BY JANET VANHECK
NOVEMBER 2010
The Change of the Term ‘Mental
Retardation’ to ‘Intellectual
Disability’
Current Status
‘Intellectual Disability’ now covers the same
population of individuals who were previously
diagnosed with ‘mental retardation.’
Considerable and intense discussion in the field.
Current classification system was developed in 2002
by an international committee.
5 Trends in the Field of ID
Ecological perspectives that bases the definition of
ID on a multidimensional model.
Disablement as a limitation in function.
Multidimensionality of intellectual disabilities.
Linking assessment to intervention.
The importance of clinical judgment.
Construct of Intellectual Disability
ID is viewed within the overall context of disability.
The construct of intellectual disability belongs within
the general construct of disability.
ID is no longer considered an absolute trait of the
person.
Terminology
When those with disability have objected to the
terms, such terms have to be discarded.
Becomes important to protect this new term from
taking on the stigma of earlier expressions.
The term should support self-advocacy and
political correctness.
The term will likely have a wider acceptance
internationally.
The Definition
“Intellectual disability is characterized by significant
limitations both in intellectual functioning and in
adaptive behavior as expressed in conceptual, social,
and practical adaptive skills. This disability
originates before age 18.”
A definition can make someone eligible, exempted,
included, or entitled.
Human Functioning:
5 Dimensions
Intellectual abilities – general mental capability.
Adaptive behavior – skills that people learn to
function in their everyday lives.
Health – WHO defines it as a state of complete
physical, mental, and social well being.
Participation – the functioning of the individual in
society.
Context – environmental factors make up the
physical and social environment in which people
live.
Historical:
Negative Construction
Many terms to describe persons with ID: mental
deficiency, mental subnormality, imbecile, idiot,
feeble-minded.
Exclusion of people with intellectual disabilities is
inherent in Western culture.
To have mental retardation was to be defective.
Inferior mental performance characterized by
mental slowness or retardation.
Historical Overview
The term mental retardation can be traced to the
early 20th
century.
The word retard refers to slowness. Mental
retardation is mental slowness.
Intellectual disability is quite different from
mental retardation.
ID is the fit between the person’s capacity and the
context in which he or she functions.
ID refers to a state of functioning, not a condition.
Historical Reconstruction
During the last half of the 20th
century, it was clear
that the concept was changing.
A new way of thinking about disability emerged.
Focus on functional limitations, personal well-being,
individual supports, and personal competence and
adaptations.
Historical Approaches
Social approach – people with ID did not adapt
socially to their environment.
Clinical approach – a medical view that included
heredity and pathology.
Intellectual approach – intelligence tests and IQ
scores.
Dual-criterion approach – impairments in
maturation, learning, and social adjustment.
Legal Requirements
Laws provide funding for families with a child with
ID or for adults with the disability.
Developmental Disabilities Assistance and Bill of
Right Act
Social Security
 Disability Insurance Program
 Supplemental Security Income Program
 Maternal and Child Health Services Block Grant
Policy and Practice
Functional limitations – how persons with ID are
limited in their capacity to function.
Personal well-being – policy evaluation should
focus on increased independence, productivity, and
community integration.
Individualized supports – eligibility, classification
& funding should be based on the supports needed
for each person.
Personal competence – shift from a personal trait
to a functional limitation that can be eliminated.
Recommendations
Protecting the new term – based on disability
literature.
The future of the field of ID – promote a better
understanding.
Future research – causes; relation to disability.
Predictions
Future research will help us better understand ID
and its relationship to disability.
The future depends on members of society and
how they interact with people with disabilities.
We will try to better understand the nature of
intelligence, adaptive behavior, and disablement.
The 2002 definition of ID will continue to be
advanced by the American Association for
Intellectual and Developmental Disabilities.

The Change of the Term ‘Mental Retardation’ to 'Intellectual Disability', CEC, Denver, 2011.

  • 1.
    BY JANET VANHECK NOVEMBER2010 The Change of the Term ‘Mental Retardation’ to ‘Intellectual Disability’
  • 2.
    Current Status ‘Intellectual Disability’now covers the same population of individuals who were previously diagnosed with ‘mental retardation.’ Considerable and intense discussion in the field. Current classification system was developed in 2002 by an international committee.
  • 3.
    5 Trends inthe Field of ID Ecological perspectives that bases the definition of ID on a multidimensional model. Disablement as a limitation in function. Multidimensionality of intellectual disabilities. Linking assessment to intervention. The importance of clinical judgment.
  • 4.
    Construct of IntellectualDisability ID is viewed within the overall context of disability. The construct of intellectual disability belongs within the general construct of disability. ID is no longer considered an absolute trait of the person.
  • 5.
    Terminology When those withdisability have objected to the terms, such terms have to be discarded. Becomes important to protect this new term from taking on the stigma of earlier expressions. The term should support self-advocacy and political correctness. The term will likely have a wider acceptance internationally.
  • 6.
    The Definition “Intellectual disabilityis characterized by significant limitations both in intellectual functioning and in adaptive behavior as expressed in conceptual, social, and practical adaptive skills. This disability originates before age 18.” A definition can make someone eligible, exempted, included, or entitled.
  • 7.
    Human Functioning: 5 Dimensions Intellectualabilities – general mental capability. Adaptive behavior – skills that people learn to function in their everyday lives. Health – WHO defines it as a state of complete physical, mental, and social well being. Participation – the functioning of the individual in society. Context – environmental factors make up the physical and social environment in which people live.
  • 8.
    Historical: Negative Construction Many termsto describe persons with ID: mental deficiency, mental subnormality, imbecile, idiot, feeble-minded. Exclusion of people with intellectual disabilities is inherent in Western culture. To have mental retardation was to be defective. Inferior mental performance characterized by mental slowness or retardation.
  • 9.
    Historical Overview The termmental retardation can be traced to the early 20th century. The word retard refers to slowness. Mental retardation is mental slowness. Intellectual disability is quite different from mental retardation. ID is the fit between the person’s capacity and the context in which he or she functions. ID refers to a state of functioning, not a condition.
  • 10.
    Historical Reconstruction During thelast half of the 20th century, it was clear that the concept was changing. A new way of thinking about disability emerged. Focus on functional limitations, personal well-being, individual supports, and personal competence and adaptations.
  • 11.
    Historical Approaches Social approach– people with ID did not adapt socially to their environment. Clinical approach – a medical view that included heredity and pathology. Intellectual approach – intelligence tests and IQ scores. Dual-criterion approach – impairments in maturation, learning, and social adjustment.
  • 12.
    Legal Requirements Laws providefunding for families with a child with ID or for adults with the disability. Developmental Disabilities Assistance and Bill of Right Act Social Security  Disability Insurance Program  Supplemental Security Income Program  Maternal and Child Health Services Block Grant
  • 13.
    Policy and Practice Functionallimitations – how persons with ID are limited in their capacity to function. Personal well-being – policy evaluation should focus on increased independence, productivity, and community integration. Individualized supports – eligibility, classification & funding should be based on the supports needed for each person. Personal competence – shift from a personal trait to a functional limitation that can be eliminated.
  • 14.
    Recommendations Protecting the newterm – based on disability literature. The future of the field of ID – promote a better understanding. Future research – causes; relation to disability.
  • 15.
    Predictions Future research willhelp us better understand ID and its relationship to disability. The future depends on members of society and how they interact with people with disabilities. We will try to better understand the nature of intelligence, adaptive behavior, and disablement. The 2002 definition of ID will continue to be advanced by the American Association for Intellectual and Developmental Disabilities.