The IgA Nephropathy Foundation

Spirit Week is almost Wrapped-Up! As we end our Spirit Week celebration, we’re reflecting on 21 years of progress, community, and hope. From a grassroots beginning to a global movement, the IgAN Foundation has come so far—because of YOU. It’s not too late to join the celebration! Share a moment from your IgAN journey—whether it’s a personal milestone or a powerful connection—on our IgAN Day Kudo Board. https://lnkd.in/egY87hKj Let’s honor how far we’ve come—together. #IgANDay #SpiritWeek #IgAN21 #IgANStrong #KidneyHealth #CommunityMatters #KudoBoard

Igniting Hope During IgAN Spirit Week Be Part of the Future—Join the IgAN Hope Patient Registry As we celebrate IgAN Aware Day and continue the momentum of Spirit Week, we’re focused on one powerful word: HOPE. Hope drives research. Hope builds community. And hope begins with you. Your Data. Your Voice. Your Hope. Today, we invite you to take the next step: Join the waitlist for early access to the IgAN Hope Patient Registry. Your experience can help shape the future of IgAN research, care, and support. Get involved: Sign up today and be part of the foundation for future breakthroughs. iganhope.org ❤️💙 Post what gives you hope—a treatment, connection, or small win—on social or Kudoboard using #IgANHope. This is more than a registry—it’s a movement. And it starts with all of us. Together, we are turning hope into action.

We don’t face IgAN alone. Let’s take today to honor those who support us—whether it’s a fellow IgAN patient, caregiver, kidney donor, doctor, family member, or friend. SHARE YOUR STORY ❤️💙 Share a post on Kudoboard or social media thanking someone who has helped you along your journey. Tag them and spread the love!

In honor of IgA Nephropathy Awareness Day, HealthCentral editor Julia Savacool sat down with Bonnie Schneider, the founder and director of the IgAN Foundation, to talk about how far we’ve come and where things stand now with treating and managing this rare form of kidney disease. Schneider recounted how she began the Foundation after her son’s diagnosis, and the many ways her organization today serves as a resource center for others living with IgAN. https://lnkd.in/eQcmhq5m #iganawareday #iganaware #iganephropathy

Chronic illness isn’t just physical—it takes an emotional toll too. Today, join us for a powerful webinar with Talkspace on navigating the mental and emotional challenges of IgAN. Let’s talk honestly about what it means to live with chronic disease—and remind each other we’re not in this alone. https://lnkd.in/eP_WxzvQ Check the link in bio for event details. #IgANAware #MentalHealthMatters

Today on #IgANAware Day, we're proud to officially our Go Global Network. We’re launching our Go Global Network program in Canada, marking the beginning of our international outreach to ensure every IgAN patient has access to community, resources, and support—no matter where they live. From the U.S. to Canada and beyond, the fight for awareness and a cure is just getting stronger. 🌎💪❤️💙 Welcome to the global IgAN family. #IgANGoGlobalNetwork #igANAware #IgANDay

21 years ago, we made a promise to never stop fighting for a cure—and to never let anyone feel alone in this disease. Today, on #IgANAware Day, we celebrate how far we've come as a community. From a small group of determined families to a global movement, our mission remains the same: support, research, and hope. – Ed & Bonnie Schneider, Founders, IgA Nephropathy Foundation Let’s keep pushing forward—together. ❤️💙

21 years ago, we made a promise to never stop fighting for a cure—and to never let anyone feel alone in this disease. Today, on #IgANAware Day, we celebrate how far we've come as a community. From a small group of determined families to a global movement, our mission remains the same: support, research, and hope. – Ed & Bonnie Schneider, Founders, IgA Nephropathy Foundation Let’s keep pushing forward—together. ❤️💙 #iganaware #iganday #iganawareday #strikeoutigan #iganephropathy

Meet Tiffany – IgAN Warrior, 3x Kidney Transplant Recipient, and Texas Ambassador ❤️💙 From Garland, Texas to eight states and five countries around the world, Tiffany’s journey is nothing short of extraordinary. A fierce advocate and resilient fighter, Tiffany shares her powerful story of living with IgA Nephropathy and the road to three kidney transplants. As part of IgAN Awareness Spirit Week, we’re honored to spotlight Tiffany’s voice and experience—a testament to strength, perseverance, and the power of community. Watch her story and help us raise awareness for IgA Nephropathy, one journey at a time. #IgANAwareness #IgANSpiritWeek #PatientVoices #IgANAmbassador #IgANAware #IgANday

Many people living with IgA Nephropathy didn’t know they were at risk—until it was too late. Today is about changing that. It’s IgANAware Spirit Week and today is Risk Quiz & Education Day, and we’re asking everyone to take a few simple steps to help raise awareness and empower others: ✅ Take/Share our quick IgAN Risk Quiz ✅ Explore the latest research updates ✅ Start the conversation about IgAN in your community Knowledge is power. Let’s use it to protect those who may not know they’re at risk. Learn and share with us. https://lnkd.in/eSNVVV6t #IgANAware #KnowTheRisk #IgANEducationDay #KidneyHealth #IgANFoundation #igANday