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Powerful new “Doctor becomes an e-patient”
story in Journal of Participatory Medicine
by e-Patient Dave on April 18, 2011
amednews: Participatory medicine: A high-tech alliance...
35 http://www.ama-assn.org/amednews/2010/01/1
tweets
The Impact of eHealth on the thethat patient and Safety of
Two years ago we wrote “Let’s hear it for ‘d-patients’”
Quality
— doctors who become e-patients themselves. We said “D-patients prove
retweet
empowerment is anything but anti-doctor. Heck, sometimes it’s aOverview
Health Care: A Systematic doctor preservation movement.”
September, 2011
TELEMEDICINE
306 WINKELMAN ET AL., Patient-Perceived Usefulness of Online EMR
Doctors, Patients & SocialTELEMEDICINE:
A new article inAshly D. Black1,Participatory MedicineTECHNOLOGY example: A Cresswell2, Tomislav Bokun1,
our Journal ofAN ESSENTIAL provides a compelling 2, Kathrin
Josip Car1, Claudia Pagliari2, Chantelle Anandan
Media Physician’s Experience as a CancerREFORMED Majeed4, Importance2* Patient
Brian McKinstry2, Rob of the Neck Patient: The Aziz Sheikh of
3
FOR Procter , Azeem HEALTHCARE
AN ESSENTIAL TECHNOLOGY
Research PaperParticipation. The author, Itzhakof Primary Care and makes our point: London, London, United Kingdom, 2 eHealth Research Group, Centre for Population
j 1 eHealth Unit, Department Brook MD, Public Health, Imperial College
Health Sciences, The University of Edinburgh, Edinburgh, United Kingdom, 3 National Centre for e-Social Science, University of Manchester, Manchester, United Kingdom,
FOR REFORMED HEALTHCARE
4 Department of Primary Care and Public BUSINESS
Health, Imperial College London, London, United Kingdom
Patient-Perceivedfacedpersonal storydiagnosedOnline and undergoing will realizesurgeries. I am
challenges
Usefulness the hope thatcancer Electronic Medical
I am telling my
by a patient
in of
with
health care providers
extensive
the difficult
Records: Employingthe importance of active participationinthe patient and their family members
also discussing Grounded Theory of the Development of
Abstract
quality and safety of health care. Technologies for technologies are underway Participatory Health:
Informationinand CommunicationtoImplementations of of eHealth solutions onUse by safety of health care,often to
all phases of care.
Background: There is considerable international interest in exploiting the potential of digital solutions to enhance the
Journal of Participatory Medicine » My 8-Point Participatory ... transformative eHealth
http://www.jopm.org/opinion/commentary/2011/09/06/my-8-... globally, at
Patients Living with Chronic on eHealth various eHealthwe(emphasisonsystematic reviewsafety of care. reviews assessing the and Mobile Tools
Online
very considerable cost. In order assess the impact the quality and and
inform policy adds, in
Illness
JoPM co-editor Charlie Smith decisions his introductory note: undertook aadded)
effectiveness and consequences of
deployments,
technologies the quality and
of systematic
- Journal of Participatory Medicine - http://www.jopm.org -
You may wonder whyand Findings: We account of his search strategies, conceptual mapshe health care quality, safety, and eHealth
Methods a physician’s developed novel illness and the frustrations of experienced Help Chronically Ill
merit publication in this journal. But, if a doctor has this degree of anxiety, this the systematic review literature. Major
interventions, and then systematically identified, scrutinised, and synthesised much
My 8-PointWARREN J. WINKELMAN, What Makes Me a
Participatory Philosophy: MD, MBA, FRCPC, Khis care toLEONARD, MBA, PHD,
difficulty getting information about EVIN J.and this systematic reviews publishedsystematic1997 andthat focused on assessing
biomedical databases were searched identify degree of struggle making good between 2010. Related theoretical, Manage Their Care
methodological, and technical material was also reviewed. We identified 53 reviews
Participatory Patient ROSSOS, decisions, then patients of eHealth interventions on why theyand/orso overwhelmed and incapable, at systematic reviews
PETER G. MD, FRCPC impact can easily understand the quality feel safety of health care and 55 supplementary
the
Posted By Kathy Kastner On September 6, 2011 @ 5:41 pm In Commentary,Vol. 3, 2011 |
14 Comments
times, of truly providing relevant supportiveown care. What we are advocating for is found to be generally of substandard
“participating” in their information. This systematic review literature was difficult in
quality with regards to methodology, reporting, and utility. We thematically categorised eHealth technologies into three
the best of circumstances storing, managing,all hands on deck for(2) clinical decision support; and (3) facilitating care from a
main areas: (1) and requires and transmission of data; the task! September 2009
Abstract Objective: Patient useWe found that despite support fromrecords (EMR) holds relatively little empirical evidence to substantiate
distance. of online electronic medical policymakers, there was the potential to improve
Abstract health outcomes.and many other manystudy claims discover how patients living withwhen he inflammatory bowel disease
I – The purpose of to of thequality and in relation toDr. Brook meansWhether thesays: of those relatively few solutions identified
this
patients – is to made
know exactly what these technologies. chronic success
(IBD) value e-patients, patient-physician communication, online safety would records. ifwww.georgebatesstudio.com] beyond the contexts in which they were originally
Keywords: Participatory medicine,
Internet-based patient improve to electronic patientby continue / these were deployed
access [Illustration George Bates
developed, has yet to be established. Importantly, best practice guidelines in effective development and deployment
communities. …both of these approaches [physicians who acted "half full" and "half empty"] deprived mepatients
Participatory medicine: A high-tech alliance with
Design: This was a qualitative, exploratory, descriptive study using in-depth interviews and focus groups of a total of 12
strategies are lacking.
Citation: Kastner K. My 8-point participatory philosophy: what makes me a participatory
patients with IBD of at least one-year duration at is a large gap Health Network, a tertiary care center in Toronto, Ontario. possibly more financially advantageous to doctors and patients.
patient. J Participat Med. 2011 Sept 6; 3:e40. Conclusions: There
University between the postulated patient participation in medicine more workable -- and technologies.
of being truthfully and fully informed about my prognosis, which is essential for making
Information technology is making
and empirically demonstrated benefits of eHealth
Published: September 6, 2011.
logical choices concerning treatment. I preferred those who told me the truth about risks and
Results: Four themes have been elucidatedthere is a lack ofBy a theoreticalon the risks of staff. Posted Jan. 18, 2010. information and
In addition, that compriserobust research framework implementing these technologies and their cost-effectiveness
Competing Interests: The author has declared that no competing interests exist.
PAMELA LEWIS DOLAN, amednews of patient-perceived
communication technology usefulness:if it was notof a sense ofbeing frequently promoted patient-drivenand ‘‘techno-enthusiasts’’ as if this was a
my prognosis, has yet to be demonstrated, despite illness ownership, of by policymakers communication, of
even promotion rosy. I always voiced my preference to the physicians so that](https://image.slidesharecdn.com/trulytwowaycommnicationformatslideshare-111124150033-phpapp01/75/Towards-truly-two-way-communication-in-health-care-21-2048.jpg)
Uploaded byA.R.J. (Rob) Halkes
Towards truly two way communication in health care
This document discusses the need for integrated and participatory care for health. It argues that current health systems are too expensive and unsustainable given rising demand. It proposes a new model of participatory medicine where patients are active drivers of their health rather than passive recipients of care. This involves greater structure and coordination between all parties involved in a patient's care, including medical professionals, family/friends, and the patient themselves through self-management and compliance. Research supports participatory care models that emphasize collaboration between patients and providers.
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- 21. Powerful new “Doctorbecomes an e-patient” story in Journal ... http://e-patients.net/archives/2011/04/doctor-as-e-patient-jopm... There’s ample research Home About Us Society for Participatory Medicine I Am An e-Patient Search this website... GO Powerful new “Doctor becomes an e-patient” story in Journal of Participatory Medicine by e-Patient Dave on April 18, 2011 amednews: Participatory medicine: A high-tech alliance... 35 http://www.ama-assn.org/amednews/2010/01/1 tweets The Impact of eHealth on the thethat patient and Safety of Two years ago we wrote “Let’s hear it for ‘d-patients’” Quality — doctors who become e-patients themselves. We said “D-patients prove retweet empowerment is anything but anti-doctor. Heck, sometimes it’s aOverview Health Care: A Systematic doctor preservation movement.” September, 2011 TELEMEDICINE 306 WINKELMAN ET AL., Patient-Perceived Usefulness of Online EMR Doctors, Patients & SocialTELEMEDICINE: A new article inAshly D. Black1,Participatory MedicineTECHNOLOGY example: A Cresswell2, Tomislav Bokun1, our Journal ofAN ESSENTIAL provides a compelling 2, Kathrin Josip Car1, Claudia Pagliari2, Chantelle Anandan Media Physician’s Experience as a CancerREFORMED Majeed4, Importance2* Patient Brian McKinstry2, Rob of the Neck Patient: The Aziz Sheikh of 3 FOR Procter , Azeem HEALTHCARE AN ESSENTIAL TECHNOLOGY Research PaperParticipation. The author, Itzhakof Primary Care and makes our point: London, London, United Kingdom, 2 eHealth Research Group, Centre for Population j 1 eHealth Unit, Department Brook MD, Public Health, Imperial College Health Sciences, The University of Edinburgh, Edinburgh, United Kingdom, 3 National Centre for e-Social Science, University of Manchester, Manchester, United Kingdom, FOR REFORMED HEALTHCARE 4 Department of Primary Care and Public BUSINESS Health, Imperial College London, London, United Kingdom Patient-Perceivedfacedpersonal storydiagnosedOnline and undergoing will realizesurgeries. I am challenges Usefulness the hope thatcancer Electronic Medical I am telling my by a patient in of with health care providers extensive the difficult Records: Employingthe importance of active participationinthe patient and their family members also discussing Grounded Theory of the Development of Abstract quality and safety of health care. Technologies for technologies are underway Participatory Health: Informationinand CommunicationtoImplementations of of eHealth solutions onUse by safety of health care,often to all phases of care. Background: There is considerable international interest in exploiting the potential of digital solutions to enhance the Journal of Participatory Medicine » My 8-Point Participatory ... transformative eHealth http://www.jopm.org/opinion/commentary/2011/09/06/my-8-... globally, at Patients Living with Chronic on eHealth various eHealthwe(emphasisonsystematic reviewsafety of care. reviews assessing the and Mobile Tools Online very considerable cost. In order assess the impact the quality and and inform policy adds, in Illness JoPM co-editor Charlie Smith decisions his introductory note: undertook aadded) effectiveness and consequences of deployments, technologies the quality and of systematic - Journal of Participatory Medicine - http://www.jopm.org - You may wonder whyand Findings: We account of his search strategies, conceptual mapshe health care quality, safety, and eHealth Methods a physician’s developed novel illness and the frustrations of experienced Help Chronically Ill merit publication in this journal. But, if a doctor has this degree of anxiety, this the systematic review literature. Major interventions, and then systematically identified, scrutinised, and synthesised much My 8-PointWARREN J. WINKELMAN, What Makes Me a Participatory Philosophy: MD, MBA, FRCPC, Khis care toLEONARD, MBA, PHD, difficulty getting information about EVIN J.and this systematic reviews publishedsystematic1997 andthat focused on assessing biomedical databases were searched identify degree of struggle making good between 2010. Related theoretical, Manage Their Care methodological, and technical material was also reviewed. We identified 53 reviews Participatory Patient ROSSOS, decisions, then patients of eHealth interventions on why theyand/orso overwhelmed and incapable, at systematic reviews PETER G. MD, FRCPC impact can easily understand the quality feel safety of health care and 55 supplementary the Posted By Kathy Kastner On September 6, 2011 @ 5:41 pm In Commentary,Vol. 3, 2011 | 14 Comments times, of truly providing relevant supportiveown care. What we are advocating for is found to be generally of substandard “participating” in their information. This systematic review literature was difficult in quality with regards to methodology, reporting, and utility. We thematically categorised eHealth technologies into three the best of circumstances storing, managing,all hands on deck for(2) clinical decision support; and (3) facilitating care from a main areas: (1) and requires and transmission of data; the task! September 2009 Abstract Objective: Patient useWe found that despite support fromrecords (EMR) holds relatively little empirical evidence to substantiate distance. of online electronic medical policymakers, there was the potential to improve Abstract health outcomes.and many other manystudy claims discover how patients living withwhen he inflammatory bowel disease I – The purpose of to of thequality and in relation toDr. Brook meansWhether thesays: of those relatively few solutions identified this patients – is to made know exactly what these technologies. chronic success (IBD) value e-patients, patient-physician communication, online safety would records. ifwww.georgebatesstudio.com] beyond the contexts in which they were originally Keywords: Participatory medicine, Internet-based patient improve to electronic patientby continue / these were deployed access [Illustration George Bates developed, has yet to be established. Importantly, best practice guidelines in effective development and deployment communities. …both of these approaches [physicians who acted "half full" and "half empty"] deprived mepatients Participatory medicine: A high-tech alliance with Design: This was a qualitative, exploratory, descriptive study using in-depth interviews and focus groups of a total of 12 strategies are lacking. Citation: Kastner K. My 8-point participatory philosophy: what makes me a participatory patients with IBD of at least one-year duration at is a large gap Health Network, a tertiary care center in Toronto, Ontario. possibly more financially advantageous to doctors and patients. patient. J Participat Med. 2011 Sept 6; 3:e40. Conclusions: There University between the postulated patient participation in medicine more workable -- and technologies. of being truthfully and fully informed about my prognosis, which is essential for making Information technology is making and empirically demonstrated benefits of eHealth Published: September 6, 2011. logical choices concerning treatment. I preferred those who told me the truth about risks and Results: Four themes have been elucidatedthere is a lack ofBy a theoreticalon the risks of staff. Posted Jan. 18, 2010. information and In addition, that compriserobust research framework implementing these technologies and their cost-effectiveness Competing Interests: The author has declared that no competing interests exist. PAMELA LEWIS DOLAN, amednews of patient-perceived communication technology usefulness:if it was notof a sense ofbeing frequently promoted patient-drivenand ‘‘techno-enthusiasts’’ as if this was a my prognosis, has yet to be demonstrated, despite illness ownership, of by policymakers communication, of even promotion rosy. I always voiced my preference to the physicians so that
- 24. A rightly designed E-Health Platform To trigger and facilitate!
- 34.
- 35. Experience Co-Creating Care EC3 A method of development to reach a common understanding between all parties based on insights into each others’ interest
- 36. EC3 is notthe same as “working together” Traditional Strategy Co-Creative Strategy Creates value by delivering Creates value by constantly Values defined customer experience to targeted customer set enhancing experiences for all stakeholders Establishes strategic goals at Uses the initial strategic goal as Goals the outset and doesn’t a starting point and lets the full significantly change them strategy emerge over time On the interests of the firm: that is, how the firm can maximize its Focuses on the interests of all stakeholders and how the Focus share of the created value ecosystem can maximize the relative to the shares of its industry competitors size of the pie; Achieves advantage through the Achieves advantage through increased engagement of realizing economies of scale stakeholders and by continually Advantage before competitors do and building new interactions and making big, bold moves experiences, which lead to higher productivity, higher creativity, and lower costs and risks
- 37. THANK YOU Rob Halkes BUVan Spaendonck – Value innovation in Medical and Life Sciences T +31 418 578000 M+31 653 420722 E [email protected] G.E.H. Tutein Noltheniuslaan 7 W www.medicalandpharmamarketing.com 4181AS Waardenburg T @rohal the Netherlands
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