CES Using ToC PDF
CES Using ToC PDF
Contents
Introduction
This guide
Who this guide is for
The language used in this guide
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Further information
Further reading and references
Other publications from Charities Evaluation Services
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Glossary
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Introduction
This guide
This guide is an introduction to the theory of change approach to planning,
monitoring and evaluation. It explains what it is, why to use it and how to use it. It will
help you:
understand what the theory of change is
see how it fits with other models of planning and evaluation
decide whether it is the right model for your organisation
develop your own theory of change.
Chapter 1 provides an overview of the theory of change approach and Chapter 2
explains more about how the approach is used. Chapter 3 is the core chapter: we
take you in greater detail through the several steps of developing a theory of change,
and discuss what you will need to include in it to make it most useful. Chapter 4
describes how a theory of change can serve as a dynamic and comprehensive
framework for evaluating projects and programmes.
The guide illustrates the text by building a theory of change step-by-step for a
fictitious project working with unemployed young people. We also provide links to a
real-life example of theory of change developed by TB Alert and to a case example of
an evaluation using the approach by the Chinese National Healthy Living Centre.
The guide also provides suggestions for further reading and a glossary.
Who this guide is for
Making Connections is aimed at voluntary or community sector organisations wanting
to bring about change whether at an individual, organisation, community or policy
level.
The language used in this guide
Long-term aim is used to mean the overall aim of your project or organisation. For
some organisations this may equate to a mission statement.
Specific aims are broad areas of change that you hope will bring about the longterm aim.
Outcomes are the specific changes, benefits, learning or other effects that happen
as a direct result of your activities or services.
Outputs are all the detailed activities, services and products you do or produce.
Stakeholders are the people or groups who are affected by or who can affect the
activities of an organisation, including users.
Pathways of change show both the links between the specified outcomes and the
links between different outputs and outcomes.
Assumptions refer to the underlying conditions or resources that need to exist for
planned change to occur.
For realistic evaluation, see Pawson, R and Tilley, N (1997) Realistic Evaluation, Sage Publications,
London. In the US, the theory of change approach (ToC) was developed by the Aspen Institute
(Fulbright-Anderson, Kubisch, and Connell, 1998).
In the diagram above, the arrows between outcomes show the direction of change.
However, the theory of change is mapped backwards.
Once the longer-term aim and the desired outcomes are clear, you can agree the
activities and outputs that will achieve change.
As you start thinking through the activities and outputs necessary to deliver the
results, you may identify other groups that you will need to work with to achieve the
desired outcomes, and your model will become more detailed as these preconditions
for change are added. This is shown in Diagram 2 on page 4.
In order to be really useful as a planning tool and evaluation model, the theory of
change will also identify:
the assumptions that are being made. These could be about the effectiveness of
specific models of service delivery, or about the context in which you are working.
the collaboration or points of contact you will need with other agencies
the timelines attached to your activities, delivery of outputs and different levels of
change.
a clear and testable theory about how change will occur, which can give you a
framework for monitoring and evaluation, and provide the basis for both
accountability and learning
a visual representation of the change you want to see and how you expect it to
come about
a blueprint for evaluation with measurable indicators of success identified
an agreement among stakeholders about what defines success and what it
takes to get there
a powerful communication tool to capture the complexity of your initiative. 3
Chapter 2 discusses in greater detail how you can use a theory of change.
ActKnowledge is developing an online tool that will help organisations build theory of change models.
Source: http://www.theoryofchange.org/background/benefits.html
A theory of change will also give you a detailed picture of the steps needed to
achieve an aim and to identify what services to design or outputs to deliver, when,
and to whom, and what resources you will need. This will provide a sound basis for
writing a business plan or producing a detailed action plan about how you are going
to deliver your work.
Using a theory of change for planning a campaign
Campaigning organisations are generally clear on their strategies, tactics and their
long-term aims. These long-term aims are often expressed as policy changes,
environmental conditions or changes in the wellbeing or quality of life for specific
groups of people. Meaningful evaluation of campaigning work requires definition of
what happens between the implementation of strategies and the ultimate long-term
outcomes or impact.
In order to achieve a policy change or set an agenda, organisations may identify a
number of strategies including campaigns, collaborations, public awareness efforts,
community mobilisation efforts and so on.
Through a theory of change, campaigns can plot the different arenas of change that
they want to alter, and how they relate to each other:
Strengthened organisational capacity: skills, staffing and leadership
Strengthened alliances: level of coordination, collaboration and mission
alignment
Strengthened base of support: the grassroots, leadership and institutional
relationships and alliances
Improved policy: stages of policy change in the public policy arena, including
adoption, implementation and funding
Shift in social norms: the knowledge, attitude, values and behaviours
Changes in impact: the ultimate changes in social and physical lives and
conditions. Impact is affected not just by policy change, but by other strategies,
such as community support and changes to behaviours.
Adapted from Organizational Research Services for the Annie E. Casey Foundation (2009) Getting
Started: A Self-Directed Guide to Outcome Map Development Exercise, Seattle.
Developing learning
A theory of change can provide a framework against which you can analyse your
projects progress and its unfolding effects. Your theory will identify specific aspects
of your work, allowing research questions to be developed around them; these will
provide the basis for an evaluation. When you evaluate, it will allow you to question
what it is about a specific project or intervention or way of working that causes or
triggers change for individuals, for organisations or for policy change. It can also
question what other sets of conditions or circumstances, apart from project activities,
will be necessary for desired outcomes to occur.
Whether the evaluation is carried out internally or externally, if project personnel are
involved in establishing a theory of change, it can encourage a greater culture of
analysis and learning within the organisation.
Chapter 4 discusses using a theory of change for evaluation in greater detail.
Improving communication
Once you have established a well-thought through process and have identified the
journey of change, you will be better equipped to make your case with funders for
investing in your initiative, and will have the basis for sharing a common language
and understanding.
An evaluation framed around a theory of change will provide a powerful tool for
influencing policy makers and to help contribute to further debate about good
practice.
The time you invest in developing your theory of change will depend in some
respects on the complexity of your project or programme. The process can be quite
time-consuming, potentially involving research into similar initiatives to help you
develop your theory, and bringing together a group of people with insight into your
work. Above all, it will require commitment and an organisational culture that values
learning and allows time for it. Chapter 3 describes this process through a series of
five key steps.
Why do you want to develop a theory of change? Who will the target audience
be? How you will use it?
What will be the scope of your theory of change? Will it be a simple change model
or a more detailed, complex one?
How much time can your organisation commit to the process, including adequate
time to consult with your stakeholders?
Who will lead the work (a lead person or team with adequate support)?
Do you have adequate skills in house, or do you need an external consultant to
work with you to facilitate the process and provide technical support?
How will your stakeholders be involved? You will need to clarify what is expected
of them, how long the process will last, and how you will use any information
gathered.
Your theory of change is likely to include a map, or series of maps, of your aims,
outcomes and the activities and outputs that you believe will lead to your long-term
aim. This may be accompanied by a list of assumptions and a narrative
demonstrating the linkages between different elements of the model.
What are the steps?
Your process will depend to a certain extent on whether you develop a theory of
change when you are planning your project or programme, or whether you are
developing it retrospectively for evaluation purposes. You should also be guided by
your available resources and what is realistic in terms of the change you are aiming
to achieve.
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As you move along these steps, you will need to clarify and make explicit the
assumptions that lie behind your theory. This is discussed further on page 20.
Some outcomes may be outside the direct influence of any one organisation, or any
one intervention. Once this question is thought through, you might suggest ways of
working together with other agencies that can influence those changes that will be
important to the achievement of your targeted outcomes.
Change frameworks usually go through many revisions. Outcomes may be added,
moved and deleted until a map emerges that tells a story the group can agree on.
This discussion is an important part of the process.
Step 1: Identifying the problem
Your starting point is an analysis of the problem you are trying to address and its
underlying causes. You can do this by:
consulting with your users for example, by holding focus groups or sending out
a survey
drawing from your own previous experience and that of your stakeholders.
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It is important to identify the causes of the problem, as this will suggest the step-bystep changes that you want to see. For example, if one element of the problem of
youth unemployment is that young people become discouraged and de-motivated by
their experience of looking for work, your theory may suggest developing a stronger
sense of their potential place in a working environment; in order to do that young
people should gain some experience of work placements.
Step 2: Agreeing your aims
Agreeing your long-term aim
The main problem you are addressing should be mirrored in its ultimate resolution
your long-term aim. This long-term aim is the starting point for your theory of change.
Summarise your long-term aim in a clear statement. This should describe the broad
difference you want to make. In our illustration project, where the problem is youth
unemployment: Our long-term aim is to reduce youth unemployment in the
local area.
You may also want to think about how your long-term aim fits in with local strategic
priorities or funding programmes, so that you can place your work in a wider context.
This may involve looking for relevant research or identifying connections between
your work and those broader priorities.
There is more about developing aims in CES publication, First Steps in Monitoring
and Evaluation.
At this stage, you are likely to have a start point (the problem and identified needs)
and an end point (long-term outcomes), and some general ideas about the sort of
activities the project might carry out. This is illustrated in Diagram 4.
Diagram 4: First steps in a theory of change
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Your theory will show how each of your specific aims links with your long-term aim
and how the project can contribute to, if not achieve, long-term outcomes.
Identifying specific aims
In order to achieve our long-term aim, we will need to:
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Some of the young people will need to improve basic skills such as literacy,
numeracy and IT skills.
Once you have identified outcomes, you can start to work out the order in which they
will need to occur. For each outcome you should think: What change will be needed
before this can happen? How does this outcome relate to other changes? These
links between different outcomes are the pathways of change.
A pathway of change
Before young people are ready to gain experience in the workplace, they will need to
have an understanding of how to behave in the workplace and to have developed
appropriate skills. Some young people will also need to have improved their basic
skills.
Change may be complex; outcomes may occur independently of each other or they
may be linked. As you chart this, try to show these relationships. The flowchart in
Diagram 5 (on page 16) illustrates how you might do this.
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Your outcome map will show the pathways; it may be a visual diagram that depicts
relationships between initiatives and intended results. These outcomes may reflect
changes at different levels:
individual
family
community
organisations
policy.
Changes usually start at the level of the individual and if this foundation is not put in
place, long-lasting change is unlikely to happen. For example:
Diagram 5 on the next page shows outcome mapping at the level of the young
people in the illustration employment project.
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Remember that some outputs will involve collaboration with other agencies, and
some outcomes may only be achieved if other services are also involved in some
way, so these contact points or joint activities will need to be charted as part of your
theory.
Diagram 6 on the next page shows how outputs can be added to your flowchart at
relevant points, linking to the outcomes that they will produce.
If you are creating a theory of change for an existing project, as you plot your existing
activities and outputs, this may lead to some discussion about how well outputs are
delivering your anticipated outcomes, and it may lead in turn to some revision of what
you do, and how you do it.
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Output indicators help you to assess the delivery of your services and outputs,
for example, the number of workshops you deliver.
Process indicators help you to assess how you are implementing your work, for
example, how well you collaborated with partners.
Outcome indicators help you to assess progress towards achieving your aims,
for example, the number of people who increase their skills or knowledge.
Defining indicators
Our indicators will include:
You may want to think about specifying targets relating to your outputs indicators,
that is, the level that you consider necessary as the precondition for achieving the
next level of change.
Specifying output targets needed for change
For young people to be in a position to gain from their work experience, they will
need to attend at least three of the introductory workshops we run.
You may also want to set targets related to your outcome indicators, such as the
number of young people attending interviews, gaining jobs, and numbers remaining
in permanent employment.
For more information on developing and using indicators, see Keeping on Track: A
Guide to Setting and Using Indicators, available from CES.
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Clarifying assumptions
As you go through the process of defining your long-term aim and specific aims, you
will find that you have made a series of assumptions about these and about your
projects potential to achieve its specified outcomes.
Discussing what needs to be in place in order for your long-term and specific aims to
be achievable is an important aspect of developing your theory of change.
Recognising these assumptions will help you identify some of the critical factors that
will affect the success of your work. It will also help you to shape how you deliver
your services. You will want to test out the assumptions when you evaluate your
work, so it is important to document them.
There are different categories of assumption; the important ones are likely to be
about the following:
The target group of young people will respond to outreach and engage with the
project.
When you are developing the first elements of your theory and putting forward
assumptions, it may be useful to base these on the literature, existing practice or
expert knowledge. On the other hand, you may be testing a completely new way of
doing something and this should be clear in your theory.
Establishing timelines
As your theory of change takes shape, you will be thinking about when your various
activities and outputs will come on stream, and when intermediate and longer-term
outcomes are likely to happen. It is important to write in these timelines. This should
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shape expectations of what can be monitored and when, and will help in planning
review and evaluation timetables.
Planning resources
If you think through the activities associated with the delivery of your outputs, this will
help you to plan the resources you will need and to set a budget for the intervention.
Remember to bring to the surface assumptions about the amount of staff and
volunteer time that will be needed or about the level of skills that will be necessary
and available to you. When you evaluate, one question to consider may be whether
appropriate resources were planned and delivered.
Getting ready to use your theory of change
As you develop your theory of change, you may revise it many times testing out
your assumptions and adding, moving or deleting outcomes - until you have a theory
that everyone agrees with. The discussions involved in this are crucial as they help
people to be really clear about what they are trying to do and why.
Your theory of change may now be presented in a chart, a set of tables or a spiders
web or starburst. It will be helpful to write the theory as a narrative as well. This will
mean drawing out the connections and assumptions contained in your visual
representation and expressing your theory in normal language.
A narrative might include:
intermediate outcomes: how these outcomes are important for themselves and
how they contribute to the ultimate impact
assumptions and justifications: the facts or reasons behind the features of the
initiative
the collaboration or points of contact you will need with other agencies
the timelines attached to your activities, delivery of outputs and different levels of
change: the initiatives activities and programmes. 4
Adapted from ActKnowledge and the Aspen Institute Roundtable on Community Change (2003)
Theory of Change: Guided Example: Project Superwoman
(http://www.theoryofchange.org/pdf/Superwomen_Example.pdf)
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The timelines you established when planning will be important and indicate when to
expect change to occur and when to monitor it. Some outcomes may occur quite
early on, while others may take several years. You can use the theory of change as a
basis for setting out a monitoring and evaluation framework, which will provide a plan
of action for your self-evaluation, and will also indicate when you might have an
external evaluation carried out; it will also provide the starting point for briefing your
evaluators.
There is more guidance on collecting outcomes data in the CES publication
Assessing Change: Developing and Using Outcomes Monitoring Tools.
Evaluating your theory of change
Ideally, you should plan some level of evaluation early on, rather than leaving it to the
end of the project, so that lessons can be fed back into your project or programme
delivery. 5
Your central evaluation questions are likely to include the following:
The theory of change will be constructed around a central proposition. When you
bring your data together and evaluate, above all, this is what you will be testing, as
well as the associated assumptions that you made, assessing whether your theory
has been confirmed or how it might be reformulated.
This is called formative evaluation, where evaluation findings are used for management purposes
to improve delivery or review expectations.
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The central theory (or proposition) for our project working with unemployed young
people (described in Chapter 3) is shown in the box below.
Clarifying the central theory
Sustainable jobs are potentially available locally. The conditions for challenging youth
unemployment in the area can be created by developing new opportunities for young
people without jobs. Those opportunities can be stimulated by engaging local
employers in building confidence and job-related skills in young people. Young
people learn new skills most readily in a supportive, one-to-one mentoring and
coaching environment, and confidence is likely to be built with both peer and family
support.
Sometimes the theory revolves around quite specific approaches to social change.
We can take an example of a different sort of social action to illustrate this. One
project approach to resolving tensions and conflict in a community might be to use
mediation processes, focusing on specific problems and events, and seeking
agreement around changed behaviours. An alternative approach might be to build
mutual understanding of differences and cooperation through more self-directed
community conversations. These imply different theories about how change
happens, which an evaluation might test.
Testing against your central theory will involve collecting data against output and
outcome indicators in order to check whether things happened as planned and
whether expected change took place. This is illustrated in the following example of
evaluation questions for the youth unemployment project.
Testing against the central theory
How many young people found work?
How confident did they feel?
How well did they accommodate to the workplace?
What skills and experience had they developed?
How work ready did their employers think they were?
Was there anything else they needed to help them become more work ready?
Did the jobs available meet the expectations of young people?
When you collect your data, your methods should allow you to get both quantitative
and qualitative data. They should also permit you to explore things that happened
and outcomes that you had not expected or planned.
This testing will also mean evaluating the processes involved in implementing the
project and the assumptions you made about links between outputs and outcomes.
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The Chinese National Healthy Living Centre: Using a theory of change for
evaluation
The Kings Fund, in its Partners for Health programme, 2005-2010, developed an
approach founded in realistic evaluation. The programme put considerable resources
into training organisations in evaluation through a two-day workshop during the
application process, emphasising the importance of establishing research questions
and identifying user pathways towards outcomes. Funded organisations were
encouraged to collect information about context as well as outcomes, so that
evidence could be used by other health providers.
The Chinese National Healthy Living Centre was funded for three years to provide
mental health advocacy to Chinese users. The Centre developed a theory of change
using three categories:
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outcome data, you may also be able to use statistical analysis and test for the
significance of the perceived results. 6
If your outcomes data is solid, you can also combine using a theory of change with
an approach that assesses social value, such as social return on investment (SROI).
SROI was developed from traditional cost-benefit analysis and from social
accounting. The methodology puts a monetary value on the social and environmental
benefits of an organisation relative to a given amount of investment. An analysis of
inputs, outputs, outcomes and impacts leads to the calculation of a monetary value of
those impacts, and finally to an SROI ratio or rating. For example, an organisation
might have a ratio of 4 of social value created for every 1 spent on its activities.
A number of different models have been used to assess social value, but the SROI
methodology puts stakeholder involvement at its heart, and also acknowledges the
complex interaction between different interventions and contexts in creating
outcomes. Although theory of change focuses on how an intervention works and in
what circumstances and, by contrast, the end point of an SROI is a monetary
calculation, the two approaches can work together.
Developing useful monitoring and evaluation
If you monitor and evaluate your project or programme using a theory of change you
will have a framework against which to gather data and look for explanations for what
occurred as the initiative unfolded. This will help you to be accountable to those who
have invested in your work. It will also allow you to be accountable to other
stakeholders, including those whom the initiative is intended to benefit. Monitoring
and evaluation at specific implementation points will also help you to manage your
work and adjust what you are doing to get the best outcomes.
Incorporating an analysis of process and implementation against your theory of
change blueprint will help you to better interpret your project or programme results.
Voluntary and community organisations are increasingly looking for ways to capture
the value of their work. Understanding how a service or practice model is delivered
and achieves its positive outcomes is essential for its replication; using a theory of
change approach in your planning and evaluation can help this understanding. This
will make your evaluation more useful for others implementing similar initiatives or
developing policy and, more generally, allow you to contribute to a wider body of
knowledge.
These tests can be done with some quantitative data expertise and computer software, such as
SPSS. See for example Bryman, R and Cramer, D (2005) Quantitative Data Analysis for SPSS 12
and 13, Routledge.
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Further information
You can find further information on the theory of change on the following websites:
ActKnowledge: www.actknowledge.org
ActKnowledge has a website (www.theoryofchange.org) devoted to the use and
practice of the theory of change methodology. Theory of Change Online will soon be
available to provide online support for building a theory of change.
The Aspen Institute Roundtable on Community Change: www.aspenroundtable.org
Further reading and references
Author and title
Link
www.ccitoolsforfeds.org/doc/commbuildersapproa
ch.pdf
Fulbright-Anderson, K, Kubisch,
AC and Connell, JP (eds) (1998)
Approaches to Evaluating
Community Initiatives Volume 2:
Theory, Measurement and
Analysis, The Aspen Institute,
Washington DC
http://www.aspeninstitute.org/publications/newapproaches-evaluating-community-initiativesvolume-2-theory-measurement-and-analysi
www.grantcraft.org/dl_pdf/theory_change.pdf
Organizational Research
Services (2004) Theory of
Change: A Practical Tool for
Action, Results and Learning,
prepared for the Annie E. Casey
Foundation
www.organizationalresearch.com/publications/aecf
_theory_of_change_manual.pdf
http://www.uk.sagepub.com/books/Book205276
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Description
Assessing Change:
Developing and Using
Outcomes Monitoring
Tools (2010)
Discussion papers
First Steps in
Monitoring and
Evaluation (2002)
Keeping on Track: A
Guide to Setting and
Using Indicators
(2008)
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Glossary
Term
Description
Assumptions
Backwards mapping
Evaluation
Impact
Indicators
Intervention
Long-term aim
Monitoring
Narrative
Outcomes
Outputs
Pathways of change
Pilot
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Process
Social Return on
Investment (SROI)
Specific aims
Broad areas of change that you hope will bring about your
long-term aim
Stakeholders
Target group
The main group or groups you are working with and the
people your organisation or project is aiming to benefit
User
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Introduction
TB Alert works in the UK and overseas to help fight TB. The UKs Department of
Health has given TB Alert a lead role in raising awareness of TB among primary care
health professionals and at-risk communities.
TB Alert works in the UK by enabling local partnerships between public and third
sector organisations to deliver awareness-raising work. In addition TB Alert has
created 'The Truth About TB' programme (www.thetruthabouttb.org).
TB Alert recognised the need for a structured approach to monitoring and evaluation
in order to provide evidence of outcomes and to demonstrate learning. Programme
staff worked with Charities Evaluation Services (CES) to develop a theory of change
as part of their planning processes and to build self-evaluation capacity. First, a
stakeholder workshop gathered views on programme priorities, outcomes, outputs,
indicators and tools. During a second workshop, a full story map was developed,
which CES was able to use as the basis for developing a full monitoring framework
and information collection tools.
As TB Alert's programme moves out of the pilot phase, the theory of change will be
reviewed and updated. It is a living document that shows both the intended outcomes
and the programme's developing practice.
Using the map
This map shows the story of the programme in its four phases of promotion, induction
and training, local delivery and strategic engagement. Each phase has its own
outputs and outcomes, which can be tested through monitoring and evaluation, so
that the programme's effectiveness can be assessed and demonstrated.
The story is rooted in the needs originally identified by TB Alert, including addressing
low levels of awareness and barriers to accessing health services. TB Alert aspires
for the programme to have long-term positive impact, including reduced TB incidence
and reduced cost to the NHS.
For more information on developing a Theory of Change map, see
www.ces-vol.org.uk/TOC.
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Visual map
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Pre-programme
Promotion
Induction and training
phase
Programme
TSO capacity building
phase
and delivery phase
outcomes
Strategic
engagement between
third and public
sectors
Impact
Post-programme
Need
Pre-programme
Promotion
Programme
phase
TSO capacity building
outcomes
and delivery phase
Impact
Strategic
engagement between
third and public
sectors
Post-programme
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Need
Pre-programme
Promotion
Induction and
training phase
TSO capacity
building and
delivery phase
Strategic
engagement
between third
and public
sectors
Postprogramme
Programme
phase
outcomes
Impact
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37
The evaluator set out her first change theory in the table below:
Contexts
First
generation
settlers
New arrivals
Mechanisms
Lack of English
Overseas
students
Outcomes
38
Improved access
to services
Improved
communication
and
understanding
between clients
and health
professionals
This initial theory of change at the start of the project, showed in the table above, was
expressed in the following:
Mental health advocacy, delivered by a Chinese advocate with Mandarin
and Cantonese language skills, to first generation settlers, new arrivals
and students, will improve access to services, and communication and
understanding between clients and health professionals.
She decided to ask these three research questions to understand the project better:
1. What issue does the client want to tackle?
Lucys early assumptions were that clients may not want to admit to having
mental health problems and may concentrate on physical symptoms. She wanted
to track what they wanted to discuss to see if this happened. She also thought
that each group would have slightly different concerns.
2. Does the advocate support the client in discussing illness with the family or
community?
Family and community are considered very important to this group and there is a
strong notion of face, or what is socially acceptable to the group. Mental illness
carries a great deal of stigma and Lucy thought that families may present a barrier
to clients seeking help. She wanted to find out if the advocate had an educational
role within the wider community and with families to enable clients to gain greater
access to services.
3. What is the kind of cultural explanation done by the advocate in meetings
with the health professional?
Lucy thought that cultural explanation, more than the language skills of the
advocate, may play an important part in the advocates role.
Evaluation methods
There were two components to the evaluation:
1. A quantitative component derived from the case notes kept by the advocate:
number of clients; client demographics; referral routes.
2. A qualitative case-study component consisting of interviews with clients, clients
relatives and care providers to address the research questions posed by the
process evaluation.
Between the start of the project in December 2006 and July 2009 when data was
collated, a total of 40 clients accessed the service. For the qualitative component,
eight client cases were selected and a total of 14 transcripts were analysed, with the
data set consisting of a mixture of interviews with clients, their family members, care
providers and an advocate account.
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Evaluation findings
Did the project meet its intended outcomes?
Overall, the project was highly successful in providing effective, culturally-sensitive
support to its users. 8 The intended outcomes were:
The findings demonstrated a clear role for the Chinese mental health advocate in
improving communication and understanding between health professionals and
patients not only in providing linguistic and cultural support during meetings but
also in providing an independent, external link through which information could be
passed in both directions. Contrary to the conventional role of an advocate in working
on behalf of a single client, the advocate on many occasions was also advocating for
service providers, for example, in reinforcing their messages.
The project also achieved the second outcome of improving access to services.
Through the provision of an advocate of the same cultural and linguistic background,
the project hoped to break down any barriers to mainstream services that might be
perceived by the Chinese community. Indicators for this might be:
In the first eight months, only 9 per cent of referrals were made by family or clients
themselves. This increased to 60 per cent and 69 per cent in the second and third
quarters of the project, perhaps suggesting that members of the community were
more willing to seek help, although the increase might also be attributed to increased
awareness of the service.
Family or self-referrals were mainly associated with less severe illness and emotional
problems. In these cases, the advocate accompanied clients to GPs and made
referrals to mental health services and the CNHLCs Chinese-speaking counselling
service.
All referrals made to the project by statutory services were for clients with severe
diagnoses. In these cases, the advocate improved patient compliance and
engagement with mental health services.
For service providers, language support was also highly valued but the advocate
added an additional dimension to the role of the interpreter, providing an independent
The term user here refers to both the statutory service providers and clients who accessed the
project.
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voice. Service providers often found it difficult to engage with Chinese patients and in
these circumstances, the advocate was often working to support the provider. The
advocate also acted as a link person, relaying client past history and cultural contexts
to the provider and relevant information to the client.
Research question 1: What issues did clients want to tackle?
The evaluation revealed differences between the issues that clients in the first
generation and new migrant groups faced. For new migrants, practical issues such
as immigration and welfare and language issues were the primary concerns. For first
generation settlers, these were also issues but the range of issues was much
broader. The differences were not clear cut, but were likely to be associated with
length of residence in the UK, circumstances of the migration (with new migrants
tending to have migrated under irregular circumstances), immigration status and
diagnosis.
For some clients, the benefits of having an advocate were not initially recognised,
and they appreciated only the language support provided. The continuity provided by
the advocate became valued as the advocate-client relationship progressed and in
some cases clients also developed emotional dependence on the advocate.
In the original CMO configurations, isolation from family was a characteristic of the
new migrant group and this was borne out in the project findings. Social isolation and
lack of support from friends and family was a significant issue among new migrants.
The advocates input was crucial in enabling engagement with mental health services
and supporting the basic health and welfare needs of this group. However, the
broader support needs of this group were not met.
The evaluation also found that clients who self-referred or were referred by family
expressed their difficulties in psychological or emotional terms (rather than focusing
purely on physical symptoms). The majority of clients who had clinical diagnoses
accepted their diagnosis.
Research question 2: Did the advocate support the client in discussing illness with
the family or community?
In posing this question, assumptions were made about the stigma of mental illness
and its impact on the clients relationship with family members and friends within the
context of strong family identity and values.
It has been suggested that the close-knit family structure of the Chinese community
offers protection against mental ill health. While the findings of this project neither
support nor refute this hypothesis, they show that the family situation and cultural
influences sometimes contribute to mental illness. In these cases, the cultural identity
of the advocate was an important asset in the mediatory role of the advocate, both
between client and family, and between health professionals and family.
Stigma associated with mental illness was not captured in the evaluation. Clients who
approached the project themselves or who were referred by family were more likely
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However, the cultural input of the advocate during meetings was less obvious. The
advocate felt that the process of interpretation itself often went beyond the linguistic
and carried cultural nuances that were difficult to capture.
For clients, there was not an explicit need for cultural explanation but the cultural
identity of the advocate was a crucial factor in enabling them to access the service.
Based on the findings, the conjectured CMO configurations proposed at the start of
the project were revised and show the mechanisms and outcomes of the advocacy
process for each client group. CMO configurations for health and social care
professionals were also created based on the findings.
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Contexts
Mechanisms
Outcomes
Improved access
to services
Improved
communication
and
understanding
between clients
and health
professionals
New
arrivals
Service provider
referral
Language skills
and practical
support for the
client
Language and
advocacy skills to
engage clients
Improved
compliance and
better
engagement with
services
Improved
communication
and
understanding
between clients
and health
professionals
Overseas
students
Improved
communication
and
understanding
between clients
and health
professionals
First
generation
settlers
Cultural identity
and language skills
of advocate
Cultural
explanation for
professionals and
language support
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Contexts
Mechanisms
Outcomes
Cultural explanation
Improved quality of
interpretation
Continuity
Befriending
Greater understanding
of user
Greater confidence in
their impact on user
Interpretation
Continuity
Befriending
Greater understanding
of user
Greater confidence in
ability to improve the
users situation
____________________________________
Extracted with permission from the final report to the Kings Fund: Evaluation of a Chinese
Mental Health Advocacy and Support Project, November 2009, by Lucy Tran.
http://www.kingsfund.org.uk/current_projects/partners_for_health_in_london/case_studies/ch
inese_national.html
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