10/28/25 Prof Muhammad Tauseef Jawaid 2
HEALTH AND DISEASE
HEALTH AND DISEASE
Prof. Dr Muhammad Tauseef
Prof. Dr Muhammad Tauseef
Jawaid
Jawaid
Health and disease
Health and disease –
– two essential categories
two essential categories
of medicine
of medicine
Definition of health
Definition of health
 Health
Health is
is defined as a
defined as a state of optimal physical,
state of optimal physical,
mental, and social well-being
mental, and social well-being and not merely
and not merely
the
the absence of disease
absence of disease and
and infirmity
infirmity
(according to W.H.O.)
(according to W.H.O.)
 Health can be defined as a
Health can be defined as a „
„state
state“
“ of the
of the person
person
who is able to meet the demands placed on
who is able to meet the demands placed on
his/her
his/her body
body and to
and to adapt to these demands or
adapt to these demands or
changes of
changes of the
the external
external environment
environment so
so as
as to
to
maintain reasonable constancy
maintain reasonable constancy of
of the
the internal
internal
environment
environment
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 There
There is
is way of
way of measuring health in a negative
measuring health in a negative
sense.
sense. It is
It is measure
measured
d by
by the
the "5 d
"5 d
s" - death, disease,
s" - death, disease,
discomfort, disability, and dissatisfaction
discomfort, disability, and dissatisfaction.
. If there is
If there is
absence of 5 d
absence of 5 d‚
‚s we can say that person is healthy
s we can say that person is healthy
●
● In health there is freedom. Health is the first of
In health there is freedom. Health is the first of
all liberties
all liberties!
!
●
● Holistic
Holistic view
view to a health
to a health recogni
recogniz
zes the
es the inter
inter
relatedness of the
relatedness of the physical, psychological, emotional,
physical, psychological, emotional,
social, spiritual,
social, spiritual, and environmental factors
and environmental factors that
that
contribute to the overall quality of a person
contribute to the overall quality of a person
s life
s life
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Two aspects of health can be distinguished:
1) Subjective – it is formed by sensations and feelings
of a person, e.g. high working capacity, ability to
overcome problems, optimistic thinking, happiness,
satisfaction...
2) Objective – its basis is formed by objective
parameters obtained by measurement of
strutures and functions of a person
Subjective and objective aspects of a health can differ
e.g. – Man with  systemic BP can feel healthy
Oposite – Man can feel ill despite no measurable changes of
structure and/or functions can be find
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Positive cosequence of WHO definition of health:
– change of health care phylosophy
Classik phylosophy:
Diseased person  doctor  diagnosis  therapy
Modern phylosophy
healthy person
health promotion
health protection
prevention of disease
onset and development
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Two dimensions of health according Nordenfeld (1986)
Scientistic = atomistic-biological dimension of health
- quantitative dimension of life
Non-scientistic = holistic-humanistic view on health
- rather qualitative dimension of life
- seeing health as the totality
seeing health as the totality of a person
of a person
s existence
s existence
Summary: ● health is defined by set of objective, measurable
parameters of structure and functions of the body
● health is defined also by set of subjective
parameters expressed by healthy person
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
 Positive wellness involves:
Positive wellness involves:
1. being free from symptoms of disease and pain
1. being free from symptoms of disease and pain
as much as possible;
as much as possible;
2. being able to be active - able to do what you
2. being able to be active - able to do what you
want
want
and what you
and what you have to do
have to do at the appropriate
at the appropriate
time;
time;
3. being in good spirits most of the time
3. being in good spirits most of the time
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Concept of normalcy
Concept of normalcy
Norm
Norm (normal,
(normal, within the norm) = parameters or values
within the norm) = parameters or values
ranging
ranging from
from -
- to
to of bodily or
of bodily or mental
mental functions or
functions or
quantitative measur
quantitative measure
ements of biological
ments of biological indexes derived
indexes derived
statistically
statistically from
from "healthy
"healthy persons" of the specific
persons" of the specific g
group
roup
(
(hight
hight, body mass, heart
, body mass, heartrate
rate, respiration
, respiration rate
rate,
, blood
blood pressure
pressure,
,
body temperature, etc.)
body temperature, etc.)
Norm
Norm 
 H
Health
ealth; Health
; Health =
=Norm
Norm
Health –
Health – it is more qualitative term
it is more qualitative term
Norm –
Norm – it is more quantitative term
it is more quantitative term
Normal parameter – parameter presents most
Normal parameter – parameter presents most
frequently in healthy population
frequently in healthy population
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Interindividual variability:
– each person has its own profile of structures and
functions, and almost each person is extreme in some
of
sign, and in different one
– in population is created by influence of many factors:
a) internal – mainly genetic
b) external – physical, chemical, biological, social...
– can be one explanation for different level of health in
different people, and different proneness to disease
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Definition
Definitions
s of disease
of disease
 D
Disease
isease can be defined
can be defined as a
as a biosocial phenomenon
biosocial phenomenon
characterized
characterized by
by interactions of pathological
interactions of pathological
processes,
processes, defensive and adaptation processes
defensive and adaptation processes
resulting in
resulting in damage of the organism
damage of the organism as a whole
as a whole,
, in
in
limitation of the organism ability to adapt to
limitation of the organism ability to adapt to
living
living condition.
condition.
 Disease can be defined as a
Disease can be defined as a changes in individuals
changes in individuals
that cause their
that cause their health parameters to fall outside
health parameters to fall outside
the range of
the range of normal
normal
 The term disease means a
The term disease means a deviation from or an
deviation from or an
absence
absence of the normal state
of the normal state
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The essential aspects of disease
The essential aspects of disease
1.
1. disease is a
disease is a new quality of life
new quality of life
Health is a friedom, disease is a prison
Health is a friedom, disease is a prison
2. disease is the
2. disease is the result of one or more causes
result of one or more causes
(noxas) and
(noxas) and suitable conditions
suitable conditions
3. disease is the
3. disease is the unity of damaging, adaptive,
unity of damaging, adaptive,
defensive and compensation mechanisms
defensive and compensation mechanisms
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A picture of diseaase is created by:
– pathologic reactions
– pathologic processes
– pathologic states
Pathologic reaction
- It is the most simple, mainly short-lasting,
quantitativly and/or qualitativly non-adequate
response of organisms to some noxa
Examples: syncopa, short-lasting increase of BP,
tachycardia, bradycardia, vomiting,
diarhoe, hyperventilation ...
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Pathologic process
It is the complex of pathologic and defensive-
- adaptive reactions induced by influence of noxa
on organism
Examples: inflammation, fever, hypoxia, growth
of tumor, edema, acidosis, alkalosis...
Pathologic state
Pathological change which is stabile or it changes
very slowly and in very small range during time period
Examples: congenital valvular heart disease, deafness,
blindness, colour blindness...
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Dynamics of disease
Disease is a definite morbid process h
Disease is a definite morbid process ha
av
ve
ein
ing
g
a characteristic train of symptoms and signs
a characteristic train of symptoms and signs
Dynamics of disease is characterized by
stages of disease:
1st stage:
1st stage: latent – incubation
latent – incubation (in infections diseases
(in infections diseases)
)
Its duration is measured by time passed between
Its duration is measured by time passed between
beginning of noxa influence of body and beginning
beginning of noxa influence of body and beginning
of first non-specific symptoms and signs of disease
of first non-specific symptoms and signs of disease
There are no manifestations of disease during this stage
There are no manifestations of disease during this stage
2nd stage:
2nd stage: prodromal
prodromal
First non-specific symptoms and signs of disease arise
First non-specific symptoms and signs of disease arise
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3rd stage: manifestation of disease
There are specific symptoms and signs characteristic for
specific disease
4th stage: disease outcomes
a) healing and convalescence
b) chronic disease
c) death
Forms of healing:
- restitutio or sanatio ad integrum
- sanatio per compensationem
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Time course of disease
Time course of disease
a)
a) Peracute – onset during few seconds or minutes
Peracute – onset during few seconds or minutes
b)
b) Acute – onset during hours and days, duration up
Acute – onset during hours and days, duration up
to
to
3 weeks
3 weeks
a)
a) Subacute
Subacute –
– duration up to
duration up to 6 weeks
6 weeks
b)
b) Chronic – duration more than 6 weeks
Chronic – duration more than 6 weeks
Exacerbation of disease – usually sudden increse
intensity
of symptoms and signs of
chronic disease
Recidivation of disese – returning of previosly healed
disease
Remision of disease: decrese intensity of simptoms
and signs of disease
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ILLNESS AND DISEASE
ILLNESS AND DISEASE

 It is more important to know
It is more important to know what sort of patient
what sort of patient
has a disease, than what sort of disease a patient has
has a disease, than what sort of disease a patient has

 A person may "feel ill" without a disease being evident or
A person may "feel ill" without a disease being evident or
diagnosed;
diagnosed; likewise, a person may have a disease without
likewise, a person may have a disease without
experiencing any illness or suffering
experiencing any illness or suffering

 Illness
Illness tends to be used to refer to
tends to be used to refer to what is wrong with
what is wrong with
the patient, disease to what is wrong with his body
the patient, disease to what is wrong with his body
●
● Illness
Illness is what the patient suffers from, what troubles
is what the patient suffers from, what troubles
him, what be complains of, and what prompts him to
him, what be complains of, and what prompts him to
seek medical attention
seek medical attention
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●
● When we say "a person is ill " we mean he feels
When we say "a person is ill " we mean he feels
uncomfortable, he is suffering from certain symptoms
uncomfortable, he is suffering from certain symptoms
such as nausea, headache, abdominal cramps, or just
such as nausea, headache, abdominal cramps, or just
fatigue that can
fatigue that can'
't be explained on the
t be explained on the basis of exertion
basis of exertion
●
● Disease refers to various structural disorders of the
Disease refers to various structural disorders of the
individual
individual
s tissues and organs that give rise to the signs
s tissues and organs that give rise to the signs
of ill - health
of ill - health
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
 The principal factors accounting for nearly all
The principal factors accounting for nearly all
diseases are:
diseases are:
1. heredity - inherited (genetic
1. heredity - inherited (genetic)
) diseases,
diseases,
2. infectious organisms - infectious diseases,
2. infectious organisms - infectious diseases,
nosocomial disease
nosocomial disease
3. lifestyle and personal habits - lifestyle
3. lifestyle and personal habits - lifestyle
diseases
diseases
4. accidents
4. accidents
5.
5. physical, chemical noxas (
physical, chemical noxas (poisons and
poisons and
toxi
toxins)
ns)
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
 Most standard medical textbooks attribute anywhere
Most standard medical textbooks attribute anywhere
from 50 to 80% of all disease to
from 50 to 80% of all disease to psychosomatic or
psychosomatic or
stress-related origins
stress-related origins
Examples of psychosomatic diseases:
Examples of psychosomatic diseases:
- peptic ulcer, essential hypertension, bronchial asthma,
- peptic ulcer, essential hypertension, bronchial asthma,
hyperreactive thyroid, rheumatoid arthritis, ulcerative
hyperreactive thyroid, rheumatoid arthritis, ulcerative
colitis
colitis.....
.....
P
Partially or wholly psychosomatic disorders:
artially or wholly psychosomatic disorders:
hay fever, acne, diarrhea, impotency, warts, eczema,
hay fever, acne, diarrhea, impotency, warts, eczema,
tinnitus, bruxism (grinding of teeth), nail biting,
tinnitus, bruxism (grinding of teeth), nail biting,
tension headaches, back pain, insomnia
tension headaches, back pain, insomnia.....
.....
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
 Psychosomatic illness are caused by
Psychosomatic illness are caused by negative mental
negative mental
states
states and attitudes
and attitudes that harmfully change
that harmfully change the
the
physiology
physiology
 Psychosomatic illness are real
Psychosomatic illness are real - as real as appendicitis
- as real as appendicitis
or pneumonia
or pneumonia
 Placebo effect
Placebo effect = the healing that results from a
= the healing that results from a
person
person
s
s
belief in substances or treatments that have no
belief in substances or treatments that have no medical
medical
value in themselves
value in themselves

 The power of healing does not reside so much
The power of healing does not reside so much
in the healer as in the belief of the patient
in the healer as in the belief of the patient.
.
The cures that results from placebo effects sometimes
The cures that results from placebo effects sometimes
seem miraculous but actually are caused by physiological
seem miraculous but actually are caused by physiological
changes brought about by peoples
changes brought about by peoples
 beliefs and mental
beliefs and mental
states.
states. The mind is healer
The mind is healer!!!
!!!
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
 In nature there are neither rewards nor
In nature there are neither rewards nor
punishments - only consequences
punishments - only consequences

 All manifestations of human disease are the
All manifestations of human disease are the
consequence of the interplay between body,
consequence of the interplay between body,
mind, and environment
mind, and environment
Relation: disease - punishment
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Health Literacy
Topics today
• Definitions of literacy and health literacy
• Why it matters
• Current trends
• Resources
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What is Literacy?
National Assessment of Adult Literacy (NAAL
2003)
“Using printed and written information to
function in society, to achieve one's goals, and
to develop one's knowledge and potential.”
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Definition of literacy in Pakistan
• 1998 Census.
• The definition of literacy in Pakistan has
evolved to mean the ability to read and
understand a simple text, write a simple
letter, and perform basic math
calculations (counting and
addition/subtraction) in any language.
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Current definition (since 2017
census)
• Ability to read and understand simple
text: This can be from a newspaper or magazine.
• Ability to write a simple letter: Individuals must
be able to write a simple letter in any language.
• Basic numeracy skills: The ability to perform
basic mathematical calculations, such as counting
and addition/subtraction, is now a requirement.
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What is Literacy?
• Literacy is a combination of skills:
– Verbal Listening
– Reading Writing
– Numeracy
– Critical analysis
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More than just reading grade level
• Prose Literacy
– Written text like instructions or newspaper article
• Document literacy
– Short forms or graphically displayed information
found in everyday life
• Quantitative Literacy
– Arithmetic using numbers imbedded in print
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What is Health Literacy?
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What is Health Literacy?
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Empowerment
Shared decision making
Participation in care
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What is Health Literacy?
Calgary Charter, 2008
“Health literacy allows the public and
personnel working in all health-related
contexts to find, understand, evaluate,
communicate, and use information. “
centreforliteracy.qc.ca/health_literacy/calgary_charter
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Health Literacy Includes:
• Finding health information
• Understanding it
• Evaluating it
• Communicating it
• Using it…acting on it…to live longer and better!
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Latest HL Concept? A Quiz:
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Latest HL Concept? A Quiz:
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Two Sides to the Equation
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People (Info-seekers) need to learn
to:
• Find health information
• Understand it
• Evaluate it
• Communicate their needs and questions
• Use what they learn…act on it…to live healthier!
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The Info-givers need to learn to:
•
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The Info-givers need to learn to:
•
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In Their Own Words
• Insert video clip here
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So What?
• Who’s at risk?
• What happens?
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2003 National Assessment
of Adult Literacy
• NAAL health literacy assessment
• 28 questions specifically related to health
– 3 clinical
– 14 prevention
– 11 system navigation
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2003 National Assessment
of Adult Literacy
• 4 categories of literacy
– Below basic
– Basic
– Intermediate
– Proficient
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NAAL Health Literacy Assessment
• Below Basic literacy – one piece of information
• Can:
– Sign name on a document
– Identify a country in a short article
– Total a bank deposit slip
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NAAL Health Literacy Assessment
• Below Basic literacy – one piece of
information
• Cannot:
– Enter information on a social security card application
– Locate an intersection on street map
– Calculate the total cost on an order form
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NAAL Health Literacy Assessment
• Basic literacy – two related pieces of
information
• Can:
– Identify YTD gross pay on a paycheck
– Determine price difference between tickets for 2 shows
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NAAL Health Literacy Assessment
• Basic literacy – two related pieces of information
• Cannot:
– Use a bus schedule
– Balance a check book
– Write a short letter explaining error on a credit card bill
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Health literacy of U.S. Adults
12% 14%
22%
52%
Below Basic
Basic
Intermediate
Proficient
(NAAL, 2003)
88% of U.S. Adults below Proficient level
That is nearly 9 out of every 10 adults!
~ Andrew Pleasant, Canyon Ranch Institute
PLUS: 3% could
NOT be tested
NAAL Health Literacy Assessment
• Basic and Below Basic by
Self-reported health status
– Excellent 25%
– Very Good 28%
– Good 43%
– Fair 63%
– Poor 69%
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The Impact of Low Literacy on Health
 Poorer health knowledge
 Poorer health status
 Higher mortality
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The Impact of Low Literacy on Health
 Increased hospital use
 Increased Emergency Department use
 Mixed results for:
 Use of preventive services
 Chronic health care
 Tobacco use
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Where do we go from here?
Vision:
Every patient or their caregiver
understands what the health issue is,
what to do about it and why it’s
important.
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How do we get there?
• Education
• Effective Communication
• Universal Design
– If it works for people with limited literacy or
limited English skills, it will work for everyone.
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Re-Designing What We Do
• Someone takes ownership of Health Literacy
– Grass roots
– Leadership buy in = resources : people and $
• Infuse health literacy concepts in new programs
and redesign of current materials and processes
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Trends: What People are Doing
• Research and Interventions
• Prescription labeling
• Integrating health literacy into
medical education
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Trends: What People are Doing
• Policy initiatives
• Regional health literacy efforts
• National health literacy association
• Effective communication
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Research and Interventions
• Literacy research in medicine only goes back
about 25 years
• Research idea to published article:
Foundation funding: 2-3 years or more
Federal funding: 5-9 years
• Interventions are just starting to be tested
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Why are Literacy Programs a good
venue to address health literacy?
Partnerships Between Literacy &
Health Organizations
Health curricula in literacy/English classes
Guest speakers from local health centers
Mini exams from nursing students
Health fairs

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Newer Partnerships
Student navigation assessments for hospitals
Students testing written materials
Teachers advising health care providers
Teachers and students consulting to health programs

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Newer Partnerships
• Statewide and multi-state coalitions
• Cross referrals
• Dual Projects


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Adult Education Jargon
• ABE = Adult Basic Education
• ASE = Adult Secondary Education
• ESL = English as a Second Language
• ESOL = English for Speakers of Other
Languages
• ELL =English Language Learners
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What can YOU do?
• Learn more
• Find partners
• Start re-designing
–Processes
–Forms and other documents
–Curricula and training
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Rights AND RESPONSIBILITIES OF
PATIENTS AND DOCTORS
Prof Umar’s model of clinically oriented
integrated Lecture
First Year MBBS
Core subject 90%
≈ 11-12 slides
Horizontal integration
( Same year subjects)
Anatomy, Biochemistry,
Physiology
0%
Vertical Integration
(Basic sciences subjects of
different years(Forensic
Medicine, Pharmacology,
Community medicine
0%
Vertical Integration
Clinical Subjects (Medicine,
Surgery, Gynae/Obs etc)
0%
Longitudinal/ ongoing
integration ( Bioethics,
Research, Artificial
Intelligence, Family
Medicine
10%
≈ 2 slides
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Learning Outcomes
At the end of the session the participants should be
able to
• Understand the rights and responsibilities of
doctors
• Understand the rights and responsibilities of
patients
• Analyze critical situations/ challenges in
clinical practice to solve clinical problems
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• The basis of the unique relationship between doctor and
patient is the capacity of the doctor to appreciate the
complexity of human behavior.
• A doctor must be sensitive to the effects of history, culture,
and environment on his patients. At the center of this
therapeutic relationship is the trust that a patient has in the
doctor,
• This trust is built on the unconditional positive regard that
the doctor holds for the patient, irrespective of their gender,
social class, caste, color or creed.
Core Concept
Doctor-Patient Relationship
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Core Concept
Rights of a Patient
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Responsibilities of the Patients
• Know their own medical history including
medications taken
• Keep appointments or advise / inform those
concerned if they are unable to do so.
• Comply with the treatment advised / supplied.
• Inform the doctor if they are receiving treatment
from another health professional
• Know how their charges of treatment are best
covered.
• Conduct themselves in a manner which will not
interfere with the welt-being or rights of other
patients or staff.
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Rights of the Doctor
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Responsibilities of Doctor
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The impact of artificial intelligence on the person-centred, doctor-patient
relationship: some problems and solutions
Aurelia Sauerbrei et al.
Published: 20 April 2023
Volume 23, article number 73
• This study explores the impact of artificial
intelligence (AI) on empathy, compassion, and
trust in doctor-patient relationships.
• It highlights the need for AI to be used in an
assistive role and for medical education to adapt
accordingly.
• The authors emphasize intentional efforts to
ensure AI supports, rather than undermines,
person-centered care.
https://link.springer.com/article/10.1186/s12911-
023-02162-y
Longitudinal Integration
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• The principle of confidentiality is the ethical obligation of
physician to preserve the information gathered in association
with patient care.
The patient needs to be able to trust the physicians, will protect
the information shared in confidence.
It is worth emphasizing that, confidentiality can be breached in
few cases, to other healthcare personnels for patient care,
patient can harm oneself or others or required by law.
Confidentiality
Longitudinal Integration
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MCQ
1. A 45-year-old patient with hypertension refuses to take
his prescribed medication, stating that he prefers herbal
remedies. The doctor believes this will negatively impact
his health. What is the doctor’s ethical responsibility in this
situation?
A) Force the patient to take the medication for their own
benefit
B) Respect the patient’s autonomy but provide information
on the risks of not taking the medication
C) Stop treating the patient as they are non-compliant
D) Prescribe an herbal remedy instead to satisfy the patient
Answer: B
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MCQ
A 30-year-old woman requests a medical procedure
that the doctor believes is unnecessary and may pose
risks to her health. What is the doctor’s ethical
responsibility?
A) Perform the procedure because the patient has the
right to request it
B) Refuse the procedure without explanation
C) Explain the risks and benefits and decline if it is not
medically justified
D) Proceed with the procedure to maintain a good
doctor-patient relationship
Answer: C
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MCQ
3. A patient undergoing surgery insists that only a male doctor
perform the procedure due to cultural beliefs. The hospital has only
female surgeons available. What should be the doctor's response?
A) Insist that the patient undergoes surgery with the available
doctor, as it is medically necessary
B) Respect the patient’s cultural beliefs and try to arrange for a
male surgeon if possible
C) Refuse to treat the patient since they are being unreasonable
D) Inform the patient that they must sign a consent form
acknowledging they are declining treatment due to personal
preference
Answer: B
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Shared Decision-Making
In this section of the lesson, we will define
shared decision-making and discuss ways to
assess patient’s willingness and ability to be
involved in the treatment planning process.
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Learning Objectives
After completing this lesson, you will be able to:
•Encourage active participation by the patient in decision-making and explain choices or rights
to the patient in a patient-centered manner
•Assess patient desire and capacity to be involved and responsible in the decision-making
process
•Determine patient preferences and priorities for treatment
•Identify strategies to assist patients in discussing preferences and priorities with clinician
•Support the patient in the decision-making process in alignment with desired level of
engagement
•Describe a treatment plan
•Assess barriers to patient adherence to the plan
•Develop a plan with the patient for addressing adherence challenges
•Identify self-management and health promotion resources
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What is Shared Decision-Making?
“A process in which patients are involved as active partners
with the clinician in clarifying acceptable medical options and
in choosing a preferred course of clinical care.”
Improved
Sources: Sheridan et al. 2004; Fraenkel et al. 2007
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Elements of Shared Decision-Making
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Encouraging Patient Participation in
Shared Decision-Making
Source: Epstein et al. 2007
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Discussing Treatment Preferences
and Priorities
• Do you have any religious beliefs? If so, how do those impact your
care? What about spiritual beliefs?
• How do you like to learn new information? (Give examples of visual,
auditory and kinetic learning styles)
• How much information would you like to have about your particular
disease or treatment?
• What is the best way to communicate with you?
• Is there anyone else you would like to be involved in your care, like a
friend, family member or religious/spiritual advisor?
• What do you do to take care of yourself? How can our team support
you in taking care of yourself?
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Assessing Desire for Decision-
Making
Sources: Beagley. 2011; Coulter et al. 2008
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Checkpoint
Which of the following impacts a patient’s
capacity for shared decision-making?
a)Health literacy
b)Language
c)Physical condition and environment
d)Learning style
e)All of the above
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Assessing Capacity for Decision-
Making
Sources: U.S. Department of Health and Human
Services. n.d.; Nielsen-Bohlman et al. 2004; Beagley.
2011; Kutner et al. 2006
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Assessing Capacity for Decision-
Making
Sources: U.S. Department of Health and Human
Services. n.d.; Nielsen-Bohlman et al. 2004; Beagley.
2011; Kutner et al. 2006
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Assessing Health Literacy
Clues that Your Patient May Have Low Health Literacy
“I forgot my glasses today,
could you read that for
me?”
Source: Cornett. 2009
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Limited English Proficiency (LEP)
• Struggles with communicating in English
• Interpreter services are required by law and policy guidance:
- Title VI of the Civil Rights Act of 1964
- HHS Policy Guidance on the Prohibition Against National Origin Discrimination
as it Affects Persons With Limited English Proficiency
- DOJ Guidance to Federal Financial Assistance Recipients Regarding Title VI
Prohibition Against National Origin Discrimination Affecting Limited English
Proficient Persons
- Culturally and Linguistically Appropriate Services Standards for Health Care
- Executive Order 13166
- Strategic Plan to Improve Access to HHS Programs and Activities by Limited
English Proficiency Persons
Sources: U.S. Department of Health and Human Services. n.d.; National
Council on Interpreting in Health Care. n.d
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What is your patient’s learning style?
• Visual (pictures, charts, videos)
• Auditory (verbal information)
• Read or write (written words)
• Kinesthetic (hands-on learning)
Sources: Beagley. 2011; Inott et al. 2011; Fleming et al. 1992
Supporting Patients in the Decision-
Making Process
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Treatment Plans and Self-Management
This next section of the lesson explores
treatment plan adherence, or whether patients
follow the plan. We will identify ways that
patient navigators can help patients to follow
their treatment plans as well as support their
patient in self-management of their condition.
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Discussing Treatment Preferences
and Priorities
• Understand what patients need to make
informed decisions
• Coordinate with clinicians
• Use decision aids and tailored information
• Communicate effectively
• Return to the 5As (Ask, Assess, Advise, Assist,
Arrange)
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Treatment Plan
Source: Balogh et al. 2011
- Care
coordination
- Addressing
barriers
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• Fail to fill prescriptions due to
- Feeling that the medication wasn’t necessary
- Unable to afford the medication
- Not wanting to take the medication
- Not believing the medication would be effective
• Not wanting to change their behavior
• Wanting to avoid the side effects of treatment
• Disbelief about the severity of their condition
• Feeling too busy or too stressed to follow the treatment plan
• Feeling incapable of changing their behavior
• Uninvolved in treatment plan creation
Barriers to Treatment Plan Adherence
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Addressing Challenges to Adhering to
the Treatment Plan
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Self-Management
Increased/
Improved
Decreased
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Self-Management
Taking the actions necessary to live well and manage chronic
conditions
Sources: Adams et al. 2004; Pearson et al. 2007
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Self-Management and Health
Promotion Resources
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Conclusion
In this lesson you learned to:
• Encourage active participation by the patient in decision-making and
explain choices or rights to the patient in a patient-centered manner
• Assess patient desire and capacity to be involved and responsible in the
decision-making process
• Determine patient preferences and priorities for treatment
• Identify strategies to assist patients in discussing preferences and priorities
with clinician
• Support the patient in the decision-making process in alignment with
desired level of engagement
• Describe a treatment plan
• Assess barriers to patient adherence to the plan
• Develop a plan with the patient for addressing adherence challenges
• Identify self-management and health promotion resources
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References
• Adams, K. G., Greiner, A. C., & Corrigan, J. M. (Eds.). (2004). Committee on the crossing the quality chasm: Next steps
toward a new health care system. The 1st annual crossing the quality chasm summit: A focus on communities.
Washington(DC): National Academies Press. ISBN: 0 309 09303 1.
‐ ‐ ‐
• Balogh, E. P., Ganz, P. A., Murphy, S. B., Nass, S. J., Ferrell, B. R., & Stovall, E. (2011). Patient centered cancer treatment
‐
planning: Improving the quality of oncology care. Summary of an Institute of Medicine workshop. Oncologist, 16(12):1800‐
5. doi: 10.1634/theoncologist.2011 0252.
‐
• Beagley, L. (2011). Educating patients: Understanding barriers, learning styles, and teaching techniques. Journal of
PeriAnesthesia Nursing, 26(5):331 337. doi: 10.1016/j.jopan.2011.06.002.
‐
• Butterworth, S. W. (2008). Influencing patient adherence to treatment guidelines. Journal of Managed Care Specialty
Pharmacy, 14(6 Suppl B):21 24. doi:
‐ 10.18553/jmcp.2008.14.S6-B.21
• Cornett, S. (2009). Assessing and addressing health literacy. The Online Journal of Issues in Nursing, 14(3):Manuscript 2.
doi: 10.3912/OJIN.Vol14No03Man02.
• Coulter, A., Parsons, S., & Askham, J. (2008). Where are the patients in decision making about their own care
‐ .
http://www.who.int/management/general/decisionmaking/WhereArePatientsinDecisionMakin g.pdf.
• Epstein, R. M., & Street, R. L. Jr. (2007). Patient centered communication in cancer care: Promoting healing and reducing
‐
suffering. National Cancer Institute, NIH Publication No. 07 6225. Bethesda, MD.
‐
• Fleming, N. D., & Mills, C. (1992). Not another inventory, rather a catalyst for reflection. To Improve the Academy, 11:137‐
155.
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Thank You
Evidence-Based Clinical
Decision-Making
• Integrating Evidence, Expertise, and Patient
Values
• Presented by: Dr. Muhammad Tauseef
Javed
• Department of Community
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Learning Objectives
• By the end of this session, students will be able to:
• 1. Define evidence-based clinical decision-making
(EBCDM).
• 2. Describe the three key components of EBCDM.
• 3. Explain the steps in applying EBCDM.
• 4. Recognize the importance and benefits of
EBCDM in patient care.
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What is EBCDM?
• Definition:
• “The conscientious, explicit, and judicious
use of current best evidence in making
decisions about the care of individual
patients.” (Sackett et al., BMJ, 1996)
• In essence: Combine best evidence + clinical
expertise + patient preferences.
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The Three Pillars of EBCDM
• 1. 🧠 Best Research Evidence – from
clinical studies, guidelines, and systematic
reviews.
• 2. Clinical Expertise – skills and past
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experience of the clinician.
• 3. Patient Values & Preferences –
❤️
patient’s needs, beliefs, and expectations.
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Steps in EBCDM (The 5 A’s)
• 1. Ask – Formulate a clinical question (PICO).
• 2. Acquire – Search for relevant evidence.
• 3. Appraise – Critically evaluate evidence
quality.
• 4. Apply – Integrate with expertise and patient
values.
• 5. Assess – Evaluate outcome and learning.
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Example – Applying EBCDM
• Clinical Scenario:
• A 50-year-old hypertensive male visits your clinic.
• Decision Process:
• • Evidence: Studies show ACE inhibitors reduce
morbidity and mortality.
• • Expertise: Doctor confirms normal kidney function.
• • Patient Preference: Prefers once-daily oral medication.
• Final Decision: Start ACE inhibitor + lifestyle counseling.
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Content
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What is Evidence-Based Practice?
• Scientific
Research &
Theory
• Client’s
Contribution
• RD Practice
Experience and
Wisdom
Evidence
Effectively
integrating
evidence into
dietetic practice.
Practic
e
Ensuring
public safety
and client-
centred
services
Public
Section
I
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“Evidence-based decision-making
refers to making decisions that affect
[client] patient care based on the best
available evidence”
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“Evidence-based practice is using
the best evidence to balance
anticipated benefits and risks to
support decisions for optimizing
client-centred services.“
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Scienc
e
+ RD
Practice
+ Client
Input
10/28/25 Prof Muhammad Tauseef Jawaid 116
Section II
Evidence-Based Practice in Changing
Environments.
• Scientific
Research &
Theory
• Client’s
Contribution
• RD Practice
Experience and
Wisdom
Evidence
RD professional &
regulatory
obligations for EPB
including keeping
current, self-
assessment and
professional
development.
Practic
e
EBP ensures
public safety
and client-
centred
services
Public
10/28/25 Prof Muhammad Tauseef Jawaid 117
Evolvin
g
Changin
g
Advancin
g
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Self-
Assessment
Continuing Education
Professional
Development
Regulated Health
Professions Act Quality
Assurance Regulation
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Importance of EBCDM
A. Improves quality and consistency of care.
B. Promotes rational and cost-effective
practice.
C. Reduces medical errors.
D. Encourages shared decision-making with
patients.
E. Strengthens lifelong learning.
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Challenges in Practicing
EBCDM
• • Limited time for literature search.
• • Difficulty appraising research quality.
• • Access issues to databases or journals.
• • Resistance to change or reliance on
traditional practice.
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Strategies to Promote EBCDM
• • Teach EBP skills early in medical
education.
• • Encourage journal clubs and case
discussions.
• • Use evidence-based clinical guidelines.
• • Foster a culture of inquiry and reflection.
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Reflective Questions
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Section III
Integrating Evidence into clinical Practice
• Scientific
Research &
Theory
• Client’s
Contribution
• RD Practice
Experience and
Wisdom
Evidence
The 5-Step EBP
Model for RDs helps
integrate evidence
into clinical
practice.
Practic
e
EBP ensures
public safety
and client-
centred
services.
Publi
c
10/28/25 Prof Muhammad Tauseef Jawaid 124
Clien
t
Step
1
ASK
Step 2
ACCES
S
Step 3
APPRAI
SE
Step
4
ACT
Step 5
ASSESS
(Gilgun 2005; Spring 2007; Smith 2008; Fischer & Orme 2009; Mazurek Melnyk 2010)
10/28/25 Prof Muhammad Tauseef Jawaid 125
PICO Model
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PICO Model
Problem or population of client- Who or What?
Describe a group of clients similar to your
own.
Intervention/exposure/ maneuver - How?
What intervention are you considering?
Comparison- What is the main alternative? (If
appropriate)?
Outcome - What are you
trying to accomplish, measure, improve,
effect?
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PICO Case Scenario
Elderly suffering from bedsores
Population: Elderly or aged Intervention: Nutrition
supplement Comparison: None
Outcome: Reduction in incidence and severity of
bed sores
Question:
•"What nutrition interventions reduce the incidence
and severity of bed sores in elderly residents of LTC
facilities?"
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Reflective Question
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PICO Case Scenario: Vegan Diet
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Is there a significant reduction in
cardiovascular disease when adults
suffering from the disease are
treated with a vegan diet in
comparison to other vegetarian or
healthy heart diets?
PICO Case Scenario: Vegan Diet
Aswerable Question
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Clien
t
Step
1
ASK
5-Step Evidence-Based Practice
Model
Step 1: Ask Focused Questions
10/28/25 Prof Muhammad Tauseef Jawaid 133
5-Step Evidence-Based Practice
Model
Step 2: Access Best Available Evidence
Step 1 ASK
Step 2
ACCESS
Client
(
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Hierarchy
of
Scientific
Evidence
(Gray & Gray 2002)
10/28/25 Prof Muhammad Tauseef Jawaid 136
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Use Reliable Websites for Research
10/28/25 Prof Muhammad Tauseef Jawaid 138
Science + Client
Input
+ Practice
Science alone is not sufficient.
10/28/25 Prof Muhammad Tauseef Jawaid 139
Client-
centred
10/28/25 Prof Muhammad Tauseef Jawaid 140
Reflective
Question
Did you ever have an experience
where you needed to access
information at the point of service?
What did you do?
10/28/25 Prof Muhammad Tauseef Jawaid 141
5-Step Evidence-Based Practice
Model
Step 3: Critical Appraisal
Step 1 ASK
Step 2
ACCESS
Client
Step 3
APPRAI
SE
(Gilgun 2005; Spring 2007; Smith 2008; Fischer & Orme 2009; Mazurek Melnyk 2010)
10/28/25 Prof Muhammad Tauseef Jawaid 142
Summary
• • EBCDM = Best evidence + Clinical
expertise + Patient preferences.
• • Involves a systematic 5-step process (Ask,
Acquire, Appraise, Apply, Assess).
• • Enhances patient outcomes and
professional accountability.
10/28/25 Prof Muhammad Tauseef Jawaid 143
Learn to tell good from bad
research
10/28/25 Prof Muhammad Tauseef Jawaid 144
vali
d
applicabl
e
releva
nt
reliabl
e
importa
nt
Rapid Critical
Appraisal
10/28/25 Prof Muhammad Tauseef Jawaid 145
Critical Appraisal
Gilgun’s Four Cornerstones of EBP
Research
&
Theory
Practic
e
Wisdo
m
Personal
Assumptio
ns
Client’s
Contributi
on
(Gilgun, 2005)
10/28/25 Prof Muhammad Tauseef Jawaid 146
Research
&
Theory
PRACTIC
E
WISDOM
Personal
Assumptio
ns
Client’s
Contributi
on
Critical Appraisal
Gilgun’s Four Cornerstones of EBP
10/28/25 Prof Muhammad Tauseef Jawaid 147
Research
&
Theory
Practic
e
Wisdo
m
PERSONAL
ASSUMPTION
S
Client’s
Contributi
on
Critical Appraisal
Gilgun’s Four Cornerstones of EBP
10/28/25 Prof Muhammad Tauseef Jawaid 148
Case Scenario: The Vegan Diet
10/28/25 Prof Muhammad Tauseef Jawaid 149
Science + Client
Input
+ Practice
Critical Thinking and Reflection
10/28/25 Prof Muhammad Tauseef Jawaid 150
Critical Thinking and Reflection
Kolb'S Learning Style Theory Revisited
Educational and Psychological Measurement June 1, 1994, 54:317-
327
10/28/25 Prof Muhammad Tauseef Jawaid 151
Critical Appraisal
Gilgun’s Four Cornerstones of EBP
10/28/25 Prof Muhammad Tauseef Jawaid 152
Select the best options for safe client-centred
services.
10/28/25 Prof Muhammad Tauseef Jawaid 153
Interprofessional
Collaboration
Collaborativ
e
Negotiating
Discussion
10/28/25 Prof Muhammad Tauseef Jawaid 154
Make sure your
evidence is current and
client-centred.
10/28/25 Prof Muhammad Tauseef Jawaid 155
Evidence-based
practice helps clients
exercise their right
and responsibility to
make informed
decisions and consent
to treatment.
10/28/25 Prof Muhammad Tauseef Jawaid 156
Reflective
Question
How do client needs and values
affect the decision-making
process in your practice?
10/28/25 Prof Muhammad Tauseef Jawaid 157
5-Step Evidence-Based Practice
Model
Step 5 Assessing Performance
(Gilgun 2005; Spring 2007; Smith 2008; Fischer & Orme 2009; Mazurek Melnyk 2010)
Clien
t
Step
1
ASK
Step 2
ACCES
S
Step 3
APPRAI
SE
Step
4
ACT
Step 5
ASSESS
10/28/25 Prof Muhammad Tauseef Jawaid 158
 Monitor & evaluate
 Support positive
changes
 Consider new
benefits
 Pay attention to risks
Step 5: Assessing
Performance
Audit and
Feedback
10/28/25 Prof Muhammad Tauseef Jawaid 159
Reflective Question
What changes have you made to
your practice to help clients
make informed decisions?
How did you evaluate the
changes?
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Scienc
e
+ RD
Practice
+ Client
Input
Evidence-Based Practice
Regulatory and Professional Obligations
for RDs
Section IV –
Summary
10/28/25 Prof Muhammad Tauseef Jawaid 161
Public Safety & Interest
Maintaining Competence
Evidence-Based
Practice
Regulatory and Professional Obligations
for RDs
10/28/25 Prof Muhammad Tauseef Jawaid 162
Clien
t
Step
1
ASK
Step 2
ACCES
S
Step 3
APPRAI
SE
Step
4
ACT
Step 5
ASSESS
5-Step Evidence-Based Practice Model
10/28/25 Prof Muhammad Tauseef Jawaid 163
References
• 1. Sackett DL et al. Evidence-Based Medicine:
What It Is and What It Isn’t. BMJ. 1996.
• 2. Straus SE, Glasziou P, Richardson WS,
Haynes RB. Evidence-Based Medicine: How to
Practice and Teach It. 5th ed. Elsevier, 2018.
• 3. WHO. EBM in Primary Care. Geneva, 2020.
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Lecture Concept of Health /Health Literacy and Shared decision making 2025.ppt

  • 2.
    10/28/25 Prof MuhammadTauseef Jawaid 2
  • 3.
    HEALTH AND DISEASE HEALTHAND DISEASE Prof. Dr Muhammad Tauseef Prof. Dr Muhammad Tauseef Jawaid Jawaid
  • 4.
    Health and disease Healthand disease – – two essential categories two essential categories of medicine of medicine Definition of health Definition of health  Health Health is is defined as a defined as a state of optimal physical, state of optimal physical, mental, and social well-being mental, and social well-being and not merely and not merely the the absence of disease absence of disease and and infirmity infirmity (according to W.H.O.) (according to W.H.O.)  Health can be defined as a Health can be defined as a „ „state state“ “ of the of the person person who is able to meet the demands placed on who is able to meet the demands placed on his/her his/her body body and to and to adapt to these demands or adapt to these demands or changes of changes of the the external external environment environment so so as as to to maintain reasonable constancy maintain reasonable constancy of of the the internal internal environment environment 10/28/25 Prof Muhammad Tauseef Jawaid 4
  • 5.
     There There is isway of way of measuring health in a negative measuring health in a negative sense. sense. It is It is measure measured d by by the the "5 d "5 d s" - death, disease, s" - death, disease, discomfort, disability, and dissatisfaction discomfort, disability, and dissatisfaction. . If there is If there is absence of 5 d absence of 5 d‚ ‚s we can say that person is healthy s we can say that person is healthy ● ● In health there is freedom. Health is the first of In health there is freedom. Health is the first of all liberties all liberties! ! ● ● Holistic Holistic view view to a health to a health recogni recogniz zes the es the inter inter relatedness of the relatedness of the physical, psychological, emotional, physical, psychological, emotional, social, spiritual, social, spiritual, and environmental factors and environmental factors that that contribute to the overall quality of a person contribute to the overall quality of a person s life s life 10/28/25 Prof Muhammad Tauseef Jawaid 5
  • 6.
    Two aspects ofhealth can be distinguished: 1) Subjective – it is formed by sensations and feelings of a person, e.g. high working capacity, ability to overcome problems, optimistic thinking, happiness, satisfaction... 2) Objective – its basis is formed by objective parameters obtained by measurement of strutures and functions of a person Subjective and objective aspects of a health can differ e.g. – Man with  systemic BP can feel healthy Oposite – Man can feel ill despite no measurable changes of structure and/or functions can be find 10/28/25 Prof Muhammad Tauseef Jawaid 6
  • 7.
    Positive cosequence ofWHO definition of health: – change of health care phylosophy Classik phylosophy: Diseased person  doctor  diagnosis  therapy Modern phylosophy healthy person health promotion health protection prevention of disease onset and development 10/28/25 Prof Muhammad Tauseef Jawaid 7
  • 8.
    Two dimensions ofhealth according Nordenfeld (1986) Scientistic = atomistic-biological dimension of health - quantitative dimension of life Non-scientistic = holistic-humanistic view on health - rather qualitative dimension of life - seeing health as the totality seeing health as the totality of a person of a person s existence s existence Summary: ● health is defined by set of objective, measurable parameters of structure and functions of the body ● health is defined also by set of subjective parameters expressed by healthy person 10/28/25 Prof Muhammad Tauseef Jawaid 8
  • 9.
      Positive wellnessinvolves: Positive wellness involves: 1. being free from symptoms of disease and pain 1. being free from symptoms of disease and pain as much as possible; as much as possible; 2. being able to be active - able to do what you 2. being able to be active - able to do what you want want and what you and what you have to do have to do at the appropriate at the appropriate time; time; 3. being in good spirits most of the time 3. being in good spirits most of the time 10/28/25 Prof Muhammad Tauseef Jawaid 9
  • 10.
    Concept of normalcy Conceptof normalcy Norm Norm (normal, (normal, within the norm) = parameters or values within the norm) = parameters or values ranging ranging from from - - to to of bodily or of bodily or mental mental functions or functions or quantitative measur quantitative measure ements of biological ments of biological indexes derived indexes derived statistically statistically from from "healthy "healthy persons" of the specific persons" of the specific g group roup ( (hight hight, body mass, heart , body mass, heartrate rate, respiration , respiration rate rate, , blood blood pressure pressure, , body temperature, etc.) body temperature, etc.) Norm Norm   H Health ealth; Health ; Health = =Norm Norm Health – Health – it is more qualitative term it is more qualitative term Norm – Norm – it is more quantitative term it is more quantitative term Normal parameter – parameter presents most Normal parameter – parameter presents most frequently in healthy population frequently in healthy population 10/28/25 Prof Muhammad Tauseef Jawaid 10
  • 11.
    Interindividual variability: – eachperson has its own profile of structures and functions, and almost each person is extreme in some of sign, and in different one – in population is created by influence of many factors: a) internal – mainly genetic b) external – physical, chemical, biological, social... – can be one explanation for different level of health in different people, and different proneness to disease 10/28/25 Prof Muhammad Tauseef Jawaid 11
  • 12.
    Definition Definitions s of disease ofdisease  D Disease isease can be defined can be defined as a as a biosocial phenomenon biosocial phenomenon characterized characterized by by interactions of pathological interactions of pathological processes, processes, defensive and adaptation processes defensive and adaptation processes resulting in resulting in damage of the organism damage of the organism as a whole as a whole, , in in limitation of the organism ability to adapt to limitation of the organism ability to adapt to living living condition. condition.  Disease can be defined as a Disease can be defined as a changes in individuals changes in individuals that cause their that cause their health parameters to fall outside health parameters to fall outside the range of the range of normal normal  The term disease means a The term disease means a deviation from or an deviation from or an absence absence of the normal state of the normal state 10/28/25 Prof Muhammad Tauseef Jawaid 12
  • 13.
    The essential aspectsof disease The essential aspects of disease 1. 1. disease is a disease is a new quality of life new quality of life Health is a friedom, disease is a prison Health is a friedom, disease is a prison 2. disease is the 2. disease is the result of one or more causes result of one or more causes (noxas) and (noxas) and suitable conditions suitable conditions 3. disease is the 3. disease is the unity of damaging, adaptive, unity of damaging, adaptive, defensive and compensation mechanisms defensive and compensation mechanisms 10/28/25 Prof Muhammad Tauseef Jawaid 13
  • 14.
    A picture ofdiseaase is created by: – pathologic reactions – pathologic processes – pathologic states Pathologic reaction - It is the most simple, mainly short-lasting, quantitativly and/or qualitativly non-adequate response of organisms to some noxa Examples: syncopa, short-lasting increase of BP, tachycardia, bradycardia, vomiting, diarhoe, hyperventilation ... 10/28/25 Prof Muhammad Tauseef Jawaid 14
  • 15.
    Pathologic process It isthe complex of pathologic and defensive- - adaptive reactions induced by influence of noxa on organism Examples: inflammation, fever, hypoxia, growth of tumor, edema, acidosis, alkalosis... Pathologic state Pathological change which is stabile or it changes very slowly and in very small range during time period Examples: congenital valvular heart disease, deafness, blindness, colour blindness... 10/28/25 Prof Muhammad Tauseef Jawaid 15
  • 16.
    Dynamics of disease Diseaseis a definite morbid process h Disease is a definite morbid process ha av ve ein ing g a characteristic train of symptoms and signs a characteristic train of symptoms and signs Dynamics of disease is characterized by stages of disease: 1st stage: 1st stage: latent – incubation latent – incubation (in infections diseases (in infections diseases) ) Its duration is measured by time passed between Its duration is measured by time passed between beginning of noxa influence of body and beginning beginning of noxa influence of body and beginning of first non-specific symptoms and signs of disease of first non-specific symptoms and signs of disease There are no manifestations of disease during this stage There are no manifestations of disease during this stage 2nd stage: 2nd stage: prodromal prodromal First non-specific symptoms and signs of disease arise First non-specific symptoms and signs of disease arise 10/28/25 Prof Muhammad Tauseef Jawaid 16
  • 17.
    3rd stage: manifestationof disease There are specific symptoms and signs characteristic for specific disease 4th stage: disease outcomes a) healing and convalescence b) chronic disease c) death Forms of healing: - restitutio or sanatio ad integrum - sanatio per compensationem 10/28/25 Prof Muhammad Tauseef Jawaid 17
  • 18.
    Time course ofdisease Time course of disease a) a) Peracute – onset during few seconds or minutes Peracute – onset during few seconds or minutes b) b) Acute – onset during hours and days, duration up Acute – onset during hours and days, duration up to to 3 weeks 3 weeks a) a) Subacute Subacute – – duration up to duration up to 6 weeks 6 weeks b) b) Chronic – duration more than 6 weeks Chronic – duration more than 6 weeks Exacerbation of disease – usually sudden increse intensity of symptoms and signs of chronic disease Recidivation of disese – returning of previosly healed disease Remision of disease: decrese intensity of simptoms and signs of disease 10/28/25 Prof Muhammad Tauseef Jawaid 18
  • 19.
    ILLNESS AND DISEASE ILLNESSAND DISEASE   It is more important to know It is more important to know what sort of patient what sort of patient has a disease, than what sort of disease a patient has has a disease, than what sort of disease a patient has   A person may "feel ill" without a disease being evident or A person may "feel ill" without a disease being evident or diagnosed; diagnosed; likewise, a person may have a disease without likewise, a person may have a disease without experiencing any illness or suffering experiencing any illness or suffering   Illness Illness tends to be used to refer to tends to be used to refer to what is wrong with what is wrong with the patient, disease to what is wrong with his body the patient, disease to what is wrong with his body ● ● Illness Illness is what the patient suffers from, what troubles is what the patient suffers from, what troubles him, what be complains of, and what prompts him to him, what be complains of, and what prompts him to seek medical attention seek medical attention 10/28/25 Prof Muhammad Tauseef Jawaid 19
  • 20.
    ● ● When wesay "a person is ill " we mean he feels When we say "a person is ill " we mean he feels uncomfortable, he is suffering from certain symptoms uncomfortable, he is suffering from certain symptoms such as nausea, headache, abdominal cramps, or just such as nausea, headache, abdominal cramps, or just fatigue that can fatigue that can' 't be explained on the t be explained on the basis of exertion basis of exertion ● ● Disease refers to various structural disorders of the Disease refers to various structural disorders of the individual individual s tissues and organs that give rise to the signs s tissues and organs that give rise to the signs of ill - health of ill - health 10/28/25 Prof Muhammad Tauseef Jawaid 20
  • 21.
      The principalfactors accounting for nearly all The principal factors accounting for nearly all diseases are: diseases are: 1. heredity - inherited (genetic 1. heredity - inherited (genetic) ) diseases, diseases, 2. infectious organisms - infectious diseases, 2. infectious organisms - infectious diseases, nosocomial disease nosocomial disease 3. lifestyle and personal habits - lifestyle 3. lifestyle and personal habits - lifestyle diseases diseases 4. accidents 4. accidents 5. 5. physical, chemical noxas ( physical, chemical noxas (poisons and poisons and toxi toxins) ns) 10/28/25 Prof Muhammad Tauseef Jawaid 21
  • 22.
      Most standardmedical textbooks attribute anywhere Most standard medical textbooks attribute anywhere from 50 to 80% of all disease to from 50 to 80% of all disease to psychosomatic or psychosomatic or stress-related origins stress-related origins Examples of psychosomatic diseases: Examples of psychosomatic diseases: - peptic ulcer, essential hypertension, bronchial asthma, - peptic ulcer, essential hypertension, bronchial asthma, hyperreactive thyroid, rheumatoid arthritis, ulcerative hyperreactive thyroid, rheumatoid arthritis, ulcerative colitis colitis..... ..... P Partially or wholly psychosomatic disorders: artially or wholly psychosomatic disorders: hay fever, acne, diarrhea, impotency, warts, eczema, hay fever, acne, diarrhea, impotency, warts, eczema, tinnitus, bruxism (grinding of teeth), nail biting, tinnitus, bruxism (grinding of teeth), nail biting, tension headaches, back pain, insomnia tension headaches, back pain, insomnia..... ..... 10/28/25 Prof Muhammad Tauseef Jawaid 22
  • 23.
      Psychosomatic illnessare caused by Psychosomatic illness are caused by negative mental negative mental states states and attitudes and attitudes that harmfully change that harmfully change the the physiology physiology  Psychosomatic illness are real Psychosomatic illness are real - as real as appendicitis - as real as appendicitis or pneumonia or pneumonia  Placebo effect Placebo effect = the healing that results from a = the healing that results from a person person s s belief in substances or treatments that have no belief in substances or treatments that have no medical medical value in themselves value in themselves   The power of healing does not reside so much The power of healing does not reside so much in the healer as in the belief of the patient in the healer as in the belief of the patient. . The cures that results from placebo effects sometimes The cures that results from placebo effects sometimes seem miraculous but actually are caused by physiological seem miraculous but actually are caused by physiological changes brought about by peoples changes brought about by peoples  beliefs and mental beliefs and mental states. states. The mind is healer The mind is healer!!! !!! 10/28/25 Prof Muhammad Tauseef Jawaid 23
  • 24.
      In naturethere are neither rewards nor In nature there are neither rewards nor punishments - only consequences punishments - only consequences   All manifestations of human disease are the All manifestations of human disease are the consequence of the interplay between body, consequence of the interplay between body, mind, and environment mind, and environment Relation: disease - punishment 10/28/25 Prof Muhammad Tauseef Jawaid 24
  • 25.
  • 26.
    Topics today • Definitionsof literacy and health literacy • Why it matters • Current trends • Resources 10/28/25 Prof Muhammad Tauseef Jawaid 26
  • 27.
    What is Literacy? NationalAssessment of Adult Literacy (NAAL 2003) “Using printed and written information to function in society, to achieve one's goals, and to develop one's knowledge and potential.” 10/28/25 Prof Muhammad Tauseef Jawaid 27
  • 28.
    Definition of literacyin Pakistan • 1998 Census. • The definition of literacy in Pakistan has evolved to mean the ability to read and understand a simple text, write a simple letter, and perform basic math calculations (counting and addition/subtraction) in any language. 10/28/25 Prof Muhammad Tauseef Jawaid 28
  • 29.
    Current definition (since2017 census) • Ability to read and understand simple text: This can be from a newspaper or magazine. • Ability to write a simple letter: Individuals must be able to write a simple letter in any language. • Basic numeracy skills: The ability to perform basic mathematical calculations, such as counting and addition/subtraction, is now a requirement. 10/28/25 Prof Muhammad Tauseef Jawaid 29
  • 30.
    What is Literacy? •Literacy is a combination of skills: – Verbal Listening – Reading Writing – Numeracy – Critical analysis 10/28/25 Prof Muhammad Tauseef Jawaid 30
  • 31.
    More than justreading grade level • Prose Literacy – Written text like instructions or newspaper article • Document literacy – Short forms or graphically displayed information found in everyday life • Quantitative Literacy – Arithmetic using numbers imbedded in print 10/28/25 Prof Muhammad Tauseef Jawaid 31
  • 32.
    What is HealthLiteracy? 10/28/25 Prof Muhammad Tauseef Jawaid 32
  • 33.
    What is HealthLiteracy? 10/28/25 Prof Muhammad Tauseef Jawaid 33
  • 34.
    Empowerment Shared decision making Participationin care 10/28/25 Prof Muhammad Tauseef Jawaid 34
  • 35.
    What is HealthLiteracy? Calgary Charter, 2008 “Health literacy allows the public and personnel working in all health-related contexts to find, understand, evaluate, communicate, and use information. “ centreforliteracy.qc.ca/health_literacy/calgary_charter 10/28/25 Prof Muhammad Tauseef Jawaid 35
  • 36.
    Health Literacy Includes: •Finding health information • Understanding it • Evaluating it • Communicating it • Using it…acting on it…to live longer and better! 10/28/25 Prof Muhammad Tauseef Jawaid 36
  • 37.
    Latest HL Concept?A Quiz: 10/28/25 Prof Muhammad Tauseef Jawaid 37
  • 38.
    Latest HL Concept?A Quiz: 10/28/25 Prof Muhammad Tauseef Jawaid 38
  • 39.
    Two Sides tothe Equation 10/28/25 Prof Muhammad Tauseef Jawaid 39
  • 40.
    People (Info-seekers) needto learn to: • Find health information • Understand it • Evaluate it • Communicate their needs and questions • Use what they learn…act on it…to live healthier! 10/28/25 Prof Muhammad Tauseef Jawaid 40
  • 41.
    The Info-givers needto learn to: • 10/28/25 Prof Muhammad Tauseef Jawaid 41
  • 42.
    The Info-givers needto learn to: • 10/28/25 Prof Muhammad Tauseef Jawaid 42
  • 43.
    In Their OwnWords • Insert video clip here 10/28/25 Prof Muhammad Tauseef Jawaid 43
  • 44.
    So What? • Who’sat risk? • What happens? 10/28/25 Prof Muhammad Tauseef Jawaid 44
  • 45.
    2003 National Assessment ofAdult Literacy • NAAL health literacy assessment • 28 questions specifically related to health – 3 clinical – 14 prevention – 11 system navigation 10/28/25 Prof Muhammad Tauseef Jawaid 45
  • 46.
    2003 National Assessment ofAdult Literacy • 4 categories of literacy – Below basic – Basic – Intermediate – Proficient 10/28/25 Prof Muhammad Tauseef Jawaid 46
  • 47.
    NAAL Health LiteracyAssessment • Below Basic literacy – one piece of information • Can: – Sign name on a document – Identify a country in a short article – Total a bank deposit slip 10/28/25 Prof Muhammad Tauseef Jawaid 47
  • 48.
    NAAL Health LiteracyAssessment • Below Basic literacy – one piece of information • Cannot: – Enter information on a social security card application – Locate an intersection on street map – Calculate the total cost on an order form 10/28/25 Prof Muhammad Tauseef Jawaid 48
  • 49.
    NAAL Health LiteracyAssessment • Basic literacy – two related pieces of information • Can: – Identify YTD gross pay on a paycheck – Determine price difference between tickets for 2 shows 10/28/25 Prof Muhammad Tauseef Jawaid 49
  • 50.
    NAAL Health LiteracyAssessment • Basic literacy – two related pieces of information • Cannot: – Use a bus schedule – Balance a check book – Write a short letter explaining error on a credit card bill 10/28/25 Prof Muhammad Tauseef Jawaid 50
  • 51.
    Health literacy ofU.S. Adults 12% 14% 22% 52% Below Basic Basic Intermediate Proficient (NAAL, 2003) 88% of U.S. Adults below Proficient level That is nearly 9 out of every 10 adults! ~ Andrew Pleasant, Canyon Ranch Institute PLUS: 3% could NOT be tested
  • 52.
    NAAL Health LiteracyAssessment • Basic and Below Basic by Self-reported health status – Excellent 25% – Very Good 28% – Good 43% – Fair 63% – Poor 69% 10/28/25 Prof Muhammad Tauseef Jawaid 52
  • 53.
    The Impact ofLow Literacy on Health  Poorer health knowledge  Poorer health status  Higher mortality 10/28/25 Prof Muhammad Tauseef Jawaid 53
  • 54.
    The Impact ofLow Literacy on Health  Increased hospital use  Increased Emergency Department use  Mixed results for:  Use of preventive services  Chronic health care  Tobacco use 10/28/25 Prof Muhammad Tauseef Jawaid 54
  • 55.
    Where do wego from here? Vision: Every patient or their caregiver understands what the health issue is, what to do about it and why it’s important. 10/28/25 Prof Muhammad Tauseef Jawaid 55
  • 56.
    How do weget there? • Education • Effective Communication • Universal Design – If it works for people with limited literacy or limited English skills, it will work for everyone. 10/28/25 Prof Muhammad Tauseef Jawaid 56
  • 57.
    Re-Designing What WeDo • Someone takes ownership of Health Literacy – Grass roots – Leadership buy in = resources : people and $ • Infuse health literacy concepts in new programs and redesign of current materials and processes 10/28/25 Prof Muhammad Tauseef Jawaid 57
  • 58.
    Trends: What Peopleare Doing • Research and Interventions • Prescription labeling • Integrating health literacy into medical education 10/28/25 Prof Muhammad Tauseef Jawaid 58
  • 59.
    Trends: What Peopleare Doing • Policy initiatives • Regional health literacy efforts • National health literacy association • Effective communication 10/28/25 Prof Muhammad Tauseef Jawaid 59
  • 60.
    Research and Interventions •Literacy research in medicine only goes back about 25 years • Research idea to published article: Foundation funding: 2-3 years or more Federal funding: 5-9 years • Interventions are just starting to be tested 10/28/25 Prof Muhammad Tauseef Jawaid 60
  • 61.
    Why are LiteracyPrograms a good venue to address health literacy?
  • 62.
    Partnerships Between Literacy& Health Organizations Health curricula in literacy/English classes Guest speakers from local health centers Mini exams from nursing students Health fairs  10/28/25 Prof Muhammad Tauseef Jawaid 62
  • 63.
    Newer Partnerships Student navigationassessments for hospitals Students testing written materials Teachers advising health care providers Teachers and students consulting to health programs  10/28/25 Prof Muhammad Tauseef Jawaid 63
  • 64.
    Newer Partnerships • Statewideand multi-state coalitions • Cross referrals • Dual Projects   10/28/25 Prof Muhammad Tauseef Jawaid 64
  • 65.
    Adult Education Jargon •ABE = Adult Basic Education • ASE = Adult Secondary Education • ESL = English as a Second Language • ESOL = English for Speakers of Other Languages • ELL =English Language Learners 10/28/25 Prof Muhammad Tauseef Jawaid 65
  • 66.
    What can YOUdo? • Learn more • Find partners • Start re-designing –Processes –Forms and other documents –Curricula and training 10/28/25 Prof Muhammad Tauseef Jawaid 66
  • 67.
    Rights AND RESPONSIBILITIESOF PATIENTS AND DOCTORS
  • 68.
    Prof Umar’s modelof clinically oriented integrated Lecture First Year MBBS Core subject 90% ≈ 11-12 slides Horizontal integration ( Same year subjects) Anatomy, Biochemistry, Physiology 0% Vertical Integration (Basic sciences subjects of different years(Forensic Medicine, Pharmacology, Community medicine 0% Vertical Integration Clinical Subjects (Medicine, Surgery, Gynae/Obs etc) 0% Longitudinal/ ongoing integration ( Bioethics, Research, Artificial Intelligence, Family Medicine 10% ≈ 2 slides 10/28/25 Prof Muhammad Tauseef Jawaid 68
  • 69.
    Learning Outcomes At theend of the session the participants should be able to • Understand the rights and responsibilities of doctors • Understand the rights and responsibilities of patients • Analyze critical situations/ challenges in clinical practice to solve clinical problems 10/28/25 Prof Muhammad Tauseef Jawaid 69
  • 70.
    • The basisof the unique relationship between doctor and patient is the capacity of the doctor to appreciate the complexity of human behavior. • A doctor must be sensitive to the effects of history, culture, and environment on his patients. At the center of this therapeutic relationship is the trust that a patient has in the doctor, • This trust is built on the unconditional positive regard that the doctor holds for the patient, irrespective of their gender, social class, caste, color or creed. Core Concept Doctor-Patient Relationship 10/28/25 Prof Muhammad Tauseef Jawaid 70
  • 71.
    Core Concept Rights ofa Patient 10/28/25 Prof Muhammad Tauseef Jawaid 71
  • 72.
    10/28/25 Prof MuhammadTauseef Jawaid 72
  • 73.
    Responsibilities of thePatients • Know their own medical history including medications taken • Keep appointments or advise / inform those concerned if they are unable to do so. • Comply with the treatment advised / supplied. • Inform the doctor if they are receiving treatment from another health professional • Know how their charges of treatment are best covered. • Conduct themselves in a manner which will not interfere with the welt-being or rights of other patients or staff. 10/28/25 Prof Muhammad Tauseef Jawaid 73
  • 74.
    Rights of theDoctor 10/28/25 Prof Muhammad Tauseef Jawaid 74
  • 75.
    Responsibilities of Doctor 10/28/25Prof Muhammad Tauseef Jawaid 75
  • 76.
    The impact ofartificial intelligence on the person-centred, doctor-patient relationship: some problems and solutions Aurelia Sauerbrei et al. Published: 20 April 2023 Volume 23, article number 73 • This study explores the impact of artificial intelligence (AI) on empathy, compassion, and trust in doctor-patient relationships. • It highlights the need for AI to be used in an assistive role and for medical education to adapt accordingly. • The authors emphasize intentional efforts to ensure AI supports, rather than undermines, person-centered care. https://link.springer.com/article/10.1186/s12911- 023-02162-y Longitudinal Integration 10/28/25 Prof Muhammad Tauseef Jawaid 76
  • 77.
    • The principleof confidentiality is the ethical obligation of physician to preserve the information gathered in association with patient care. The patient needs to be able to trust the physicians, will protect the information shared in confidence. It is worth emphasizing that, confidentiality can be breached in few cases, to other healthcare personnels for patient care, patient can harm oneself or others or required by law. Confidentiality Longitudinal Integration 10/28/25 Prof Muhammad Tauseef Jawaid 77
  • 78.
    MCQ 1. A 45-year-oldpatient with hypertension refuses to take his prescribed medication, stating that he prefers herbal remedies. The doctor believes this will negatively impact his health. What is the doctor’s ethical responsibility in this situation? A) Force the patient to take the medication for their own benefit B) Respect the patient’s autonomy but provide information on the risks of not taking the medication C) Stop treating the patient as they are non-compliant D) Prescribe an herbal remedy instead to satisfy the patient Answer: B 10/28/25 Prof Muhammad Tauseef Jawaid 78
  • 79.
    MCQ A 30-year-old womanrequests a medical procedure that the doctor believes is unnecessary and may pose risks to her health. What is the doctor’s ethical responsibility? A) Perform the procedure because the patient has the right to request it B) Refuse the procedure without explanation C) Explain the risks and benefits and decline if it is not medically justified D) Proceed with the procedure to maintain a good doctor-patient relationship Answer: C 10/28/25 Prof Muhammad Tauseef Jawaid 79
  • 80.
    MCQ 3. A patientundergoing surgery insists that only a male doctor perform the procedure due to cultural beliefs. The hospital has only female surgeons available. What should be the doctor's response? A) Insist that the patient undergoes surgery with the available doctor, as it is medically necessary B) Respect the patient’s cultural beliefs and try to arrange for a male surgeon if possible C) Refuse to treat the patient since they are being unreasonable D) Inform the patient that they must sign a consent form acknowledging they are declining treatment due to personal preference Answer: B 10/28/25 Prof Muhammad Tauseef Jawaid 80
  • 81.
    Shared Decision-Making In thissection of the lesson, we will define shared decision-making and discuss ways to assess patient’s willingness and ability to be involved in the treatment planning process. 10/28/25 Prof Muhammad Tauseef Jawaid 81
  • 82.
    Learning Objectives After completingthis lesson, you will be able to: •Encourage active participation by the patient in decision-making and explain choices or rights to the patient in a patient-centered manner •Assess patient desire and capacity to be involved and responsible in the decision-making process •Determine patient preferences and priorities for treatment •Identify strategies to assist patients in discussing preferences and priorities with clinician •Support the patient in the decision-making process in alignment with desired level of engagement •Describe a treatment plan •Assess barriers to patient adherence to the plan •Develop a plan with the patient for addressing adherence challenges •Identify self-management and health promotion resources 10/28/25 Prof Muhammad Tauseef Jawaid 82
  • 83.
    What is SharedDecision-Making? “A process in which patients are involved as active partners with the clinician in clarifying acceptable medical options and in choosing a preferred course of clinical care.” Improved Sources: Sheridan et al. 2004; Fraenkel et al. 2007 10/28/25 Prof Muhammad Tauseef Jawaid 83
  • 84.
    Elements of SharedDecision-Making 10/28/25 Prof Muhammad Tauseef Jawaid 84
  • 85.
    Encouraging Patient Participationin Shared Decision-Making Source: Epstein et al. 2007 10/28/25 Prof Muhammad Tauseef Jawaid 85
  • 86.
    Discussing Treatment Preferences andPriorities • Do you have any religious beliefs? If so, how do those impact your care? What about spiritual beliefs? • How do you like to learn new information? (Give examples of visual, auditory and kinetic learning styles) • How much information would you like to have about your particular disease or treatment? • What is the best way to communicate with you? • Is there anyone else you would like to be involved in your care, like a friend, family member or religious/spiritual advisor? • What do you do to take care of yourself? How can our team support you in taking care of yourself? 10/28/25 Prof Muhammad Tauseef Jawaid 86
  • 87.
    Assessing Desire forDecision- Making Sources: Beagley. 2011; Coulter et al. 2008 10/28/25 Prof Muhammad Tauseef Jawaid 87
  • 88.
    Checkpoint Which of thefollowing impacts a patient’s capacity for shared decision-making? a)Health literacy b)Language c)Physical condition and environment d)Learning style e)All of the above 10/28/25 Prof Muhammad Tauseef Jawaid 88
  • 89.
    Assessing Capacity forDecision- Making Sources: U.S. Department of Health and Human Services. n.d.; Nielsen-Bohlman et al. 2004; Beagley. 2011; Kutner et al. 2006 10/28/25 Prof Muhammad Tauseef Jawaid 89
  • 90.
    Assessing Capacity forDecision- Making Sources: U.S. Department of Health and Human Services. n.d.; Nielsen-Bohlman et al. 2004; Beagley. 2011; Kutner et al. 2006 10/28/25 Prof Muhammad Tauseef Jawaid 90
  • 91.
    Assessing Health Literacy Cluesthat Your Patient May Have Low Health Literacy “I forgot my glasses today, could you read that for me?” Source: Cornett. 2009 10/28/25 Prof Muhammad Tauseef Jawaid 91
  • 92.
    Limited English Proficiency(LEP) • Struggles with communicating in English • Interpreter services are required by law and policy guidance: - Title VI of the Civil Rights Act of 1964 - HHS Policy Guidance on the Prohibition Against National Origin Discrimination as it Affects Persons With Limited English Proficiency - DOJ Guidance to Federal Financial Assistance Recipients Regarding Title VI Prohibition Against National Origin Discrimination Affecting Limited English Proficient Persons - Culturally and Linguistically Appropriate Services Standards for Health Care - Executive Order 13166 - Strategic Plan to Improve Access to HHS Programs and Activities by Limited English Proficiency Persons Sources: U.S. Department of Health and Human Services. n.d.; National Council on Interpreting in Health Care. n.d 10/28/25 Prof Muhammad Tauseef Jawaid 92
  • 93.
    What is yourpatient’s learning style? • Visual (pictures, charts, videos) • Auditory (verbal information) • Read or write (written words) • Kinesthetic (hands-on learning) Sources: Beagley. 2011; Inott et al. 2011; Fleming et al. 1992
  • 94.
    Supporting Patients inthe Decision- Making Process 10/28/25 Prof Muhammad Tauseef Jawaid 94
  • 95.
    Treatment Plans andSelf-Management This next section of the lesson explores treatment plan adherence, or whether patients follow the plan. We will identify ways that patient navigators can help patients to follow their treatment plans as well as support their patient in self-management of their condition. 10/28/25 Prof Muhammad Tauseef Jawaid 95
  • 96.
    Discussing Treatment Preferences andPriorities • Understand what patients need to make informed decisions • Coordinate with clinicians • Use decision aids and tailored information • Communicate effectively • Return to the 5As (Ask, Assess, Advise, Assist, Arrange) 10/28/25 Prof Muhammad Tauseef Jawaid 96
  • 97.
    Treatment Plan Source: Baloghet al. 2011 - Care coordination - Addressing barriers 10/28/25 Prof Muhammad Tauseef Jawaid 97
  • 98.
    • Fail tofill prescriptions due to - Feeling that the medication wasn’t necessary - Unable to afford the medication - Not wanting to take the medication - Not believing the medication would be effective • Not wanting to change their behavior • Wanting to avoid the side effects of treatment • Disbelief about the severity of their condition • Feeling too busy or too stressed to follow the treatment plan • Feeling incapable of changing their behavior • Uninvolved in treatment plan creation Barriers to Treatment Plan Adherence 10/28/25 Prof Muhammad Tauseef Jawaid 98
  • 99.
    Addressing Challenges toAdhering to the Treatment Plan 10/28/25 Prof Muhammad Tauseef Jawaid 99
  • 100.
  • 101.
    Self-Management Taking the actionsnecessary to live well and manage chronic conditions Sources: Adams et al. 2004; Pearson et al. 2007 10/28/25 Prof Muhammad Tauseef Jawaid 101
  • 102.
    Self-Management and Health PromotionResources 10/28/25 Prof Muhammad Tauseef Jawaid 102
  • 103.
    Conclusion In this lessonyou learned to: • Encourage active participation by the patient in decision-making and explain choices or rights to the patient in a patient-centered manner • Assess patient desire and capacity to be involved and responsible in the decision-making process • Determine patient preferences and priorities for treatment • Identify strategies to assist patients in discussing preferences and priorities with clinician • Support the patient in the decision-making process in alignment with desired level of engagement • Describe a treatment plan • Assess barriers to patient adherence to the plan • Develop a plan with the patient for addressing adherence challenges • Identify self-management and health promotion resources 10/28/25 Prof Muhammad Tauseef Jawaid 103
  • 104.
    References • Adams, K.G., Greiner, A. C., & Corrigan, J. M. (Eds.). (2004). Committee on the crossing the quality chasm: Next steps toward a new health care system. The 1st annual crossing the quality chasm summit: A focus on communities. Washington(DC): National Academies Press. ISBN: 0 309 09303 1. ‐ ‐ ‐ • Balogh, E. P., Ganz, P. A., Murphy, S. B., Nass, S. J., Ferrell, B. R., & Stovall, E. (2011). Patient centered cancer treatment ‐ planning: Improving the quality of oncology care. Summary of an Institute of Medicine workshop. Oncologist, 16(12):1800‐ 5. doi: 10.1634/theoncologist.2011 0252. ‐ • Beagley, L. (2011). Educating patients: Understanding barriers, learning styles, and teaching techniques. Journal of PeriAnesthesia Nursing, 26(5):331 337. doi: 10.1016/j.jopan.2011.06.002. ‐ • Butterworth, S. W. (2008). Influencing patient adherence to treatment guidelines. Journal of Managed Care Specialty Pharmacy, 14(6 Suppl B):21 24. doi: ‐ 10.18553/jmcp.2008.14.S6-B.21 • Cornett, S. (2009). Assessing and addressing health literacy. The Online Journal of Issues in Nursing, 14(3):Manuscript 2. doi: 10.3912/OJIN.Vol14No03Man02. • Coulter, A., Parsons, S., & Askham, J. (2008). Where are the patients in decision making about their own care ‐ . http://www.who.int/management/general/decisionmaking/WhereArePatientsinDecisionMakin g.pdf. • Epstein, R. M., & Street, R. L. Jr. (2007). Patient centered communication in cancer care: Promoting healing and reducing ‐ suffering. National Cancer Institute, NIH Publication No. 07 6225. Bethesda, MD. ‐ • Fleming, N. D., & Mills, C. (1992). Not another inventory, rather a catalyst for reflection. To Improve the Academy, 11:137‐ 155. 10/28/25 Prof Muhammad Tauseef Jawaid 104
  • 105.
  • 106.
    Evidence-Based Clinical Decision-Making • IntegratingEvidence, Expertise, and Patient Values • Presented by: Dr. Muhammad Tauseef Javed • Department of Community 10/28/25 Prof Muhammad Tauseef Jawaid 106
  • 107.
    Learning Objectives • Bythe end of this session, students will be able to: • 1. Define evidence-based clinical decision-making (EBCDM). • 2. Describe the three key components of EBCDM. • 3. Explain the steps in applying EBCDM. • 4. Recognize the importance and benefits of EBCDM in patient care. 10/28/25 Prof Muhammad Tauseef Jawaid 107
  • 108.
    What is EBCDM? •Definition: • “The conscientious, explicit, and judicious use of current best evidence in making decisions about the care of individual patients.” (Sackett et al., BMJ, 1996) • In essence: Combine best evidence + clinical expertise + patient preferences. 10/28/25 Prof Muhammad Tauseef Jawaid 108
  • 109.
    The Three Pillarsof EBCDM • 1. 🧠 Best Research Evidence – from clinical studies, guidelines, and systematic reviews. • 2. Clinical Expertise – skills and past ‍ ⚕️ ‍ ️ ‍ ⚕️ ‍ ⚕️ ‍ ⚕️ ‍ ⚕️ ‍ ⚕️ ‍ ⚕️ ‍ ⚕️ ‍ ⚕️ ‍ ⚕️ ‍ ⚕️ ‍ ⚕️ ‍ ⚕️ ‍ ⚕️ experience of the clinician. • 3. Patient Values & Preferences – ❤️ patient’s needs, beliefs, and expectations. 10/28/25 Prof Muhammad Tauseef Jawaid 109
  • 110.
    Steps in EBCDM(The 5 A’s) • 1. Ask – Formulate a clinical question (PICO). • 2. Acquire – Search for relevant evidence. • 3. Appraise – Critically evaluate evidence quality. • 4. Apply – Integrate with expertise and patient values. • 5. Assess – Evaluate outcome and learning. 10/28/25 Prof Muhammad Tauseef Jawaid 110
  • 111.
    Example – ApplyingEBCDM • Clinical Scenario: • A 50-year-old hypertensive male visits your clinic. • Decision Process: • • Evidence: Studies show ACE inhibitors reduce morbidity and mortality. • • Expertise: Doctor confirms normal kidney function. • • Patient Preference: Prefers once-daily oral medication. • Final Decision: Start ACE inhibitor + lifestyle counseling. 10/28/25 Prof Muhammad Tauseef Jawaid 111
  • 112.
  • 113.
    What is Evidence-BasedPractice? • Scientific Research & Theory • Client’s Contribution • RD Practice Experience and Wisdom Evidence Effectively integrating evidence into dietetic practice. Practic e Ensuring public safety and client- centred services Public Section I 10/28/25 Prof Muhammad Tauseef Jawaid 113
  • 114.
    “Evidence-based decision-making refers tomaking decisions that affect [client] patient care based on the best available evidence” 10/28/25 Prof Muhammad Tauseef Jawaid 114
  • 115.
    “Evidence-based practice isusing the best evidence to balance anticipated benefits and risks to support decisions for optimizing client-centred services.“ 10/28/25 Prof Muhammad Tauseef Jawaid 115
  • 116.
    Scienc e + RD Practice + Client Input 10/28/25Prof Muhammad Tauseef Jawaid 116
  • 117.
    Section II Evidence-Based Practicein Changing Environments. • Scientific Research & Theory • Client’s Contribution • RD Practice Experience and Wisdom Evidence RD professional & regulatory obligations for EPB including keeping current, self- assessment and professional development. Practic e EBP ensures public safety and client- centred services Public 10/28/25 Prof Muhammad Tauseef Jawaid 117
  • 118.
  • 119.
    Self- Assessment Continuing Education Professional Development Regulated Health ProfessionsAct Quality Assurance Regulation 10/28/25 Prof Muhammad Tauseef Jawaid 119
  • 120.
    Importance of EBCDM A.Improves quality and consistency of care. B. Promotes rational and cost-effective practice. C. Reduces medical errors. D. Encourages shared decision-making with patients. E. Strengthens lifelong learning. 10/28/25 Prof Muhammad Tauseef Jawaid 120
  • 121.
    Challenges in Practicing EBCDM •• Limited time for literature search. • • Difficulty appraising research quality. • • Access issues to databases or journals. • • Resistance to change or reliance on traditional practice. 10/28/25 Prof Muhammad Tauseef Jawaid 121
  • 122.
    Strategies to PromoteEBCDM • • Teach EBP skills early in medical education. • • Encourage journal clubs and case discussions. • • Use evidence-based clinical guidelines. • • Foster a culture of inquiry and reflection. 10/28/25 Prof Muhammad Tauseef Jawaid 122
  • 123.
    Reflective Questions 10/28/25 ProfMuhammad Tauseef Jawaid 123
  • 124.
    Section III Integrating Evidenceinto clinical Practice • Scientific Research & Theory • Client’s Contribution • RD Practice Experience and Wisdom Evidence The 5-Step EBP Model for RDs helps integrate evidence into clinical practice. Practic e EBP ensures public safety and client- centred services. Publi c 10/28/25 Prof Muhammad Tauseef Jawaid 124
  • 125.
    Clien t Step 1 ASK Step 2 ACCES S Step 3 APPRAI SE Step 4 ACT Step5 ASSESS (Gilgun 2005; Spring 2007; Smith 2008; Fischer & Orme 2009; Mazurek Melnyk 2010) 10/28/25 Prof Muhammad Tauseef Jawaid 125
  • 126.
    PICO Model 10/28/25 ProfMuhammad Tauseef Jawaid 126
  • 127.
    PICO Model Problem orpopulation of client- Who or What? Describe a group of clients similar to your own. Intervention/exposure/ maneuver - How? What intervention are you considering? Comparison- What is the main alternative? (If appropriate)? Outcome - What are you trying to accomplish, measure, improve, effect? 10/28/25 Prof Muhammad Tauseef Jawaid 127
  • 128.
    PICO Case Scenario Elderlysuffering from bedsores Population: Elderly or aged Intervention: Nutrition supplement Comparison: None Outcome: Reduction in incidence and severity of bed sores Question: •"What nutrition interventions reduce the incidence and severity of bed sores in elderly residents of LTC facilities?" 10/28/25 Prof Muhammad Tauseef Jawaid 128
  • 129.
    Reflective Question 10/28/25 ProfMuhammad Tauseef Jawaid 129
  • 130.
    10/28/25 Prof MuhammadTauseef Jawaid 130
  • 131.
    PICO Case Scenario:Vegan Diet 10/28/25 Prof Muhammad Tauseef Jawaid 131
  • 132.
    Is there asignificant reduction in cardiovascular disease when adults suffering from the disease are treated with a vegan diet in comparison to other vegetarian or healthy heart diets? PICO Case Scenario: Vegan Diet Aswerable Question 10/28/25 Prof Muhammad Tauseef Jawaid 132
  • 133.
    Clien t Step 1 ASK 5-Step Evidence-Based Practice Model Step1: Ask Focused Questions 10/28/25 Prof Muhammad Tauseef Jawaid 133
  • 134.
    5-Step Evidence-Based Practice Model Step2: Access Best Available Evidence Step 1 ASK Step 2 ACCESS Client ( 10/28/25 Prof Muhammad Tauseef Jawaid 134
  • 135.
    10/28/25 Prof MuhammadTauseef Jawaid 135
  • 136.
    Hierarchy of Scientific Evidence (Gray & Gray2002) 10/28/25 Prof Muhammad Tauseef Jawaid 136
  • 137.
    10/28/25 Prof MuhammadTauseef Jawaid 137
  • 138.
    Use Reliable Websitesfor Research 10/28/25 Prof Muhammad Tauseef Jawaid 138
  • 139.
    Science + Client Input +Practice Science alone is not sufficient. 10/28/25 Prof Muhammad Tauseef Jawaid 139
  • 140.
  • 141.
    Reflective Question Did you everhave an experience where you needed to access information at the point of service? What did you do? 10/28/25 Prof Muhammad Tauseef Jawaid 141
  • 142.
    5-Step Evidence-Based Practice Model Step3: Critical Appraisal Step 1 ASK Step 2 ACCESS Client Step 3 APPRAI SE (Gilgun 2005; Spring 2007; Smith 2008; Fischer & Orme 2009; Mazurek Melnyk 2010) 10/28/25 Prof Muhammad Tauseef Jawaid 142
  • 143.
    Summary • • EBCDM= Best evidence + Clinical expertise + Patient preferences. • • Involves a systematic 5-step process (Ask, Acquire, Appraise, Apply, Assess). • • Enhances patient outcomes and professional accountability. 10/28/25 Prof Muhammad Tauseef Jawaid 143
  • 144.
    Learn to tellgood from bad research 10/28/25 Prof Muhammad Tauseef Jawaid 144
  • 145.
  • 146.
    Critical Appraisal Gilgun’s FourCornerstones of EBP Research & Theory Practic e Wisdo m Personal Assumptio ns Client’s Contributi on (Gilgun, 2005) 10/28/25 Prof Muhammad Tauseef Jawaid 146
  • 147.
  • 148.
  • 149.
    Case Scenario: TheVegan Diet 10/28/25 Prof Muhammad Tauseef Jawaid 149
  • 150.
    Science + Client Input +Practice Critical Thinking and Reflection 10/28/25 Prof Muhammad Tauseef Jawaid 150
  • 151.
    Critical Thinking andReflection Kolb'S Learning Style Theory Revisited Educational and Psychological Measurement June 1, 1994, 54:317- 327 10/28/25 Prof Muhammad Tauseef Jawaid 151
  • 152.
    Critical Appraisal Gilgun’s FourCornerstones of EBP 10/28/25 Prof Muhammad Tauseef Jawaid 152
  • 153.
    Select the bestoptions for safe client-centred services. 10/28/25 Prof Muhammad Tauseef Jawaid 153
  • 154.
  • 155.
    Make sure your evidenceis current and client-centred. 10/28/25 Prof Muhammad Tauseef Jawaid 155
  • 156.
    Evidence-based practice helps clients exercisetheir right and responsibility to make informed decisions and consent to treatment. 10/28/25 Prof Muhammad Tauseef Jawaid 156
  • 157.
    Reflective Question How do clientneeds and values affect the decision-making process in your practice? 10/28/25 Prof Muhammad Tauseef Jawaid 157
  • 158.
    5-Step Evidence-Based Practice Model Step5 Assessing Performance (Gilgun 2005; Spring 2007; Smith 2008; Fischer & Orme 2009; Mazurek Melnyk 2010) Clien t Step 1 ASK Step 2 ACCES S Step 3 APPRAI SE Step 4 ACT Step 5 ASSESS 10/28/25 Prof Muhammad Tauseef Jawaid 158
  • 159.
     Monitor &evaluate  Support positive changes  Consider new benefits  Pay attention to risks Step 5: Assessing Performance Audit and Feedback 10/28/25 Prof Muhammad Tauseef Jawaid 159
  • 160.
    Reflective Question What changeshave you made to your practice to help clients make informed decisions? How did you evaluate the changes? 10/28/25 Prof Muhammad Tauseef Jawaid 160
  • 161.
    Scienc e + RD Practice + Client Input Evidence-BasedPractice Regulatory and Professional Obligations for RDs Section IV – Summary 10/28/25 Prof Muhammad Tauseef Jawaid 161
  • 162.
    Public Safety &Interest Maintaining Competence Evidence-Based Practice Regulatory and Professional Obligations for RDs 10/28/25 Prof Muhammad Tauseef Jawaid 162
  • 163.
    Clien t Step 1 ASK Step 2 ACCES S Step 3 APPRAI SE Step 4 ACT Step5 ASSESS 5-Step Evidence-Based Practice Model 10/28/25 Prof Muhammad Tauseef Jawaid 163
  • 164.
    References • 1. SackettDL et al. Evidence-Based Medicine: What It Is and What It Isn’t. BMJ. 1996. • 2. Straus SE, Glasziou P, Richardson WS, Haynes RB. Evidence-Based Medicine: How to Practice and Teach It. 5th ed. Elsevier, 2018. • 3. WHO. EBM in Primary Care. Geneva, 2020. 10/28/25 Prof Muhammad Tauseef Jawaid 164

Editor's Notes

  • #27 There are many definitions of literacy. This is the definition used in 2 federal surveys of adult literacy. We will talk about the National Assessment of Adult Literacy (NAAL– sounds like “ball”) later in this talk, and I think this is one of the better definitions, so this is the one I will be using. I read the definition aloud to the audience.
  • #38 This is to show how the definition has expanded to include both sides and the concept of acting on this great information, not just understnding it.
  • #40 This is what the Info-seekers need to learn. This is where adult education comes in to help. This is what they do!
  • #41 This is where HL training programs and the 10 attributes come in!
  • #42 This is where HL training programs and the 10 attributes come in!
  • #44 Intro to new section
  • #64 Coalitions: ABE are equal partners at the table Other two: they can even be the experts!
  • #81 In this section of the lesson, we will define shared decision-making and discuss ways to assess patient’s willingness and ability to be involved in the treatment planning process.
  • #82 After completing this lesson, you will be able to: Encourage active participation by the patient in decision-making and explain choices or rights to the patient in a patient-centered manner Assess patient desire and capacity to be involved and responsible in the decision-making process Determine patient preferences and priorities for treatment Identify strategies to assist patients in discussing preferences and priorities with clinician Support the patient in the decision-making process in alignment with desired level of engagement Describe a treatment plan Assess barriers to patient adherence to the plan Develop a plan with the patient for addressing adherence challenges Identify self-management and health promotion resources
  • #83 Shared decision-making is defined by the United States Preventative Services Task Force as “a process in which patients are involved as active partners with the clinician in clarifying acceptable medical options and in choosing a preferred course of clinical care.” Patient participation in decision-making can improve patient knowledge, adherence to treatment and outcomes. Even among patients who do not wish to actively participate in decision-making, having an interactive discussion with their provider improves patient satisfaction with care.
  • #84 Certain elements must be in place to encourage patients’ active participation in care. These include: Patient knowledge- Being informed is critical to being an active participant in medical decision-making. Physician encouragement can also lead to patients’ active involvement in their care. Patients who believe in their right and responsibility to participate in medical decision-making are more likely to be involved in their care. Patients who have an awareness of their choices and options are more likely to engage in shared decision-making. Lastly, spending time with the physician discussing treatment concerns is necessary for patients’ active participation. Many patients have trouble with the amount and complexity of information they get, so it is critical for patient navigators to support clear, open dialogue between the patient and provider that is tailored to each patient’s needs.
  • #85 Patient navigators can encourage patient participation in shared decision-making using the following general patient-centered strategies: Encourage the patient to become involved in their care and build a partnership with the patient. Work to set the agenda together about what concerns need to be addressed. Practice active listening during meetings with patients. Ensure the patient understands any information being shared with them. And Display warmth and empathy verbally and non-verbally when communicating with patients.
  • #86 Here are some questions a navigator might ask to start a conversation with a patient about preferences. These questions can help you better understand the patient’s needs and advocate on their behalf if necessary. Do you have any religious beliefs? If so, how do those impact your care? What about spiritual beliefs? How do you like to learn new information? (Give examples of visual, auditory and kinetic learning styles) How much information would you like to have about your particular disease or treatment? What is the best way to communicate with you? Is there anyone else you would like to be involved in your care, like a friend, family member or religious/spiritual advisor? What do you do to take care of yourself? How can our team support you in taking care of yourself?
  • #87 The most common source of patient dissatisfaction is feeling uninformed and uninvolved in care and treatment decisions. Assessing the capacity and desire of a patient to participate in their health management involves many factors. Considerations in assessing desire for shared decision-making should include: Culture Patient navigators must be culturally sensitive in working with patients and their families. They should also recognize and confront cultural biases, generalizations and values that may differ from the patients they are working with. Patient navigators should take into consideration the impact that culture may have on shared decision-making. For example, some patients may not want to be involved in shared decision-making as their culture dictates that the provider is always correct. We will talk more about this in module 5. Personal preference Not all patients want to engage in decision-making, while some patients want to be involved in every decision. The navigator should work with the patient to clarify his or her preferences, keeping in mind factors that could impact desire and ability to participate, as well as changes in preferences and priorities over time.
  • #88 Which of the following impacts a patient’s capacity for shared decision-making? Health literacy Language Physical condition and environment Learning style All of the above All of these impact a patient’s capacity for shared decision-making.
  • #89 Considerations in assessing capacity for shared decision-making should include: Health literacy. Health literacy is different from literacy. A person who is illiterate is someone who can not read or write. People with low literacy are not illiterate, but have difficulties with reading, writing, speaking or computing to solve problems. When working with patients who have low literacy, think about how you can tailor your approach to improve their understanding. For example, if someone has difficulty reading, it might be better to show them a video rather than give them a book to read. You could also use different words that are easier for people with low literacy to understand or break down thoughts into smaller concepts. Health literacy is related in that it depends on a person’s literacy skills in understanding health-related topics. Health literacy is the ability to understand basic health information to participate in and make decisions about one’s health care. Low health literacy has been linked to delayed diagnosis, poor disease management skills, higher health care costs and overall poor health outcomes. Tools and resources are available to assist navigators in assessing and determining health literacy and identifying populations that are at greater risk for low health literacy. A list of these will be provided in the resources section of the learning management system. Language. When working with patients who speak a language different from that of the patient navigator and/or medical team, every attempt must be made to provide a qualified translator. Family members may not be ideal as they may not have the health literacy needed to correctly translate a clinical discussion. Medical translation phone lines are available when an agency does not have an interpreter on site that speaks a particular language. Ask your supervisor for procedures at your institution. Physical condition and environment. Physical and environmental conditions can impact a patient’s ability to understand and be receptive to health information. Pain, limited mobility, poor lighting, room temperature and noise level can not only be distracting to a patient but may add to anxiety, fear or other limitations to being engaged in his or her health care. Learning style. Assessing a patient’s learning style is critical to understanding how best to communicate information to the patient and ensure comprehension. Patient navigators may use strategies from more than one learning style to accommodate a patient’s needs and accurately and effectively communicate information. For example, for a patient requiring transportation assistance, a patient navigator could verbally explain their options to them and give them a handout providing the same information on available programs.
  • #90 Considerations in assessing capacity for shared decision-making should include: Health literacy. Health literacy is different from literacy. A person who is illiterate is someone who can not read or write. People with low literacy are not illiterate, but have difficulties with reading, writing, speaking or computing to solve problems. When working with patients who have low literacy, think about how you can tailor your approach to improve their understanding. For example, if someone has difficulty reading, it might be better to show them a video rather than give them a book to read. You could also use different words that are easier for people with low literacy to understand or break down thoughts into smaller concepts. Health literacy is related in that it depends on a person’s literacy skills in understanding health-related topics. Health literacy is the ability to understand basic health information to participate in and make decisions about one’s health care. Low health literacy has been linked to delayed diagnosis, poor disease management skills, higher health care costs and overall poor health outcomes. Tools and resources are available to assist navigators in assessing and determining health literacy and identifying populations that are at greater risk for low health literacy. A list of these will be provided in the resources section of the learning management system. Language. When working with patients who speak a language different from that of the patient navigator and/or medical team, every attempt must be made to provide a qualified translator. Family members may not be ideal as they may not have the health literacy needed to correctly translate a clinical discussion. Medical translation phone lines are available when an agency does not have an interpreter on site that speaks a particular language. Ask your supervisor for procedures at your institution. Physical condition and environment. Physical and environmental conditions can impact a patient’s ability to understand and be receptive to health information. Pain, limited mobility, poor lighting, room temperature and noise level can not only be distracting to a patient but may add to anxiety, fear or other limitations to being engaged in his or her health care. Learning style. Assessing a patient’s learning style is critical to understanding how best to communicate information to the patient and ensure comprehension. Patient navigators may use strategies from more than one learning style to accommodate a patient’s needs and accurately and effectively communicate information. For example, for a patient requiring transportation assistance, a patient navigator could verbally explain their options to them and give them a handout providing the same information on available programs.
  • #91 Here is a checklist to use to help you to find clues that your patient may have low health literacy. It is also provided in the resources section of the learning management system. Patients with low health literacy may Submit incomplete or poorly completed paperwork Demonstrate poor medication adherence Frequently miss appointments Show nervousness, confusion, frustration or indifference in complex learning situations Point to text when reading it Make excuses not to read on the spot, saying things like “I forgot my glasses today, could you read that for me?” or “I’m too tired right now, I’ll read this at home.” If the patient has low health literacy, you may need to: Spend more time making sure they understand Adapt your interaction style to better fit their ability, for example you could pause more often to ask the patient to tell you what they heard Select more appropriate resources that are tailored to their ability
  • #92 Low or limited literacy is not the same as limited English proficiency (LEP). Individuals with LEP may be literate in their primary language but struggle to communicate in English. In these instances, translation services are necessary. Interpreter services are required by law and policy guidance. These include: Title VI of the Civil Rights Act of 1964 HHS Policy Guidance on the Prohibition Against National Origin Discrimination as it Affects Persons With Limited English Proficiency DOJ Guidance to Federal Financial Assistance Recipients Regarding Title VI Prohibition Against National Origin Discrimination Affecting Limited English Proficient Persons Culturally and Linguistically Appropriate Services Standards for Health Care (discussed in module 5 lesson 3). Executive Order 13166 Strategic Plan to Improve Access to HHS Programs and Activities by Limited English Proficiency Persons
  • #93 Patient navigators can assess their patient’s learning style to determine the best method for sharing information. The Fleming and Mills VARK learning theory describes the styles of learning: Visual, Auditory, Read or Write and Kinesthetic, as they relate to patient education. Visual: Visual learners prefer to see information. Pictures, charts, graphs and video are preferable to verbal information. Visual material should be well organized, interesting and easy to read. Auditory: Auditory learners learn best by listening. Verbal information should be rephrased and questions should be communicated in different ways to best communicate information. Auditory learners do well with sounds, music and speech; changing the pitch, speed and volume of speech helps keep the information interesting. Read or Write: Read or write learners may appear to be similar to visual learners, but display a specific preference for words. Presenting health information in written format and allowing the patient time to read it would be most beneficial for learners of this style. Kinesthetic: Kinesthetic learners prefer hands-on learning with breaks to move around. Patient navigators should encourage these learners to take notes and demonstrate information whenever possible. It is important to remember that learning styles are not weaknesses but just personal preferences for information. Your patient may have more than one learning style, in which case presenting information in more than one format may be most effective. The VARK learning theories and a questionnaire to help you assess your patient’s learning style can be accessed online. Information is provided in the resources section of the learning management system.
  • #94 Patients are most empowered when they have the skills, information and resources to manage their chronic illness. Patient navigators can support patients by: Providing information in a user-friendly way. Providing verbal support of the patient’s ability to make decisions. Understanding that the patients’ decisions and preferences may change. Supporting open dialogue between the patient and the physician that identifies goals that are important to the patient. This helps the physician and patient develop a realistic plan to achieve those goals, including aspects the patient can manage. Providing patients with ongoing support and encouragement. And Referring patients to community-based organizations and encouraging patients to use them to manage needs such as transportation, financial assistance or peer support groups.
  • #95 After your patient has expressed their preferences for shared decision-making and worked with his or her provider to discuss treatment options, they will be given a treatment plan. This next section of the lesson explores treatment plan adherence, or whether patients follow the plan. We will identify ways that patient navigators can help patients to follow their treatment plans as well as support their patient in self-management of their condition.
  • #96 Patient navigators can use different approaches to help patients in discussing treatment preferences and priorities. The goal is to make sure patients understand and have their questions answered. The patient navigator facilitates this process rather than answering questions or making recommendations. First, it is important to understand what patients need to have in place to make informed decisions. Patients need to be educated on the seriousness of cancer and the risks and benefits to treatment options, as well as have an understanding of their own values. Patients need to be assessed so that these are in place prior to making decisions. Patient navigators should coordinate with clinicians to help support decision-making. Clinicians should focus on answering questions and negotiating final treatment options. Patient navigators can help patients with preparing for treatment discussions with providers by offering support and education. Using decision aids like pamphlets, web-based tools or charts, or creating communications tailored to the specific needs of the patient may also be helpful for the patient to remember information and weigh options. These materials may be provided for patients during clinical visits, and patient navigators can work through the materials with patients to see what patients feel they understand and to come up with questions to ask clinicians if any of the information does not make sense. Patient navigators should also use communication strategies such as avoiding distractions, maintaining eye contact, using short, simple words and frequently summarizing the most important points. Finally, although patient navigators will not be making treatment decisions with patients, they can partner with the patient to create a plan to make their decision. Using the five As discussed earlier in this module will be a useful tool for this process. The navigator can ask the patient questions to understand what challenges they are facing and their perceptions. Then the navigator can assess the patient’s needs, goals and abilities. With that assessment, the navigator can advise the patient on developing a plan and assist patients in removing barriers and implementing the plan. Finally, the navigator can arrange to follow up with the patient.
  • #97 The complexity of cancer and the wide variety of treatment options available make it hard for patients to make decisions about their care. Cancer care delivery is fragmented with multiple specialties, multiple choices of providers and various locations to receive care. This results in problems with coordinating care and preparing comprehensive treatment plans. Treatment plans can help you prioritize your responsibility to your patients. A treatment plan is a document prepared by the doctor that describes the path of cancer care and can be given to the patient, family or other members of the care team in order to inform everyone about the path of care and who is responsible for each part of that care. Components of a treatment plan include: Specific tissue diagnosis and stage, including relevant biomarkers, which are molecules found in blood, other fluids or tissues that are signs of disease Initial treatment plan and proposed duration Expected common and rare toxicities during treatment and their management Expected long-term effects of treatment Who will take responsibility for specific aspects of treatment and their side effects Psychosocial and supportive care plans Vocational, disability or financial concerns and their management Advance care directives and preferences. An advance directive is a legal document the patient fills out that says what treatment the patient does or doesn’t want if they can’t make medical decisions because they are in a coma or unconscious. The treatment plan should encourage conversations with the patient and can be used as a spring board for patient navigation, including assisting in care coordination and addressing barriers. If patients have specific questions about content of their care plan, you should help them list their questions and refer them to their doctor or clinician. Some institutions are required to provide treatment plans and give them to all patients. However, not all institutions do, and treatment plans can look different at different places. As a navigator, you should check your institution’s policy. If treatment plans are offered, then you can work with the patient to ask the clinician for a treatment plan.
  • #98 Patients may have trouble following their treatment plan. For example, they may not fill prescriptions due to Feeling that the medication wasn’t necessary Being unable to afford the medication Not wanting to take the medication or Not believing the medication would be effective. Patients may not want to change their behavior, or may want to avoid the side effects of treatment. Patients may be in disbelief about the severity of their condition. This might make them feel that their risk is not high enough to change their behavior or adhere to treatment. They may feel too busy or too stressed to follow the treatment plan. Feeling unable to change their behavior may also be a barrier to adhering to the treatment plan. Being uninvolved in the treatment plan creation process. Patients are more likely to follow a treatment plan when they are involved in creating it.
  • #99 Regardless of the challenge, there are steps that can be taken to address barriers and help patients adhere to their treatment plan. Always make sure the doctor is aware of any adherence issues. Make sure you and your patient agree on what the patient’s challenge is to treatment adherence. Refer challenges of a clinical nature, such as concerns about treatment side effects or understanding the severity of their condition, to the doctor or clinician, and support the patient in discussing issues. Next, determine the appropriate goal to overcome the challenge. Then, talk to the patient about their options. If the cost of paying for a prescription is preventing them from taking their medication, talk about options to be able to afford the medication such as resources for financial assistance. Help the patient choose the option that makes the most sense to them. Include loved ones in the conversation as appropriate. Friends and family members who interact with your patient may play an important role in your patient’s ability to adhere to their treatment plan. Have the patient summarize what was just discussed to make sure they understood the conversation. Follow up with questions about how important the patient feels it is to follow the treatment plan and whether they are confident that they can follow the treatment plan. A lack of confidence or understanding of the importance of the treatment plan may mean the patient needs a referral to health care providers for further education on the condition and support for treatment adherence. You can also try using an importance or confidence scale by asking the patient to rate the importance or their confidence on a scale of 1 to 10, with 1 being most important or confident. You can then ask the patient why the number is not lower or what they would need to do to feel more confident. This helps set the stage for defining the patient's needs. Be nonjudgmental when following up on treatment plan adherence. Try asking something like “Many people find it difficult to always take their medication as prescribed. How has your experience been?” If the patient admits to not following the treatment plan, alert the health care team and discuss barriers to treatment. Be sure to congratulate patients who are following their treatment plan. Let’s go through an example with Carlos, a patient who is supposed to start radiation but is concerned about transportation to treatments. In the last lesson we talked about strategies for assessing patients by listening, looking, clarifying and asking. When Carlos meets with his navigator Caroline, she notices that he seems uneasy. She asks Carlos if there is anything troubling him that he’d like to share. He responds that he has some anxiety about his treatment schedule and is afraid he may miss treatments. He says he is embarrassed to admit it, but his car broke down last week and he could not afford to get it fixed. He is scared that he won’t be able to get treatment and will die. He was able to come in today because he rode in with his sister who works nearby. Caroline can see that he is embarrassed and concerned. She clarifies by saying, “It can be hard to get to radiation appointments every day for several weeks. It sounds like the biggest reason you are worried about missing treatments is because you don’t have reliable transportation right now?” Carlos nods his head. Caroline begins walking through the process to help Carlos make it to treatment. Carlos agrees that if he has a ride he will come to treatment every day, so they decide the goal is to find reliable options. Since his visits are first thing in the morning, he thinks his sister can drop him off every day, but she has to work and he can’t sit around all day waiting for her to come get him. Caroline asks Carlos if he knows anyone else who could give him a ride, such as a neighbor or friend. Carlos realizes that his neighbor down the street is retired and has a car, but he doesn’t want to be a burden on him. Caroline asks if there is a bus near the cancer center that goes near his house. Carlos knows there is a bus, but he does not think he can afford it. Caroline mentions a ride sharing program that may be able drop him off after radiation. They talk through each option. Carlos says that, even though it is expensive, he would like to take the bus. Caroline tells him that sounds like a good plan and that she thinks she can help get some discounted bus fare for him. She then asks Carlos to tell her again how he will get to and from his appointments. He says his sister will drop him off and he will take the bus home. Caroline then asks him how comfortable he feels that this is a reliable option. Carlos says he thinks it will work. She also asks him what his backup plan will be if this falls through. He said he will talk with his neighbor today about being a backup. He will also sign up for the ride sharing program in case the bus rides home after treatment become uncomfortable. Caroline reassures him that even if Carlos arrives late for an appointment he will still be treated, and that he can always call her or the front desk to let them know if he won’t be arriving on time. Carlos feels much more confident and less stressed.
  • #100 Patients’ self-management of disease has been shown to greatly improve patient outcomes and quality of life. Studies have found that patients who participate in the management of their care have improved emotional and mental health and greater self-confidence. Other benefits of patient self-management include less pain, reduced nausea, significantly less fatigue, reduced hopelessness and less depression. These benefits may even extend to family members.
  • #101 A part of adhering to the treatment plan means encouraging patients to self-manage their care. Self-management is taking the actions necessary to live well and manage chronic conditions. Patients comfortable with self-management coordinate the various aspects of their care. Typical tasks of self-management include Carefully tracking symptoms. Determining what to do when symptoms cause problems, like deciding to visit the doctor or go to the emergency room. Adopting healthy behaviors and giving up old ones. Taking medications as prescribed. And Scheduling doctors’ appointments and lab visits. Self-management is particularly important for patients with other chronic diseases on top of cancer. While many of these activities should be overseen by a clinician, think about how a patient navigator can help support self-management. The navigator can: Help the patient report symptoms to the clinician and list questions to ask about what to do about symptoms. The navigator can also assess the patient’s understanding of what the clinician tells them. The navigator can provide information about adopting healthy behaviors and encourage the patient to talk with an appropriate clinician about them. The navigator can assess non-clinical barriers to adherence to treatment or inform clinicians if the patient mentions clinical reasons for non-adherence. And The navigator can help the patient schedule doctors’ appointments and lab visits.
  • #102 There are a number of resources available to help cancer patients with self-management. For concerns related to medications, treatment, symptom management and health promotion, like diet, exercise and behavior modification, patients should first consult their clinical health care team for guidance. The clinicians can help patients with managing symptoms, provide education and refer patients to specialists. Hospitals and treatment facilities may also have resources for patients, including support groups, classes and programs led by health professionals. Community resources may include support groups and classes, as well as financial assistance, transportation assistance and day care/elder care support. Finally, there are many websites devoted to providing education and information to cancer patients. These can be found in the resources section of the learning management system.
  • #103 In this lesson you learned to: Encourage active participation by the patient in decision-making and explain choices or rights to the patient in a patient-centered manner Assess patient desire and capacity to be involved and responsible in the decision-making process Determine patient preferences and priorities for treatment Identify strategies to assist patients in discussing preferences and priorities with clinician Support the patient in the decision-making process in alignment with desired level of engagement Describe a treatment plan Assess barriers to patient adherence to the plan Develop a plan with the patient for addressing adherence challenges Identify self-management and health promotion resources
  • #112 Presenter 2013-03-12 17:58:54 -------------------------------------------- This module is divided into four sections: Section 1. Defines what is evidence-based practice. Section 2:Evidence-Based Practice in Changing Dietetic Environments Section 3: Integrating evidence into RD practice: The 5-Step EBP Model for RDs. Section 4: Summary Access any section of the presentation from this content slide. Move back and forth using the arrows on the navigation bar below. To pause the presentation, click on the pause key. To view the entire text in the side bar, use the scroll bar on the right. To begin, click on link for Section 1.
  • #113 Presenter 2013-03-12 17:58:56 -------------------------------------------- What is evidence-based practice (EBP)? The term “evidence-based medicine” described the approach that used scientific evidence to determine best practices in medicine. Later, the term shifted to become “evidence-based practice” as health care professionals other than physicians recognized the importance of scientific evidence in decision-making.
  • #114 Presenter 2013-03-12 17:58:57 -------------------------------------------- According to Dietitians of Canada, “Evidence-based decision-making refers to making decisions that affect client/patient care based on the best available evidence.”
  • #115 Presenter 2013-03-12 17:58:57 -------------------------------------------- In keeping with its public protection mandate, here is a perspective from the College of Dietitians of Ontario. “Evidence-based practice is using the best evidence to balance anticipated benefits and risks to support decisions for optimizing client-centred services“.
  • #116 Presenter 2013-03-12 17:58:57 -------------------------------------------- In simple terms, evidence-based practice relies on evidence from three sources of information: 1. the best scientific research or information available; 2. the client’s values, preferences, needs, goals and/or wishes ; 3. the professional judgement and expertise acquired by an RD through dietetic practise and experience.
  • #117 Presenter 2013-03-12 17:58:59 -------------------------------------------- Evidence-based practice applies to all areas of practice and settings including: - Clinical - Public Health - Long Term Care - Food Service - Industry - Management - Teaching & Training - Research - Media & Communication - Government Evidence-based practice also applies to any client regardless of practice setting, for example: - client in private practice - population - employee - vendor/ business - employer or agency - university students - long-term care residents - patients/clients in hospitals
  • #118 Presenter 2013-03-12 17:58:59 -------------------------------------------- Evidence forms the foundation of best practices for all health care professionals including dietitians. One issue RDs face when using evidence is that research and science are always evolving and changing to advance dietetic practice and enable safe and competent dietetic services.
  • #119 Presenter 2013-03-12 17:58:59 -------------------------------------------- To stay abreast of scientific knowledge, RDs need a continuing education and professional development plan throughout their career. RDs are required by law to participate in the QA Program to ensure that their services are always based on the best possible information and that they continue to practice safely, ethically and competently in the interest of public safety. This obligation is stipulated in the Regulated Health Professions Act, Schedule II and in the College’s Quality Assurance Regulation.
  • #123 Presenter 2013-03-12 17:59:00 -------------------------------------------- Take a few minutes to reflect on what you need to do to keep abreast of changes in your area of practice and ensure safe client-centre services. When you are ready, please click on the forward arrow for the next slide.
  • #124 Presenter 2013-03-12 17:59:01 -------------------------------------------- This section introduces the ‘5-Step Evidence-Based Model’ used extensively by many researchers and Dietitians of Canada to effectively integrate evidence into dietetic practice.
  • #125 Presenter 2013-03-12 17:59:03 -------------------------------------------- Evidence-based practice is grounded in five well-defined steps: ask, access, appraise, act and assess. The College has placed the client in the center as a reminder that the purpose for evidence-based practice is to ensure client-centred services and public safety.
  • #126 Presenter 2013-03-12 17:59:04 -------------------------------------------- The PICO model can be used it to help understand fuzzy or unclear practice situations faced by dietitians.
  • #127 Presenter 2013-03-12 17:59:04 -------------------------------------------- Let’s take a closer look at PICO: a) Problem or population of client — Describe a group of patients similar to your own b) Intervention, exposure, or maneuver — What intervention are you considering c) Comparison (if relevant) — What is the main alternative to the intervention d) Outcomes — What do you hope to accomplish with the intervention
  • #128 Presenter 2013-03-12 17:59:04 -------------------------------------------- PICO Scenario: Elderly Suffering from Bed Sores To illustrate how an RD would use PICO to formulate a question, the scenario provides an example of the question: "What nutrition interventions reduce the incidence and severity of bed sores in residents of LTC facilities?"
  • #129 Presenter 2013-03-12 17:59:04 -------------------------------------------- Take a few minutes to reflect on how you would apply PICO to determine whether this dietitian is using evidence-based practice. Formulate an answerable question to help you evaluate the situation. P - Who or What? I - How? What intervention? C - What is the main alternative? O - What are you trying to accomplish? When you are ready, find a solution on the next slide.
  • #130 Presenter 2013-03-12 17:59:05 -------------------------------------------- PICO identifies gaps in the RD approach for vegan diet. It demonstrates that the information provided in the scenario is too vague to formulate a focused answerable question as a first step in an evidence-based process.
  • #131 Presenter 2013-03-12 17:59:05 -------------------------------------------- Let’s rework the question to do a literature search: P = choose a specific population, for example, adults 18+ with cardio-vascular disease I = vegan diet C = Canada Food Guide and other vegetarian diets O = reduction of cardio-vascular disease and increased health and wellness in adults (18+) with cardio-vascular disease. Take a few minutes to reflect on a new answerable question that could be formulated for an evidence-based approach. When you are ready, go to the next slide.
  • #132 Presenter 2013-03-12 17:59:05 -------------------------------------------- The new answerable research question could be: Is there a significant reduction in cardiovascular disease when adults suffering from the disease are treated with a vegan diet in comparison to other vegetarian or healthy heart diets?
  • #133 Presenter 2013-03-12 17:59:06 -------------------------------------------- To summarize, asking a well-formulated question will focus the search for evidence and will help determine whether the evidence is relevant to your practice situation and the intervention needed. It is critical for RDs to understand and use the most relevant, client-centred evidence.
  • #134 Presenter 2013-03-12 17:59:07 -------------------------------------------- Step 2 is accessing the best available evidence from research, professional experience and other contextual information relevant to the practice situation.
  • #135 Presenter 2013-03-12 17:59:10 -------------------------------------------- Evidence can be accessed from many sources: 1. Client input: clients or their substitute decision-makers. 2. Scientific research: articles, databases and conference. 3. Professional dietetic experience: colleagues, social networks, workshops and conferences. 4. Local context: colleagues/care team, organizations and private practice.
  • #136 Presenter 2013-03-12 17:59:10 -------------------------------------------- This pyramid illustrates the well known hierarchy or pecking order of evidence. RDs need to familiar with the pros and cons of using evidence at each level. Dietitians of Canada has an online course about, “Evidence Literacy Learning”, which helps increase the critical appraisal skills needed by RDs to evaluate scientific literature.
  • #137 Presenter 2013-03-12 17:59:10 -------------------------------------------- These are the common scientific research databases used by RDs. The Electronic Health Library: To further support professional development, the HealthForceOntario Allied Health Professional Development Fund has invested in a multi-year subscription to an Electronic Health Library. This library will give practicing members of the allied health professionals access to the most recent health care literature to help determine the best approach to evidence-based practice.
  • #138 Presenter 2013-03-12 17:59:10 -------------------------------------------- Search reliable websites for nutrition information on the internet. Look for the HONCode. HON was founded to encourage the dissemination of quality health information for patients and professionals and the general public, and to facilitate access to the latest and most relevant medical data through the use of the internet. The HONCode certification is an ethical standard aimed at offering quality health information. It demonstrates the intent of a website to publish transparent, objective and correct medical information.
  • #139 Presenter 2013-03-12 17:59:10 -------------------------------------------- Evidence-based practice recognizes that science alone is not sufficient for client-centre decision-making. Client contributions also add to the evidence. Sometimes “clients’ feelings, ideas and wider experience [are] more important than objective outcomes” (Sackett 2000). It is necessary to incorporate the client’s values, preferences, needs, goals and/or wishes when considering options.
  • #140 Presenter 2013-03-12 17:59:11 -------------------------------------------- The emphasis on the clients’ considerations makes evidence-based practice a client-centred practice.
  • #141 Presenter 2013-03-12 17:59:11 -------------------------------------------- Take a few minutes to reflect on how you access information for decision-making in your practice. Did you every have an experience where you did not know the answer to a practice issue? When you are ready, please go to the next slide.
  • #142 Presenter 2013-03-12 17:59:12 -------------------------------------------- Critical appraisal is the process of interpreting evidence. It exposes potential gaps in the evidence presented and what needs to be further explored.
  • #144 Presenter 2013-03-12 17:59:12 -------------------------------------------- Develop the Ability To Tell Good From Bad Research RDs are expected to have the ability to critique, synthesize research findings and interpret evidence-based practice guidelines. There are many methods to critically appraise evidence. Illustration courtesy of Google images: http://hippieprofessor.wordpress.com/2010/09/21/the-out-of-control-group/
  • #145 Presenter 2013-03-12 17:59:12 -------------------------------------------- Rapid critical appraisal will help determine which resources are most important, relevant, valid, reliable, and applicable to the question at hand. Keep only the articles that have passed this appraisal.
  • #146 Presenter 2013-03-12 17:59:14 -------------------------------------------- Jane Gilgun’s Four Cornerstone of EBP provides a guide for appraising and reflecting on information to help develop critical thinking ability. (Gilgun, J.F. (2005). The four cornerstones of evidence-based practice in social work. Research on Social Work Practice, 15(1)). We have already looked at the importance of research and theory and the client’s contribution for evidence-based practice. We will now look at how an RDs own practice wisdom and personal assumptions can have a serious impact on decision-making.
  • #147 Presenter 2013-03-12 17:59:14 -------------------------------------------- Practice wisdom comes from what we and other seasoned professionals have learned from our experiences with clients. It is both science and art where intuition, knowledge, skills, values, and experience comes together. (Epstein 1999)
  • #148 Presenter 2013-03-12 17:59:15 -------------------------------------------- Personal assumptions refer to the “optimistic bias,” or the belief that our interventions are more effective than they really are. This is also known as seeing what is not there. Personal assumptions may shape interpretations even more than the most rigorous research.
  • #149 Presenter 2013-03-12 17:59:15 -------------------------------------------- Let’s take another look at the Vegan Diet Scenario. Here, the dietitian seems to be forgetting the client perspective in the decision-making process. When the RD emphasizes that she would “consider it unethical to recommend anything but a vegan diet to my clients”, the focus appears to be on her own beliefs and ethics. The missing piece for evidence-based practice is the client’s beliefs and ethics. This is not a client-centred approach.
  • #150 Presenter 2013-03-12 17:59:16 -------------------------------------------- Developing the ability to think and reflect critically shows a willingness to seek information that challenges our understanding and an openness to appraising the evidence for the benefit of the client. Critical thinking and reflection can help identify and manage any bias, values or beliefs which may affect how we present the evidence for decision-making.
  • #151 Presenter 2013-03-12 17:59:16 -------------------------------------------- How do we engage in mindful critical reflection when making judgements? Reflective practice enables us to learn from our experiences. Kolb suggests that we have a concrete experience (doing or having an experience), then engage in observation (documenting what happened), followed by reflection (reviewing and making sense of the experience and concluding or learning from the experience) and finally, engaging in active experimentation (planning and trying out what you have learned).
  • #152 Presenter 2013-03-12 17:59:17 -------------------------------------------- Always remember, client preferences are part of the evidence-based decision-making process.
  • #153 Presenter 2013-03-12 17:59:18 -------------------------------------------- Selecting the best options possible for safe client-centred services means having information that allows the team, in conjunction with clients, to select care and services that are more likely to be helpful & least likely to be harmful.
  • #154 Presenter 2013-03-12 17:59:19 -------------------------------------------- RDs have a responsibility to engage in collaborative & negotiating discussions to advocate for clients. RDs bring new knowledge and experience to the table. To do this effectively, they must: - Understand their own scope of practice and those of other health providers - Develop effective communication skills - Understand controlled acts and authority mechanisms - Develop interpersonal relationships - Manage conflicts effectively - Trust their team and their own contribution - Show respect for others on their team and for clients - Learn to access and share information in the best interest of the client - Take the necessary steps to include the client perspective in all decisions - Engage in the QA Program and make learning plans to continuously develop their knowledge and skills.
  • #155 Presenter 2013-03-12 17:59:19 -------------------------------------------- Sharing evidence and advocating for clients is best when the evidence is current and based on research from science, from client input and from practice experience. RDs risk damaging their professional reputation if they use information that is out-of-date or wrong. Or worse, you may hurt your client. Be aware of the most current evidence-based options to ensure client safety.
  • #156 Presenter 2013-03-12 17:59:19 -------------------------------------------- Ultimately, decisions are based on the client’s needs and values. Your professional responsibility is to document your suggestions and communicate with the client. If a client prefers another solution, then the client’s preferences becomes part of the evidence. The RD must respect that choice. In the end, it is the responsibility of the client or their substitute decision-maker to make an informed decision and consent to treatment.
  • #157 Presenter 2013-03-12 17:59:19 -------------------------------------------- Take a few minutes to reflect on how client needs and values affect the decision-making process in your practice? When you are ready, please go to the next slide.
  • #158 Presenter 2013-03-12 17:59:20 -------------------------------------------- Assessing means: - Evaluating your own performance - Evaluating and auditing evidence-based decisions Evaluating practice allows RDs to modify their practice in the best interests of clients. This involves monitoring and assessing their own performance; monitoring changes in outcomes, supporting positive changes, mitigating risks and emphasizing client-centred benefits.
  • #159 Presenter 2013-03-12 17:59:21 -------------------------------------------- “Audit and feedback” means to assess, monitor and evaluate any changes in outcomes. Evaluate any new benefits and potential risks. Support positive changes and remedy negative outcomes immediately.
  • #160 Presenter 2013-03-12 17:59:21 -------------------------------------------- Please take a few minutes to reflect on changes you have made in your practice to help clients make informed decisions. How did you evaluate the changes? When you are ready, go to the next slide.
  • #161 Presenter 2013-03-12 17:59:21 -------------------------------------------- Evidence-based practice relies on scientific knowledge, client input and the RD practice. In the end, clients have the responsibility and the right to accept or refuse any option presented to them.
  • #162 Presenter 2013-03-12 17:59:21 -------------------------------------------- In any practice area, public safety and interest is by far your first professional obligation and responsibility. To stay abreast of scientific knowledge for evidence-based practice, make sure you have a continuing education and professional development plan throughout your career. Remember that the College supports life-long learning through its Quality Assurance (QA) Program. Your Self-Directed Learning Tool is valuable for continued self-assessment and for planning continuing education and professional development in areas where you might need improvement or updating. The College’s Professional Practice Service supports your learning by answering your questions, addressing your concerns and directing you to valuable dietetic resources.
  • #163 Presenter 2013-03-12 17:59:23 -------------------------------------------- The objective of this presentation was to discuss professional and regulatory obligations for evidence-based practice and to present the Five-Step EBP Model for RDs. Understanding regulatory and professional obligations when using evidence-based practice is fundamental to client safety and quality services in all changing dietetic environments. It places emphasis on the importance of “seeking” knowledge, appraising evidence, using judgment and most importantly, emphasizes the client values needed to support decisions in dietetics.