Monogram Health visits Penn LDI for research insights

🛎️ New publication alert 🛎️ The Casebook of Public and Patient Engagement Evaluation in Health Research, Health Systems, and Policy is now available. This open-access collection features 10 case studies from across Canada exploring how organizations and teams are evaluating and learning from their engagement work. Together, these cases showcase a growing field of practice that connects evaluation, learning, and impact in diverse sectors, patient populations, and communities, including: - Mental health  - Brain and neurodevelopmental research  - Preclinical stroke studies  - Pediatric rare disease research  - Aging populations  - Chronic pain research  - Primary care data communication  - Research priorities for African, Caribbean, and Black communities These cases illustrate the evolving practice of evaluating engagement, highlighting what works, where the challenges lie, and how to adapt along the way. Explore the Casebook: https://lnkd.in/eyQiYdDD Thank you to all our contributors and their teams whose work made this possible:   - Black Creek Community Health Centre - Blueprint Translational Research Group - CAMH - CHILD-BRIGHT Network - Chronic Pain Network - Collaborative Learning College at CAMH - INFORM RARE - INSPIRE-PHC - McGill University - McMaster Collaborative for Health and Aging - Ontario Brain Institute  - PERC (Patient Expertise in Research Collaboration) - Public and Patient Engagement Collaborative, McMaster University #PublicEngagement #PatientEngagement #EngagementEvaluation #EvaluationInPractice #LivedExperience #InclusiveResearch #HealthCommunication #HealthSystemTransformation

It's a privilege to have been able to contribute to Black Creek Community Health Centre's work featured in the Casebook of Public and Patient Engagement Evaluation in Health Research, led by Julia Abelson and the Public and Patient Engagement Collaborative at McMaster University. I'm extremely grateful to my co-authors Michelle Westin, Fatema Ali, Tamanah Sultani, Dr. Jerome Liu, and Nadine Asmis for approaching the write-up with the same values that guided the work itself: accountability to community, respect for lived experience, and a commitment to health equity. Our entry, Building trust, shaping health: Community-driven research and engagement in the Black Creek community as a model for engagement with African, Caribbean, and Black communities, reflects what's possible when research is not done to communities but with communities. It documents the Insights to Impact engagement series that brought residents, clients, and community ambassadors into the centre of decision-making on research priorities, data use, and culturally safe health initiatives. Explore the Casebook: https://lnkd.in/eyQiYdDD This work is a testament to what trust-building and shared leadership can make possible in communities that have every historical reason to be skeptical of research. The expertise of the Black Creek Community Health Centre's Community Ambassadors in particular shaped both the how and the why of this work. Their leadership and the support of the Health Promotion and other interdisciplinary teams challenged us to ensure research is accountable, culturally responsive, and directly tied to the wellbeing of ACB communities. Also, deep gratitude to Julia Abelson and the team for creating a space where it was possible to highlight why community engagement should be treated not as an afterthought but as a standard for excellence in health research. The casebook raises the bar for what ethical, equity-oriented research has to look like going forward.

Great to see the collective efforts of so many realized in our newly released engagement evaluation resource from the Public and Patient Engagement Collaborative (PPEC)! Casebook contributors have shared practical, experience-based knowledge generated from a diverse mix of evaluation initiatives, highlighting the tools and methods used, along with key lessons and recommendations for implementing evaluation with an impact focus.   Evaluation is critical to understanding how engagement is making a difference, which approaches work best, and how they need to be adapted. In pursuing these goals, it also demonstrates a commitment to the people who are offering their time, wisdom and experiences, which contributes to building a culture of engagement across teams and organizations. A big thank you to the case study authors and the PPEC casebook team for making this happen!

A new study reveals what the NHS can learn from private sector research delivery organisations. The research, supported by the NIHR (National Institute for Health and Care Research) Mental Health Translational Research Collaboration Mission and NIHR Manchester Biomedical Research Centre (BRC) identifies faster study set-up times, a more flexible recruitment process and greater focus on participant experience as some practices the NHS could adopt to enhance research delivery. Lead author Dr Aiste Adomaviciene said: "By adopting best practices from private research delivery organisations, the NHS can improve the speed, efficiency, and inclusivity of its research, ultimately benefiting patients and the wider public.” Read more on our website: https://lnkd.in/ebyV8EbN Vaibhav A. Narayan Shruti Garg Dr Julie Bieles Husseini Manji, MD, FRCPC Bert Hartog

Penn State College of Medicine awarded $3.3 million NIH grant to lead national preventive research hub Researchers at Penn State College of Medicine have been awarded a $3.3 million, two-year grant from the The National Institutes of Health to establish a national Coordinating Center for preventive health research. Led by Vernon Chinchilli, PhD, distinguished professor of public health sciences, and Jennifer Kraschnewski, MD, MPH,, professor of public health sciences and director of Penn State Clinical and Translational Science Institute, the new Coordinating Center will bring together research teams across the country to address the social and structural drivers of health. The Center will harmonize data, foster collaboration and support large-scale preventive interventions designed to reduce health disparities. ➡️ Read more: https://bit.ly/435IRLC

HERE'S YOUR WEEKEND READING: Casebook of Public and Patient Engagement Evaluation in Health Research, Health Systems, and Policy. This open-access collection features 10 case studies from across Canada exploring how organizations and teams are evaluating and learning from their engagement work. Together, these cases showcase a growing field of practice that connects evaluation, learning, and impact in diverse sectors, patient populations, and communities, including: - Mental health - Brain and neurodevelopmental research - Preclinical stroke studies - Pediatric rare disease research - Aging populations - Chronic pain research - Primary care data communication - Research priorities for African, Caribbean, and Black communities These cases illustrate the evolving practice of evaluating engagement, highlighting what works, where the challenges lie, and how to adapt along the way. Explore the Casebook: https://lnkd.in/eyQiYdDD Contributors to this work which included Patient Partners as co-authors: - Black Creek Community Health Centre - Blueprint Translational Research Group - CAMH - CHILD-BRIGHT Network - Chronic Pain Network - Collaborative Learning College at CAMH - INFORM RARE - INSPIRE-PHC - McGill University - McMaster Collaborative for Health and Aging - Ontario Brain Institute - PERC (Patient Expertise in Research Collaboration) - Public and Patient Engagement Collaborative, McMaster University #PublicEngagement #PatientEngagement #EngagementEvaluation #Evaluation #PatientPartner #PPI SPOR Evidence Alliance. Alberta SPOR Canadian Institutes of Health Research | Instituts de recherche en santé du Canada Ontario SPOR SUPPORT Unit (OSSU) Diabetes Action Canada | CIHR SPOR Network IMAGINE SPOR Network BC SUPPORT Unit Maritime SPOR SUPPORT Unit Saskatchewan Centre for Patient-Oriented Research (SCPOR) Centre of Excellence on Partnership with Patients and the Public

Chris and Paul have led groundbreaking research across Canada focused on improving clinical flow, leveraging artificial intelligence, and addressing clinician burnout. Their innovative work bridges technology and human-centered care to enhance efficiency and well-being in Emergency Medicine. Recently, they were awarded a major grant to expand this research, with a special focus on supporting rural Emergency Departments. Their mission is to develop sustainable, data-driven strategies that empower healthcare teams, improve patient outcomes, and strengthen emergency care in underserved communities. https://lnkd.in/gmy29uBA

Another outstanding publication from one of our researchers! We are proud to announce that Roshni has published a significant paper titled “Exploring Organizational Barriers and Strategies for Hepatitis C Health Care Among Medically-Underserved Populations in Arizona: A Qualitative Study,” in the World Journal of Biology and Pharmaceutical Health Sciences. Roshni's research is critical, identifying key themes and sub-themes related to Hepatitis C outreach for at-risk populations. Her findings address challenges in healthcare access, cultural perceptions, patient mistrust, and organizational strategies, offering insights that can inform community-based organizations seeking to address diverse health challenges. This publication is a testament to Roshni's dedication and the impactful research she is driving. Congratulations to Roshni on this remarkable achievement! 🎉 We are proud to celebrate her important contribution to global health, public health research, and community care. Read the full paper here: https://lnkd.in/e9N_7yAK #Publication #ResearchAchievement #PublicHealth #HepatitisC #HealthcareAccess #IRINC #GlobalHealth

This morning I came across an interesting Nature article highlighting the extremely competitive landscape of research funding in Europe and the ripple effects being felt across the research community. Success rates are at an all-time low and so is motivation particularly among early-career academics. One quote resonated with me: “It’s mostly out of your control. And I think that’s sometimes difficult to grapple with in terms of keeping the motivation going.” This challenge is also evident in Australian public health and prevention research, where disproportionate funding and low success rates create significant opportunity costs. Early- to mid-career researchers (EMCRs) in prevention report facing increasing pressures that threaten their well being and the long-term sustainability of Australia’s prevention research workforce. Its important we recognise that research expertise and PhD qualifications are needed and valued beyond academia as well. That’s why I’m proud to work at The Australian Prevention Partnership Centre, where we continue to champion and support systems level prevention research and advocate for stronger accountability and transparency in funding. We recently submitted a response to the draft National Health and Medical Research Strategy consultation emphasising these very priorities (see post below). For those interested, you can read the Nature article here: https://lnkd.in/gaDQfzWH

‘It is well established that the costs of care generally increase at the end of life, with much of that due to hospital care. 🏥 Some query how much of this care really benefits patients. And most people, if asked, say they would prefer to die at home rather than in hospital. However, 💬  ‘Would you prefer to die at home or in hospital?’ is a simple question that does not allow for differences in circumstances, or the complexities that go with late stage care.” This blog written by Jane Hall, Patricia Kenny, and Deborah Street from Centre for Health Economics Research and Evaluation at the INSIGHT UTS Research Institute for Innovative Solutions for Wellbeing and Health, University of Technology Sydney explores how the general population values different aspects of end-of-life care. It focuses on the trade-offs between survival time and quality of life, using scenarios of three cancer patients with varying treatments and outcomes to analyse respondents’ preferences. 💜 Read here 🔗https://lnkd.in/gMMCHXiq #CareSearch #PalliativeCare #EndOfLifeCare #QualityOfLife #AgedCare #CareDecisions #EvidenceBasedPractice #HealthResearch #SurvivalTime