are hosting a webinar on Oct. 22nd We hope you will join us and share this information with your colleagues Register here https://lnkd.in/gngRaucA

If you know an adolescent that might be interested in participating in this study share this opportunity #hypoparathyroidism #hypocalcemia

We are hosting a webinar on Oct. 22nd We hope you will join us and share this information with your colleagues Register here https://lnkd.in/gngRaucA

If you have patients still on Natpara this is a reminder that shipments for the medication will stop Dec. 31st. Please make plans now to help them transition before that date.

Thank you to everyone who joined us at our conference this past weekend! We had an incredible time filled with insightful presentations, engaging conversations during breaks, and the opportunity to connect with so many new faces. A special thank-you goes out to our sponsors and vendors—not only for your generous support, but for taking the time to engage with patients and have meaningful, impactful conversations. Your presence truly helped make this event a success. Alexion Pharmaceuticals, Inc. Ascendis Pharma BridgeBio MBX Biosciences, Inc. Septerna Orsini - Rare Disease Pharmacy Solutions PANTHERx Rare Pharmacy Patients Rising #hypopara2025

There are many factors that need to be considered when working with patients with hypoPARA. One rarely discussed is the economic burden. Here is one article but much more research is needed. https://lnkd.in/gbJfFbb5