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Well-Being of Siblings of Children With Disabilities PDF

This document discusses a study on the well-being of siblings of children with disabilities in Puducherry District, India. It provides context on defining well-being and the need for research on siblings. The study will examine how understanding of the disability, sibling relationship, social attitudes, age-spacing, gender, and birth order impact sibling well-being. The researcher notes the sibling relationship is long-lasting and influential but under-researched, especially for siblings of those with disabilities. Previous work found positive sibling ties can predict psychological well-being.

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234 views8 pages

Well-Being of Siblings of Children With Disabilities PDF

This document discusses a study on the well-being of siblings of children with disabilities in Puducherry District, India. It provides context on defining well-being and the need for research on siblings. The study will examine how understanding of the disability, sibling relationship, social attitudes, age-spacing, gender, and birth order impact sibling well-being. The researcher notes the sibling relationship is long-lasting and influential but under-researched, especially for siblings of those with disabilities. Previous work found positive sibling ties can predict psychological well-being.

Uploaded by

madhusudanan18
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© © All Rights Reserved
We take content rights seriously. If you suspect this is your content, claim it here.
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Well-being of Siblings of Children with

Disabilities: A Study in Puducherry District

Madhusudanan.S
Ph.D. Research Scholar (UGC- SRF)
Department of Social Work
Pondicherry Central University
Puducherry- 605014
[email protected]
Well-being
• childhood wellbeing is multi-dimensional, should include dimensions of physical,
emotional and social wellbeing (Statham & Chase, 2010)

• “A state of happiness and contentment, with low levels of distress, overall good physical
and mental health and outlook, or good quality of life” (VandenBos, 2015)

• “A complex, multi-faceted construct that has continued to elude researchers” (Pollard &
Lee, 2003)

• The balance point between an individual’s resource pool (psychological, social, physical) & the
challenges faced (Dodge et al, 2012)

27/May/2020 Madhusudanan.S, Ph.D. Scholar, Pondicherry University 2


Need for Sibling Research
• The area of sibling is little researched one (Sanders, 2004)

• Attention to sibling ties can unveil uncovered aspects of everyday intimacy that are little
researched (Edwards et al., 2006)

• Nartey (2013) study found out that positive sibling relationship predicts psychological
well-being

• The negligence of the significance of sibling relationship is seen in the field of disability,
family law, social services and in education settings (Milevsky, 2016).

27/May/2020 Madhusudanan.S, Ph.D. Scholar, Pondicherry University 3


Variables in my Research
• Understanding sibling’s disability

• Sibling relationship

• Social attitude toward disability

• Age-spacing

• Gender

• Birth Order

27/May/2020 Madhusudanan.S, Ph.D. Scholar, Pondicherry University 4


Sibling Relationship
• Long lasting & most influencing relationship

• an emotion-based special relationship

• intense, long term, cyclical and complex

• provide a context for learning social skills

• a continuing relationship from which there is no annulment

• can be studied as a ‘dyad relationship’

27/May/2020 Madhusudanan.S, Ph.D. Scholar, Pondicherry University 5


Nine types of Siblings (Elgar and Head, 1999)
Common Common history, family
Types Common Legal status
genes values and culture

Full siblings brought up together Yes Yes Yes

Full siblings brought up apart/separated during childhood Yes Some Yes

Full siblings, one placed away from another at birth Yes No Yes (unless adopted)

Half-siblings brought up together Some Yes No

Half-siblings brought up apart/separated during childhood Some Some No

Half-siblings, brought
up by one parent - Some No No
never lived with half-siblings

Adopted children No Some Yes

Step-siblings No Some No

Foster children (non-related children) No Some No


27/May/2020 6
My Experience
• Very few special schools maintain a family tree of the children with
disabilities

• Very few NGOs have included siblings in the interventions

• Social and psychological aspects form the dimensions of well-being

• Siblings without disability- invisible population


27/May/2020 Madhusudanan.S, Ph.D. Scholar, Pondicherry University 8

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