Consumer Health Informatics, Mobile Health, and Social Media for Health: Part 1 (November 10, 2021)

Nawanan Theera-Ampornpunt, M.D., Ph.D.
For Ramathibodi M.S. & Ph.D. Programs in
Data Science for Healthcare and Clinical Informatics
Nov. 10, 2021 SlideShare.net/Nawanan
Except where
citing other works

Stakeholders in Health Care
Patient
Providers
Policy-
Makers
Public
Payers
Diagram modified from Supachai Parchariyanon’s 4Ps Concept
• High bargaining
power
• Benefit with
improved quality in
fee-for-service
• Needs to satisfy many “bosses”
• Faces up-front costs in health IT
investments
• Long-term benefits depend on
payment schemes
• Require data for
policy-making
• Limited budget
• Often face
bureaucracies
• Highly political
• Concerns about resource allocation &
community’s well-being, but not
necessarily individual patients
• Directly benefits from
improved quality of care
• Knowledge gap between
patient & providers

The Intersection
Clinical
Informatics
Public
Health
Informatics
Consumer
Health
Informatics
Patients &
Consumers
Providers &
Patients
Policy-Makers,
Payers, Public
(Also providers)

Public Policy in Informatics: A US’s Case
1991: IOM’s CPR Report published
1996: HIPAA enacted
2000-2001: IOM’s To Err Is Human &
Crossing the Quality Chasm published
2004: George W. Bush’s Executive
Order establishing ONCHIT (ONC)
2009-2010: ARRA/HITECH Act &
“Meaningful use” regulations

Political Support Behind Health IT
“...We will make wider use of electronic records and other
health information technology, to help control costs and
reduce dangerous medical errors.”
Source: Wikisource.org Image Source: Wikipedia.org
President George W. Bush
Sixth State of the Union Address
January 31, 2006
?

U.S. Adoption of Health IT
• U.S. lags behind other Western countries
(Schoen et al, 2006;Jha et al, 2008)
• Money and misalignment of benefits is the
biggest reason
Ambulatory(Hsiao et al, 2009) Hospitals (Jha et al, 2009)
Basic EHRs w/ notes 7.6%
Comprehensive EHRs 1.5%
CPOE 17%

President Obama Backs Health IT
“...Our recovery plan will invest in
electronic health records and new technology
that will reduce errors, bring down costs,
ensure privacy, and save lives.”
President Barack Obama
Address to Joint Session of Congress
February 24, 2009
Source: WhiteHouse.gov

American Recovery & Reinvestment Act
 Contains HITECH Act
(Health Information Technology for
Economic and Clinical Health Act)
 ~ 20 billion dollars for Health IT investments
 Incentives & penalties for providers

U.S. National Leadership
David Blumenthal, MD, MPP
National Coordinator for
Health Information Technology
(2009 - 2011)
Farzad Mostashari, MD, ScM
(2011 - 2013)
Robert Kolodner, MD
(2006 - 2009)
David Brailer, MD, PhD
(2004 - 2007)
Office of the National Coordinator for Health Information
Technology (ONC -- formerly ONCHIT)
Photos courtesy of U.S. Department of Health & Human Services
Karen B. DeSalvo, MD, MPH,
MSc
(2014 - 2016)
Vindell Washington, MD, MHCM
(2016 - 2017)

U.S. National Leadership
Donald Rucker, MD
(2017 - Present)
Jon White, MD
(Interim) (2017 - 2017)
Office of the National Coordinator for Health Information
Technology (ONC -- formerly ONCHIT)
Photos courtesy of U.S. Department of Health & Human Services

What is in HITECH Act?
Blumenthal D. Launching HITECH. N Engl J Med. 2010 Feb 4;362(5):382-5.

“Meaningful Use”
“Meaningful Use”
of a Pumpkin
Pumpkin
Image Source & Idea Courtesy of Pat Wise at HIMSS, Oct. 2009

“Meaningful Use” of Health IT
Stage 1
- Electronic capture of
health information
- Information sharing
- Data reporting
Stage 2
Use of
EHRs to
improve
processes of
care
Stage 3
Use of
EHRs to
improve
outcomes
Better
Health
(Blumenthal D, 2010)

Health Information Exchange (HIE)
Hospital A Hospital B
Clinic C
Government
Lab Patient at Home

Health Information Exchange in the U.S.
 Regional Health Information Organizations
(RHIOs)
 State e-Health initiatives
 Nationwide Health Information Network
(NHIN)
 Still ongoing efforts, but with significant
progress

Other Public Health Informatics Applications
 e-Health & m-Health
 m-Health in disaster management: #ThaiFlood
 Data reporting to government agencies
 Claims & reimbursements
 Diseases
 Utilization statistics
 Quality measures
 etc.
 Biosurveillance (case reporting vs. predictive)
 Epidemiologic & health services research

Google Flu Trends
Source: Google.org/FluTrends

Thailand’s Biosurveillance
Source: www.biophics.org

Consumer Health Informatics (CHI)
 “The field devoted to informatics from a
consumer view.” (Hersh, 2009)

M/B/H Informatics As A Field
(Hersh, 2009)

Examples of Areas within
Consumer Health Informatics
Image Source: http://www.webmd.com/

Image Source: http://www.greatdreams.com/cancer-cure.htm

Image Source: http://www.hon.ch/, http://socialmarketing.blogs.com/r_craiig_lefebvres_social/2007/02/health_literacy.html

Image Source: http://michaelcarusi.com/2012/01/01/when-you-should-not-become-a-social-media-manager/

Image Source: http://ucedtech.wikispaces.com/Welcome

mHealth
http://whqlibdoc.who.int/publications/2011/9789241564250_eng.pdf

Defining mHealth (mobile health)
 WHO: “Medical and public health practice supported by
mobile devices, such as mobile phones, patient monitoring
devices, PDAs, and other wireless devices. mHealth involves
the use and capitalization on a mobile phone’s core utility
of voice and SMS as well as more complex functionalities
and applications including GPRS, 3G & 4G systems, GPS, and
Bluetooth technology.”

mHealth
 Majority of Member States reported offering at
least one type of mHealth service. Many
offered 4-6 programmes. Frequently reported
mHealth initiatives were:
 Health call centres (59%)
 Emergency toll-free telephone services (55%)
 Managing emergencies and disasters (54%)
 Mobile telemedicine (49%)

mHealth
 Barriers to mHealth adoption by
countries
 Competing health system priorities
 Lack of evidence on evaluation
 Results-based evaluation of mHealth
implementations is not routinely
conducted (only 12% of Member
States)
 Data security

Image Source: http://nutrition.about.com/od/recipesmenus/ss/learnlabels.htm

Roles of ICT in Consumer Health Informatics
 Access to information
 Networking opportunities
 Education/Self-study
 Personalization
 Effective & efficient communications
 With providers
 Among patients
 Empowerment
 “User Experience”

Issues in Consumer Health Informatics
 Health literacy & IT literacy
 Cultural diversity & sensitivity
 Usability, information presentation
 Impact of ICT on behavioral modifications
 Integration with provider’s systems
 Information exchange & interoperability
 Business model
 Privacy & security

Personal Health Records (PHRs)
 “An electronic application through which individuals can
access, manage and share their health information, and that
of others for whom they are authorized, in a private, secure,
and confidential environment.” (Markle Foundation, 2003)
 “A PHR includes health information managed by the
individual... This can be contrasted with the clinician’s record
of patient encounter–related information [a paperchart or
EHR], which is managed by the clinician and/or health care
institution.” (Tang et al., 2006)

Types of PHRs
 Patient portal from a provider’s EHRs
(“tethered” PHRs)
 Online PHRs
 Stand-alone
 Can be integrated with EHRs from multiple providers
(unidirectional/bidirectional data sharing)
 Stand-alone PHRs
 PC-based applications
 USB Drive
 CD-ROM or other data storage devices
 Paper

PHRs and Other Systems
(Tang et al., 2006)

Ideal PHRs
 Integrated
 Accessible
 Secure
 Comprehensive
 Accurate & current
 Patient able to
manage sharing &
update information
 Engaging &
educational
 User-friendly,
culturally & literacy
appropriate
The “Hub and Spoke” Model
(Kaelber et al., 2008)

Use Cases of PHRs
 Data entry/update by patients
 Data retrieval by providers
 With patient’s consent
 “Break-the-glass” emergency access
 Data update from EHRs
 Privacy settings
 Personalized patient education
 Communications with providers

Data in PHRs
(Tang et al., 2006)
(Tang et al., 2006)

Other IT for Consumer Health
Traditional Web
 MedlinePlus
 Other sites
Social Media
 The Usuals: MySpace, Facebook, Twitter
 Blogs, forums
 PatientsLikeMe
Telemedicine & Telehealth
 Home monitoring/recording devices
 Tele-consultations, virtual visits
 http://media.nstda.or.th/video/viewVideo.php?video_id=1273

References
 Blumenthal D. Launching HITECH. N Engl J Med. 2010 Feb 4;362(5):382-5.
 Blumenthal D, Tavenner M. The “meaningful use” regulation for electronic health
records. N Engl J Med. 2010 Aug 5;363(6):501-4.
 Connecting for Health. The personal health working group final report. Markle
Foundation; 2003 Jul 1.
 Hsiao C, Beatty PC, Hing ES, Woodwell DA. Electronic medical record/electronic health
record use by office-based physicians: United States, 2008 and preliminary 2009
[Internet]. 2009 [cited 2010 Apr 12]; Available from:
http://www.cdc.gov/nchs/data/hestat/emr_ehr/emr_ehr.pdf
 Jha AK, DesRoches CM, Campbell EG, Donelan K, Rao SR, Ferris TG, Shields A,
Rosenbaum S, Blumenthal D. Use of electronic health records in U.S. hospitals. N Engl
J Med. 2009;360(16):1628-38.
 Kaelber DC, Jha AK, Johnston D, Middleton B, Bates DW. A research agenda for
personal health records (PHRs). J Am Med Inform Assoc. 2008 Nov-Dec;15(6):729-36.
 Schoen C, Osborn R, Huynh PT, Doty M, Puegh J, Zapert K. On the front lines of care:
primary care doctors’ office systems, experiences, and views in seven countries. Health
Aff (Millwood). 2006;25(6):w555-71.
 Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. Personal health records:
definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med
Inform Assoc. 2006 Mar-Apr;13(2):121-6.

Consumer Health Informatics, Mobile Health, and Social Media for Health: Part 1 (November 10, 2021)

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