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EURORDIS - Rare Diseases Europe

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RareConnect.org webinar How to use Twitter to build your online rare disease presence
byEURORDIS - Rare Diseases Europe
 
RareConnect.org Update 2016
byEURORDIS - Rare Diseases Europe
 
RareConnect.org webinar: How to start an awareness day for your rare disease
byEURORDIS - Rare Diseases Europe
 
Pitt Hopkins syndrome community on RareConnect.org
byEURORDIS - Rare Diseases Europe
 
The Value of Online Communities
byEURORDIS - Rare Diseases Europe
 
Updates to RareConnect.org in 2014
byEURORDIS - Rare Diseases Europe
 
Update on the Mysasthenia Gravis community on RareConnect.org
byEURORDIS - Rare Diseases Europe
 
Surveys and polls: The RareConnect.org Experience
byEURORDIS - Rare Diseases Europe
 
RareConnect.org - Connecting Rare Disease Patients Globally
byEURORDIS - Rare Diseases Europe
 
Rare disease day 2011 highlights
byEURORDIS - Rare Diseases Europe
 
Results of Survey on the role of Patient Groups in Research and their priorities for the future
byEURORDIS - Rare Diseases Europe
 
Results of Survey on the role of Patient Groups in Research and their priorities for the future
byEURORDIS - Rare Diseases Europe
 
Results of a survey on the role of Patient Groups in Research and their priorities for the future
byEURORDIS - Rare Diseases Europe
 
Conference 3 "Outcomes of 15 National Conferences, "
byEURORDIS - Rare Diseases Europe