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![Physical Well Being
“It [cancer] has taken a lot of things away from me. I
used to ski, play golf and tennis, and physically I
also have a bone disorder now because of all the
drugs. And there’s resentment that those things
were taken away from me.”
“I’m so scarred up and everything is out of place.
That is really hard for me to accept.”](https://image.slidesharecdn.com/providencesurvivorshipday-120604134653-phpapp01/75/Cancer-Survivorship-and-Quality-FOR-Life-Shaken-Stirred-and-Movin-On-20-2048.jpg)
Cancer Survivorship and Quality FOR Life: Shaken, Stirred, and Movin' On!
The document discusses cancer survivorship from multiple perspectives, detailing the physical, emotional, social, and spiritual impacts of cancer on individuals. It emphasizes the importance of managing life's quality after a cancer diagnosis and highlights the duality of the cancer experience, which encompasses both challenges and personal growth. Furthermore, it advocates for self-advocacy and community support among survivors, fostering a sense of empowerment and connection.
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Cancer Survivorship and Quality FOR Life: Shaken, Stirred, and Movin' On!
- 1. Brad Zebrack, Ph.D.,MSW University of Michigan School of Social Work
- 2.
- 3. “Life on hold” “It‟s the „good‟ cancer” “I know how you feel.”
- 4. “Victim to Victor” Positive Attitude Be a survivor
- 7.
- 8. Dis-ease vs Illness Cancer as: Bi-ology Path-ology Physi-ology Cancer as an experience of life
- 9.
- 10. Medical Perspective Focus on survival Reduce symptoms Prevent long-term effects Manage symptoms Off-treatment (e.g., 2 yrs, 5 yrs)
- 11. Cancer Survivorship “Seasons ofSurvival” Acute phase Recovery phase Long-term survival Disease-free Cancer as a chronic disease End-of-Life
- 12. Patient Perspective Thenotion of living with, through, or beyond cancer. Susan Leigh Survivorship Consultant 3-time cancer survivor
- 13. Cancer Survivorship 1.5million cases diagnosed each year 12 million cancer survivors in the US 2/3 of all cancer patients expected to live at least five years
- 14. While these statisticsindicate increased length of survival for individuals diagnosed with cancer, they give no indication of the quality of life.
- 16. Life Changes “This is what I picture…this is really weird, I see, like, a grave, and that’s Miki, 21 the person that died, on August 4th. Diagnosed She’s gone. Because you know, my with life had to change, I had cancer and leukemia at age 18 I can’t go back there, I can’t go in the past, so it’s like, she’s gone.”
- 17.
- 18.
- 19. Physical Emotional Well-being Well-being Not quantity but quality Social Spiritual Well-being Well-being
- 20. Physical Well Being “It[cancer] has taken a lot of things away from me. I used to ski, play golf and tennis, and physically I also have a bone disorder now because of all the drugs. And there’s resentment that those things were taken away from me.” “I’m so scarred up and everything is out of place. That is really hard for me to accept.”
- 21. Physical Well-Being BODY CHANGES HEALTH AWARENESS Energy not returned More concerned about my health My body cannot do what it did before More aware of physical problems and changes Feel disfigured Take better care of self Wear clothing to cover up
- 22. Emotional Well-Being POSITIVE FEELINGS NEGATIVE FEELINGS Sense of pride Angry about having cancer Learned something about Feel guilty for being self responsible for getting cancer More confidence Made me feel old Desire to give back to Feel guilty for not having others been available to family
- 23. Emotional Well-Being MEANING OFCANCER SOURCE OF WORRIES The most difficult Worry about my health experience of my life Worry about cancer I wonder why I got cancer coming back or getting another cancer Cancer is reason to make life changes New symptoms make me worry about cancer Gave me direction in life coming back
- 24. Social Well-Being RELATIONSHIPS LIFE INTERFERENCES Higher value on Paying attention to health relationships than interferes with my life before Having had cancer keeps Feel special bond to me from activities I people with cancer enjoy Cancer-related symptoms interfere with my life
- 25. Spiritual Well-Being POSITIVE OUTLOOK NEGATIVE OUTLOOK Realize time is precious Feel unsure about my future Strengthened religious faith or sense of Worry about my future spirituality Afraid to die Learned something about life Feel like time in my life is running out
- 26. Two Faces ofthe Cancer Experience Haase & Rostad, 1994
- 27.
- 28. A LONG TERMSURVIVOR “While the cancer is not something I would want to do again it is not something I would want to erase from my life. It has taken some stuff away, but what it has added has completely overcome anything that might have been taken away.” 28
- 29. Thriving “Those who thriveafter cancer are able to put life and death into perspective and consequently create a special niche for their cancer experience within their personal life history.” Susan Leigh 3-time cancer survivor Co-founder, National Coalition for Cancer Survivorship
- 30. Wei-ji CRISIS= Danger + Opportunit
- 31. EMERGENT THEMES OFGROWTH/THRIVING (Their stories) Greater strength, via recognition of vulnerability and struggle “What does not kill us makes us stronger” Greater compassion and empathy Psychological maturity New life priorities and outlooks 31
- 32. STRENGTH Because it’sa strong, long fight, with so many emotions involved, you have to keep a clear head and a good outlook the whole time to be fighting something. I think just that experience alone made me stronger. I definitely felt stronger after having gone through it all. Since I got through this I can get through anything. 32
- 33. GREATER COMPASSION/EMPATHY Ithink overall it made me more appreciative and maybe more sensitive. By sensitive I mean understanding how other people can feel. Because of the fact that I had to deal with having an artificial eye, and people making fun of it, has made me more understanding and accepting of people with disabilities. 33
- 34. PSYCHOLOGICAL MATURITY Cancermade me more mature. It just made me grow up. I had to deal with things that other people didn’t. The experience made me more mature, more than older guys. I’m serious about what I say and do and have no reason to play around. I know I’m mortal, as funny as that sounds. A lot of people are living for the day, which is great, but I don’t know as though they appreciate what they’ve got. 34
- 35. NEW PRIORITIES ANDOPTIMISM Even though cancer was really bad I learned a lot about what’s important in life. Like money’s not important to me anymore. I just want to be happy and have someone to love and love me. I’m going to be a teacher, not a high paying lawyer or something. Materialistic things don’t matter a lot – they’re nice but it’s not the end of the world if you don’t have it. 35
- 36. CANCER IS ADOUBLE-EDGED SWORD Gains and losses Growing up ‘faster” perhaps offset by loss of childhood Hope and fear – anxiety/sadness and appreciation of life Celebrations of cure or going off treatment, but uncertainty Balancing of loss and gain 36
- 37. An active questor journey to make sense of a mystery/challenge Developing a story that makes sense (positive meaning) of the cancer experience Fitting “my/our cancer story” into a larger life story Sharing (and testing and revising) my/our story with supportive communities of family, friends, other survivors, publics 37
- 38. Becoming an Advocate “Knowing as much as possible about your disease, its treatments, and how its potential effects on your body can empower you to take charge of your health and help you make the most of your survivorship.”
- 39. Young Adult SurvivorsConference (YASC)
- 40. Young Adult SurvivorsConference (YASC) Our Goals Their Goals Address survivorship Have fun issues Meet other survivors Provide education and Understand more opportunity to tell about their cancer and one’s story potential late effects Build bridges of Learn about how to support among young “tell my story so that it adult cancer survivors will help others.”
- 41. Advocacy Training Personal Advocacy Self-advocacy: Where it all begins You and Your Doctor Forget about Waldo: Where are those Resources?
- 42. Advocacy Training Mentor Advocacy: Advocating for Others Becoming a Mentor Do’s & Don’t of Public Speaking Establishing and Maintaining Connections: A Gateway to Community-Building
- 43. Advocacy Training Community-National Advocacy Advocating at the State and National Level Getting Involved in Public Policy Networking within the Survivorship Community
- 44. I joined acommunity of survivors and met people I expect will be good friends. I also learned a tremendous amount about advocacy and feel much better equipped to get involved on state and national levels. I have been given the tools to begin to use my experiences to advocate for greater resources, and I expect that will also greatly increase my sense of satisfaction in my life.
- 45. Advocating for Oneself Advocacy gives you some stability and a feeling of regaining some control in your life Advocacy is confidence building in the way it helps you face challenges that seem insurmountable
- 46. Advocating for Oneself Advocacy can improve your quality of life Advocacy for yourself may be the difference that turns feeling hopeless and helpless into feeling hopeful.
- 47. The Cornerstone ofSurvivorship “Regardless of the type of cancer or the extent of survival, all persons diagnosed with cancer must manage the enduring and complex ways in which cancer transforms the self and everyday life.” Betsy Clark, Former President Ellen Stovall, Executive Director National Coalition for Cancer Survivorship
- 48. Shaken-Stirred-Moved On Kid Kancer Kookie Dada